Rheumatology Informatics System for Effectiveness Patient-Reported Outcome (RISE-PRO) Dissemination Project

风湿病学信息学系统患者报告结果有效性 (RISE-PRO) 传播项目

基本信息

批准号：
9912121
负责人：
Jinoos Yazdany
金额：
$ 49.39万
依托单位：
UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-07-01 至 2022-04-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9912121
关键词：
Rheumatology Informatics System Effectiveness Patient

项目摘要

PROJECT SUMMARY Patient-reported outcomes (PROs) are important in rheumatoid arthritis (RA), a condition that affects 1.3 million Americans and is a leading cause of disability. Among chronic conditions, RA has many decades of robust scientific evidence around the validity of PROs. PROs are key outcome measures in RA clinical trials and studies, are responsive to therapy changes, are strong predictors of future disability and mortality, and play a central role in facilitating shared decision-making and treatment. Advances in health information technology (IT), like electronic health record-enabled Qualified Clinical Data Registries (QCDRs), provide an opportunity to scale and spread of use of PRO measures nationally. The Rheumatology Informatics System for Effectiveness (RISE) registry is a QCDR that was established in 2014 to improve the quality of care for patients seen in rheumatology practices. The RISE informatics platform aggregates electronic health record data from participating practices, analyzes these data centrally and feeds performance on quality measures back to clinicians using a web-based dashboard. RISE currently includes one the largest PRO measurement efforts for ambulatory patients with a chronic disease in the United States. However, as the registry matures, several critical gaps remain in our national PRO measurement efforts, including the lack of representation of public hospital systems and at-risk populations, the challenges faced by some practices in creating structured data fields in electronic health records to capture PRO measure scores, and the need to evaluate the impact of the PRO collection efforts through RISE. The overarching goal of this proposal is to systematically address each of these issues by 1) creating an evidence-based clinical learning network to support the participation of public hospital systems in PRO measurement and improvement efforts through RISE, 2) developing and scaling a natural language processing system to extract PRO measures from unstructured data in clinical notes, and 3) analyzing the impact of PRO measurement through RISE on quality of care and health outcomes in RA. This proposal builds on the novel informatics platform of the RISE registry to scale, spread and evaluate PRO implementation across a nationwide network of rheumatology practices, with the ultimate goal of improving functional status outcomes for those with RA.

项目摘要患者报告的结局（PRO）在类风湿关节炎（RA）中很重要，这种疾病影响1.3 百万美国人，是残疾的主要原因。在慢性病中，RA有数十年围绕专业人士的有效性的有力的科学证据。优点是RA临床试验的关键结果指标研究，对治疗变化有反应，是对未来残疾和死亡率的有力预测指标，以及在促进共同的决策和治疗方面发挥核心作用。健康信息的进步技术（IT），例如电子健康记录的合格临床数据注册表（QCDR），在全国范围内扩展和传播专业措施的机会。风湿性信息系统有效性（RISE）注册表是一个QCDR，于2014年成立，旨在提高患者的护理质量在风湿病实践中可见。 RISE INFOLATICS平台汇总了电子健康记录数据参与实践，将这些数据集中分析，并以质量指标的表现回到临床医生使用基于网络的仪表板。目前的崛起包括最大的专业测量工作在美国患有慢性疾病的卧床患者。但是，随着注册表的成熟，有几个我们的国家职业衡量工作中仍然存在关键差距，包括缺乏公众代表医院系统和处于危险的人口，一些实践在创建结构化数据方面面临的挑战电子健康记录中的领域以捕获Pro量度分数，并需要评估通过崛起收集工作。该提案的总体目标是系统地解决每个这些问题1）建立一个基于证据的临床学习网络来支持公众的参与医院系统进行的测量和改进工作，通过崛起，2）开发和扩展自然语言处理系统从临床注释中的非结构化数据中提取PRO措施，3）通过提高RA的护理和健康成果来分析PRO测量的影响。这提案建立在崛起注册表的新颖信息学平台上，以扩展，传播和评估专业在全国性风湿病实践网络上实施，其最终目标是改善患有RA的人的功能状态结果。

项目成果

期刊论文数量（7）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

The Development of the Rheumatology Informatics System for Effectiveness Learning Collaborative for Improving Patient-Reported Outcome Collection and Patient-Centered Communication in Adult Rheumatology.

DOI：
10.1002/acr2.11310
发表时间：
2021-10
期刊：
ACR open rheumatology
影响因子：
3.4
作者：
Subash M;Liu LH;DeQuattro K;Choden S;Jacobsohn L;Katz P;Bajaj P;Barton JL;Bartels C;Bermas B;Danila MI;Downey C;Ferguson S;Reiter K;Wahl E;Weinstein E;Zell J;Schmajuk G;Yazdany J
通讯作者：
Yazdany J

The Relationship Between Electronic Health Record System and Performance on Quality Measures in the American College of Rheumatology's Rheumatology Informatics System for Effectiveness (RISE) Registry: Observational Study.