PLAN: Dementia Literacy Education and Navigation for Korean Elders with Probable Dementia and their Caregivers

计划：针对韩国疑似痴呆症老年人及其护理人员的痴呆症素养教育和导航

基本信息

批准号：
9978677
负责人：
HAE-RA HAN
金额：
$ 76.52万
依托单位：
JOHNS HOPKINS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-08-01 至 2024-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9978677
关键词：
Activities of Daily Living Address Adoption Affect Age Aging Anxiety Asian Americans Asians Caregivers Caring Clinical Cognitive Communities Community Health Aides Complex Confusion Consensus Cost Savings Counseling Dementia Dementia caregivers Deterioration Development Diabetes Mellitus Diagnosis Diagnostic Early Diagnosis Education Elderly Evaluation Family Friends General Population Goals Health Health Personnel Healthcare Systems High Prevalence Hypertension Immigrant Impaired cognition Individual Insurance Interdisciplinary Study Intervention Interview Korean American Koreans Left Linguistics Medical Mental Depression Mental Health Minority Groups Not Hispanic or Latino Outcome Patients Population Prevalence Primary Health Care Process Process Assessment Quality of life Randomized Controlled Trials Research Resources Risk Self Efficacy Services Social support Stress Structure Subgroup Symptoms System Telephone Testing Training age group arm base bilingualism care providers care systems caregiving clinical practice cognitive function community based participatory research dementia care dementia caregiving dementia risk design epidemiology study ethnic minority population experience follow-up functional disability health care service utilization health disparity health literacy help-seeking behavior improved innovation intervention program literacy medical specialties minority communities multi-component intervention psychological outcomes racial and ethnic racial diversity racial minority research clinical testing screening sex social treatment as usual

项目摘要

Despite a higher prevalence of dementia, ethnic minority elders in the U.S. are underdiagnosed and at greater risk of not receiving appropriate care than their white counterparts. Early detection of dementia allows for a transition to early dementia care for community-dwelling elderly that may delay or slow deterioration of cognitive functions and functional disabilities and enable families to adequately plan for the potential challenges of dementia caregiving. Currently, little is known about how to effectively identify undiagnosed individuals with probable dementia in community-based settings that serve diverse racial and ethnic minorities and how to transition them into the health care system for necessary diagnostic follow-up and care for dementia. This proposed research addresses the critical gaps by focusing on dementia assessments and follow-up in one of the fastest-growing ethnic minority populations—Korean Americans (KAs). Our collaborative, interdisciplinary research team has more than 10 years of community-based, participatory research experience in the KA community and has laid the groundwork for the current application. In particular, we have conducted the first community-based epidemiological study which estimated the prevalence of dementia among KA elders. Moreover, we successfully trained bilingual community health workers (CHWs) and obtained evidence to support the feasibility and efficacy of using CHWs to assess dementia in community- residing Korean elders and promote linkage to medical service for dementia among KA elders with probable dementia while improving caregiver psychological outcomes. To this end, the goals of our study are to identify community-residing Korean elderly with probable dementia and to test the effects of dementia literacy training and navigation assistance by CHWs to transition affected Korean elders and their caregivers into the healthcare system for adequate diagnostic follow-up and care. CHWs have been used to eliminate health disparities in resource-poor communities with positive outcomes. The adoption of trained CHWs for cognitive health is a new strategic approach which could be highly applicable to many linguistic and/or socially-isolated racial/ethnic minority communities with limited resources.

尽管痴呆症患病率较高，但美国少数族裔老年人的诊断不足，而且患病率更高与他们的白人亲属相比，他们有得不到适当护理的风险。及早发现痴呆症可以预防老年痴呆症。向社区居住的老年人过渡到早期痴呆症护理，这可能会延迟或减缓病情的恶化认知功能和功能障碍，使家庭能够充分规划潜在的目前，人们对如何有效识别未确诊的痴呆症患者知之甚少。在为不同种族和族裔提供服务的社区环境中可能患有痴呆症的个人以及如何将他们纳入医疗保健系统，以进行必要的诊断随访和护理这项拟议的研究通过重点关注痴呆症评估和治疗来解决关键差距。对增长最快的少数民族人口之一——韩裔美国人（KA）进行了后续调查。协作、跨学科研究团队拥有超过 10 年的社区基础、参与性 KA社区的研究经验，为当前的应用奠定了基础。我们进行了第一项基于社区的流行病学研究，估计了此外，我们成功地培训了双语社区卫生工作者（CHW）和获得证据支持使用社区卫生工作者评估社区痴呆症的可行性和有效性居住在韩国的老年人，并促进可能患有痴呆症的韩国老年人与痴呆症医疗服务的联系痴呆症，同时改善护理人员的心理结果为此，我们研究的目标是确定。对可能患有痴呆症的韩国社区老年人进行调查，并测试痴呆症扫盲培训的效果社区卫生工作者提供导航援助，帮助受影响的韩国老年人及其照顾者过渡到为社区卫生工作者提供充分的诊断随访和护理的医疗保健系统已被用来消除健康问题。资源匮乏社区的差异，并取得积极成果。健康是一种新的战略方法，可以高度适用于许多语言和/或社会孤立的人资源有限的种族/族裔社区。