Improving African American glaucoma patient involvement in visits and outcomes

提高非裔美国青光眼患者就诊和治疗结果的参与度

• 批准号: 9920069
• 负责人: Betsy Lynn Sleath
• 金额: $ 38.84万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-08-01 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9920069
• 关键词: Improving; African; American; glaucoma; patient

ABSTRACT One of the goals of Healthy People 2020 is to reduce glaucoma-related visual impairment. Between 9% and 12% of blindness in the United States is attributed to glaucoma and glaucoma is the leading cause of irreversible blindness in African Americans. African Americans are 5 times more likely to get glaucoma than Caucasians and are 6 times more likely to go blind from it. Proper use of glaucoma medications can lower intraocular pressure and reduce the progression of glaucoma. Our prior work found that African Americans were significantly less likely to be educated about glaucoma by their ophthalmologists and they were significantly less likely to be adherent to their glaucoma medications than Caucasians. The National Eye Institute, the Office of Women's Health at the National Institutes of Health, and the Glaucoma Research Foundation all emphasize the importance of improving African American patients' understanding of both glaucoma and its treatment to minimize disparities in outcomes. Prior studies have demonstrated that educational interventions targeted to African Americans can have a positive effect on the utilization of eye care services and on the beliefs about the importance of annual eye exams. However, these studies did not target glaucoma. We propose to test a glaucoma question prompt list with educational video intervention based on Social Cognitive Theory that is designed to improve African American patient question asking and involvement during visits to reduce disparities and improve the outcomes of African Americans with glaucoma. African American patients (N=380) who are on at least one medication for glaucoma and who self- report being less than 80 percent adherent to their medications will be recruited from three ophthalmology practices. Patients will be randomized to either receive the intervention or usual care. During pre-visit wait time, African Americans in the intervention group will watch a brief educational video on the importance of being actively involved during visits and they will receive the one-page question prompt list which they will use to check which questions they want to ask the doctor. Patient visits will be audio-taped and patients will be interviewed at baseline, 6, and 12 months. Patients will use Medication Event Monitoring System (MEMS) caps to measure their adherence. We hypothesize that African American patients with glaucoma in the intervention group will have significantly improved communication with their ophthalmologists and this improved communication will improve (a) glaucoma medication self-efficacy, (b) adherence, and (c) intraocular pressure when compared to usual care.

抽象的 Healthy People 2020 的目标之一是减少青光眼相关的视力障碍。 美国 9% 至 12% 的失明归因于青光眼和青光眼 是非裔美国人不可逆转失明的主要原因。非裔美国人 5 患青光眼的可能性是白种人的 1 倍，失明的可能性是白种人的 6 倍 它。正确使用青光眼药物可以降低眼压，减少青光眼的发生。 青光眼的进展。我们之前的研究发现，非洲裔美国人的数量明显较少 可能接受过眼科医生关于青光眼的教育，而且他们的患病率明显较低 与白种人相比，他们更可能坚持青光眼药物治疗。国家眼科研究所， 美国国立卫生研究院妇女健康办公室和青光眼研究中心 基金会均强调提高非裔美国患者理解的重要性 青光眼及其治疗，以尽量减少结果的差异。先前的研究有 表明针对非裔美国人的教育干预可以产生积极的效果 对眼保健服务的利用以及对每年一次的重要性的信念的影响 眼科检查。然而，这些研究并不针对青光眼。我们建议测试青光眼 基于社会认知理论的教育视频干预问题提示列表 旨在改善非裔美国患者在就诊期间的提问和参与 减少差异并改善患有青光眼的非洲裔美国人的预后。非洲人 正在服用至少一种青光眼药物并且自我治疗的美国患者 (N=380) 报告中服药依从率低于 80% 的患者将从三名患者中招募 眼科实践。患者将被随机分配接受干预或常规治疗 关心。在访问前的等待时间内，干预组中的非裔美国人将观看简短的视频 关于在访问期间积极参与的重要性的教育视频，他们将收到 他们将使用一页问题提示列表来检查他们想问哪些问题 医生。将对患者就诊进行录音，并在基线、6 点和 6 点对患者进行访谈。 12个月。患者将使用药物事件监测系统 (MEMS) 帽来测量 他们的坚持。我们假设非洲裔美国青光眼患者 干预组将显着改善与眼科医生的沟通 这种改善的沟通将提高 (a) 青光眼药物治疗的自我效能，(b) 与常规护理相比，依从性，以及（c）眼压。

项目成果

Improving Black Patient Question-Asking and Provider Education During Glaucoma Visits.

改善青光眼就诊期间黑人患者的提问和提供者教育。

• DOI: 10.1016/j.ogla.2022.09.003
• 发表时间: 2023
• 期刊: Ophthalmology. Glaucoma
• 作者: Sleath,Betsy;Carpenter,DeleshaM;Davis,ScottA;Budenz,DonaldL;Muir,KellyW;Romero,MariaS;Lee,Charles;Tudor,Gail;Garcia,Nacire;Adjei,AbenaA;Robin,AlanL
• 通讯作者: Robin,AlanL

Acceptance of a Pre-visit Intervention to Engage African American Glaucoma Patients during Visits.

接受访视前干预以在访视期间吸引非裔美国青光眼患者。

• DOI: 10.1097/opx.0000000000001959
• 发表时间: 2022
• 期刊: Optometry and vision science : official publication of the American Academy of Optometry
• 作者: Sleath,Betsy;Carpenter,DeleshaM;Davis,ScottA;Budenz,DonaldL;Muir,KellyW;Romero,MariaS;Lee,Charles;Tudor,Gail;Garcia,Nacire;Adjei,AbenaA;Robin,AlanL
• 通讯作者: Robin,AlanL

Do African American patients with glaucoma ask their eye providers the questions they have?

• DOI: 10.1038/s41433-023-02674-x
• 发表时间: 2023-07-31
• 期刊: EYE
• 影响因子: 3.9
• 作者: Beznos，Bethany;Sayner，Robyn;Sleath，Betsy
• 通讯作者: Sleath，Betsy