SurvivorCare: A digital health solution to support long-term cancer survivorship using patient navigation

SurvivorCare：使用患者导航支持长期癌症生存的数字健康解决方案

基本信息

批准号：
10321516
负责人：
Y. Xian Ho
金额：
$ 76.48万
依托单位：
DIMAGI, INC.
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-21 至 2023-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10321516
关键词：
Address Adherence Breast Cancer Center Cancer Patient Cancer Survivor Cancer Survivorship Caring Clinical Colorectal Colorectal Cancer Communication Community Health Aides Computerized Medical Record Coordination and Collaboration Discrimination Documentation Effectiveness Enrollment Environment Face Feedback Future Goals Group Interviews Guidelines Head and Neck Cancer Health Health Insurance Health Services Accessibility Hospitals Human Improve Access Insurance Coverage Internet Interview Learning Long-Term Care Lung Malignant neoplasm of lung Malignant neoplasm of prostate Minority Modification Oncology Online Systems Patients Performance Pharmaceutical Preparations Phase Population Primary Health Care Production Prostate Readiness Recommendation Research Resources Sampling Site Small Business Innovation Research Grant Survivors System Testing Time Training Underserved Population Urban Hospitals Validation Work base cancer care cancer type community based care design digital health disadvantaged population experience follow-up health disparity implementation efforts improved malignant breast neoplasm member mobile application programs prototype safety net survivorship tool usability web app

项目摘要

Project Summary There is a growing and urgent need to address a gap in transitional and follow-up care for long-term cancer survivors shifting from oncology-based to primary and community-based care. Frontline health workers such as patient navigators and community health workers can support cancer survivors with the transition from oncology- based to primary care. The overall goal of this Phase II SBIR project is to refine and test SurvivorCare, a mobile- /web-based system to support long-term cancer survivorship through patient navigation for low-resource, underserved populations. Following a human-centered design approach and recommendations and learnings from Phase I pilot work, we will develop and test a functional web/mobile application expressly designed for patient navigators and other frontline health workers assisting with patient navigation and cancer survivors through a centralized platform supporting needs related to cancer survivorship care planning. We will achieve our project goal through 3 specific aims: • Specific Aim 1. We will build a functional prototype based on feedback collected in Phase I. Specifically, we will expand the scope of our Phase I work to include support for patients in early stages of survivorship with prevalent cancer types with survivorship care plans and/or patient navigation programs such as colorectal, breast, prostate, lung, and head/neck cancers. ● Specific Aim 2. We will conduct usability testing of a functional prototype with target end users (patient navigators and cancer survivors) to validate content and usability. ● Specific Aim 3. We will conduct beta testing in real-world clinical settings with target end users in two large, urban, safety net hospitals serving diverse, low-resource populations. Results from this project will go towards furthering research and implementation efforts in developing tools to promote collaboration and coordination between frontline health workers, cancer survivors, PCPs, and other cancer care team members to mitigate pronounced health disparities in long-term cancer survivorship.

项目摘要越来越需要解决长期癌症过渡和后续护理差距幸存者从基于肿瘤学到基于肿瘤学和基于社区的护理。一线卫生工作者，例如患者导航员和社区卫生工作者可以通过从肿瘤学的过渡来支持癌症生存 - 基于初级保健。该II阶段SBIR项目的总体目标是完善和测试Mobile-thervorCare，这是一种移动 /基于Web的系统，通过患者导航低资源来支持长期癌症生存，服务不足的人群。遵循以人为本的设计方法以及建议和学习从I阶段的飞行员工作中，我们将开发和测试一个专门设计的功能性Web/移动应用程序患者导航员和其他前线卫生工作者协助患者导航和癌症幸存者通过集中的平台支持与癌症生存护理计划有关的需求。我们将实现我们通过3个特定目标的项目目标： •特定目标1。我们将根据第1阶段收集的反馈构建功能原型我们将扩大I阶段工作的范围，以在生存的早期阶段包括对患者的支持具有生存护理计划和/或患者导航计划的普遍癌症类型（例如结直肠，乳房，前列腺，肺和头部/颈部癌症。 ●具体目标2。我们将对目标最终用户（患者）对功能原型进行可用性测试导航器和癌症存活）以验证内容和可用性。 ●特定目标3。我们将在现实世界中与目标最终用户进行两次实现目标测试大型城市安全网医院为潜水员，低资源人口提供服务。该项目的结果将采取进一步的研究和实施工作，以开发工具促进一线卫生工作者，癌症幸存者，PCP和其他方面的合作与协调癌症护理团队成员减轻长期癌症生存的明显健康差异。