Creating a Faith-Based Toolbox for African Americans Living with Moderate and Severe Dementia

为患有中度和重度痴呆症的非裔美国人创建基于信仰的工具箱

• 批准号: 10388096
• 负责人: Fayron Recha Epps
• 金额: $ 19.13万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-03-15 至 2024-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10388096
• 关键词: Adult; Advisory Committees; Affect; African American; African American population; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Assisted Living Facilities; Award; Behavior; Behavioral Symptoms; Belief; Biological; Blood Pressure; Cardiovascular system; Caregiver well-being; Caregivers; Caring; Christianity; Chronic Disease; Church; Climacteric; Clinical; Clinical Trials; Cognitive; Collaborations; Communities; Data; Dementia; Dementia caregivers; Diagnosis; Discipline of Nursing; Disease; Distress; Doctor of Philosophy; Educational workshop; Effectiveness; Elderly; Emotional; Environment; Exposure to; Face; Family; Family Caregiver; Family Practice; Family member; Feasibility Studies; Fright; Galvanic Skin Response; Goals; Health; Home; Individual; Intervention; Interview; Knowledge; Leadership; Learning; Life; Literature; Measures; Medical; Memory; Mental Depression; Mentored Patient-Oriented Research Career Development Award; Mentors; Outcome; Patient Self-Report; Personal Satisfaction; Persons; Physiological; Plague; Problem behavior; Productivity; Program Development; Property; Quality of life; Readiness; Religion; Religion and Spirituality; Religious Belief; Reporting; Research; Research Methodology; Research Personnel; Research Project Grants; Research Training; Resources; Role; Sampling; Self Care; Social support; Stress; Structure; Testing; Time; Training; Transcend; Uncertainty; United States National Institutes of Health; Universities; Vertebral column; Well in self; Work; associated symptom; base; biobehavior; biological adaptation to stress; career; cognitive function; design; effectiveness outcome; experience; family caregiving; feasibility testing; feasibility trial; health care disparity; health disparity; heart rate variability; high risk; implementation research; improved; interest; meetings; member; metropolitan; minority communities; minority engagement; pleasure; positive emotional state; primary caregiver; professor; programs; prototype; psychologic; recruit; research and development; skills; success; therapy development

Project Summary/Abstract Fayron Epps, PhD, RN is an Assistant Professor of Nursing at Georgia State University. Her research focuses on promoting quality of life for older adults living with Alzheimer’s disease and related dementias (ADRD) and their family caregivers through improving self-care and promoting and developing meaningful engagement activities. She is particularly interested in working with and conducting research in faith communities to support African American (AA) families affected by ADRD. Her long-term career goal is to establish herself as a productive, independent gerontologist and leader with expertise in family caregiving and ADRD within the AA community. The candidate proposes a comprehensive training plan that incorporates didactic coursework, hands-on experiences, active participation in seminars and workshops, and dedicated meetings overseen by an interdisciplinary mentor team and advisory committee. Dr. Epps’ training plan immerses three goals: 1) to strengthen skills in biobehavioral research methods with a focus on measuring biological properties related to stress response; 2) to deepen understanding of the role of religiosity for families affected by ADRD; and 3) to continue to strengthen academic productivity and leadership skills. The proposed research includes three aims: 1) develop a prototype faith-based home activity toolkit (Faith-HAT) for AA families living with moderate and severe ADRD; 2) test the feasibility and explore preliminary effectiveness of employing Faith-HAT; and 3) construct a refined toolkit of meaningful faith-based home activities. Georgia State University offers an ideal research environment for the proposed research and training. Study recruitment, retention, and execution will be conducted in collaboration with Emory University Alzheimer’s Disease and Research Center Minority Engagement Core and an Atlanta-based Ministerial Alliance. The proposed research will advance ADRD support by providing AA families with a nonpharmacological intervention and meaningful activities to promote quality of life. This K23 award will give Dr. Epps essential practical experience in the conduct of program development and implementation research, as she will be mentored in developing and implementing a clinical feasibility trial to examine the effect of a home-based religious program on the well-being of AA families affected by ADRD. At the conclusion of this award, the candidate will have obtained the skills, knowledge, and preliminary data to successfully become a full-fledged independent investigator improving the health and well- being of persons with ADRD and their caregivers.

项目摘要/摘要 RN Fayron Epps博士是佐治亚州立大学护理助理教授。她的研究重点 关于促进患有阿尔茨海默氏病和相关痴呆症（ADRD）的老年人的生活质量 通过改善自我保健，促进和发展有意义的参与，他们的家庭护理人员 活动。她对与信仰社区的研究并进行研究特别感兴趣以支持 非裔美国人（AA）家庭受Adrd影响。她的长期职业目标是确定自己 生产性，独立的老年医生和领导者在AA中拥有家庭护理和ADRD专业知识 社区。候选人提议构成了完整的培训计划，该计划结合了教学课程， 实践经验，积极参加半手和讲习班以及由 跨学科导师团队和咨询委员会。 EPP博士的培训计划沉浸了三个目标：1） 增强生物行为研究方法的技能，重点是测量与 压力反应； 2）加深对宗教对受ADRD影响的家庭的作用的了解；和3）到 继续增强学术生产力和领导能力。拟议的研究包括三个 目的：1）为拥有现代的AA家庭开发基于信仰的原型家庭活动工具包（信仰帽） 和严重的ADRD； 2）测试使用信仰帽的可行性和探索初步有效性； 3） 构建一个基于信仰的家庭活动的精致工具包。佐治亚州立大学提供理想 拟议研究和培训的研究环境。研究招聘，保留和执行将 与埃默里大学阿尔茨海默氏病与研究中心合作进行 订婚核心和亚特兰大的部长联盟。拟议的研究将推进ADRD 通过为AA家庭提供非药理学干预和有意义的活动来提供支持 生活质量。该K23奖将为EPP博士提供计划的基本实践经验 发展和实施研究，正如她在开发和实施临床方面的考虑 可行性试验，以检查家庭宗教计划对AA家庭福祉的影响 受Adrd的影响。在此奖项结束时，候选人将获得技能，知识和 初步数据成功成为成熟的独立研究者，以改善健康和良好的健康 是ADRD及其护理人员的人。

项目成果

The Alter Program: A Nurse-Led, Dementia-Friendly Program for African American Faith Communities and Families Living With Dementia.

• DOI: 10.1097/naq.0000000000000506
• 发表时间: 2022-01-01
• 期刊: Nursing administration quarterly
• 作者: Epps F;Moore M;Chester M;Gore J;Sainz M;Adkins A;Clevenger C;Aycock D
• 通讯作者: Aycock D

A Framework for Mobilizing Health Care to Respond to the Community Within the COVID-19 Pandemic.

• DOI: 10.5888/pcd18.200572
• 发表时间: 2021-04-01
• 期刊: Preventing chronic disease
• 影响因子: 5.5
• 作者: Epps F;Wiley Z;Teunis LJ;Johnson TM 2nd;Patzer RE;Ofotokun I;Franks N
• 通讯作者: Franks N

Experiences of Black American Dementia Caregivers During the COVID-19 Pandemic.

COVID-19 大流行期间美国黑人痴呆症护理人员的经历。

• DOI: 10.1177/10748407221102465
• 发表时间: 2022
• 期刊: Journal of family nursing
• 影响因子: 3.1
• 作者: Oliver,Sloan;Alexander,Karah;Bennett,StephanieG;Hepburn,Kenneth;Henry,Jenyl;Clevenger,CarolynK;Epps,Fayron
• 通讯作者: Epps,Fayron

A Mixed-Methods Formative Evaluation of a Dementia-Friendly Congregation Program for Black Churches.

• DOI: 10.3390/ijerph19084498
• 发表时间: 2022-04-08
• 期刊: INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
• 作者: Gore, Janelle;Toliver, Jamilla;Moore, Miranda A.;Aycock, Dawn;Epps, Fayron
• 通讯作者: Epps, Fayron

The intersection of social determinants of health and family care of people living with Alzheimer's disease and related dementias: A public health opportunity.

阿尔茨海默病和相关痴呆症患者健康的社会决定因素与家庭护理的交叉点：公共卫生机会。

• DOI: 10.1002/alz.13437
• 发表时间: 2023
• 期刊: Alzheimer's & dementia : the journal of the Alzheimer's Association
• 作者: Gaugler,JosephE;Borson,Soo;Epps,Fayron;Shih,ReginaA;Parker,LaurenJ;McGuire,LisaC
• 通讯作者: McGuire,LisaC