Mobile Self-Management of Irritable Bowel Syndrome for Adolescents

青少年肠易激综合症的移动自我管理

• 批准号: 8900428
• 负责人: Elizabeth Anna Donovan
• 金额: $ 22.5万
• 依托单位: BODIMOJO, INC
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-04-10 至 2016-09-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8900428
• 关键词: 3-Dimensional; Abdominal Pain; Absenteeism; Adherence; Adolescent; Adopted; Adult; Age; Anxiety; Applications Grants; Behavior; Behavioral; Candy; Car Phone; Caregivers; Cellular Phone; Childhood; Chronic; Cognitive; Cognitive Therapy; Common Cold; Complement; Complex; Computational algorithm; Development; Devices; Diarrhea; Direct Costs; Disease; Emotional; Empathy; Facilities and Administrative Costs; Family; Fright; Functional disorder; Funding; Future; Goals; Habits; Health; Health Care Costs; Health Care Reform; Health Promotion; Health behavior; Health behavior change; Health system; Healthcare Systems; Home environment; Intervention; Interview; Intestines; Irritable Bowel Syndrome; Lead; Learning; Life; Loneliness; Medical; Mental Depression; Mind-Body Intervention; Modeling; Monitor; Nausea and Vomiting; North America; Outcome; Pain; Parents; Patients; Performance; Phase; Physicians; Population; Positioning Attribute; Prevalence; Provider; Public Health; Quality of Care; Quality of life; Randomized Controlled Trials; Regimen; Research; Resources; Schools; Self Care; Self Management; Shame; Small Business Innovation Research Grant; Social Functioning; Social isolation; Solutions; Symptoms; Technology; Teenagers; Testing; Time; Training; adolescent patient; base; cost; cost effective; design; evidence base; experience; health organization; improved; innovation; interdisciplinary treatment approach; mHealth; meetings; mindfulness; mobile application; programs; prototype; psychosocial; public health relevance; skills; social; social attachment; tool; virtual; web site; willingness

 DESCRIPTION (provided by applicant): The BodiMojo Buddy mobile app for adolescents with Irritable Bowel Syndrome (IBS) represents a significant new self-management tool that will educate adolescents, build self-care skills and complement patient-physician interactions. IBS is a common digestive condition among adolescents that has profound effects on adolescent quality of life. IBS and related functional bowel disorders have been ranked as a common cause of illness-related absenteeism, second only to the common cold (Cain et al., 2006). IBS is a complex, chronic, functional disorder that has no cure and is characterized by abdominal pain/discomfort and altered bowel habits; other symptoms may include nausea, vomiting, and bloating. Despite the fact that IBS is quite common-prevalence estimates in North America for adults and adolescents are between 10- 15 percent-there is remarkably little available to adolescents to help them self-manage the symptoms of IBS. The goal of this application is to develop a mobile self-management support intervention for adolescents living with IBS that can serve to increase patient engagement through interactive skill-building, self-care, and mindfulness- based cognitive behavioral activities. Evidence-based self-management support will be delivered to adolescents with IBS through a virtual coach or "embodied conversational agent" (ECA). Virtual coaches offer a number of advantages when incorporated into technology-based health interventions, such as: (1) creating empathy and social bonds that can serve to increase adherence to health regimens that are encouraged by the virtual coach; (2) they may be effective for maintaining a number of health behavior changes over a period of time; and (3) they may be well-suited to groups who experience shame about their medical condition, social isolation, and harbor worries about fitting in. This approach, therefore, may be especially helpful for adolescents with IBS. The specific goals of the proposed program are to enhance self-management of IBS through a virtual coach, the BodiMojo Buddy, and help caregivers reinforce their adolescent's self-care with support and health promotion materials. The feasibility of this intervention will be developed and evaluated through these specific aims: (1) conduct in-depth interviews to gather input from adolescents with IBS, caregivers, and providers to inform design and content of the mobile-based intervention; (2) create an educational content plan and emotional modeling technical specifications for the virtual coach; (3) develop the mobile app prototype and parent video tutorials; (4) conduct a pilot test of the BodiMojo Buddy prototype with adolescents who have IBS; (5) conduct acceptance testing with caregivers and providers.

 描述（由适用提供）：针对肠易激综合症（IBS）的青少年的Bodimojo Buddy移动应用程序代表了一种重要的新自我管理工具，它将教育青少年，建立自我保健技能和补充患者 - 物理学互动。 IBS是对青少年生活质量产生深远影响的青少年中常见的消化状况。 IBS和相关功能性肠道疾病已被评为与疾病相关的缺勤的常见原因，仅次于普通感冒（Cain等，2006）。 IBS是一种复杂，慢性，功能障碍，无法治愈，其特征是腹部疼痛/不适和肠习惯改变。其他症状可能包括恶心，呕吐和腹胀。尽管IBS在北美对成人和青少年的共同质量估计值是10-15％之间的共同估计，但对于青少年来说，很少有可帮助他们自我管理IBS的症状。该应用程序的目的是为与IBS的青少年开发移动自我管理支持干预措施，这些干预可以通过交互式技能建设，自我保健和基于正念的认知行为活动来增加患者的参与度。基于证据的自我管理支持将通过虚拟教练或“体现的对话代理人”（ECA）与IBS一起提供给青少年。虚拟教练在纳入基于技术的健康干预措施中时会提供许多优势，例如：（1）建立同理心和社会纽带，可以增加对虚拟教练鼓励的健康方案的遵守； （2）它们可能有效地在一段时间内维持许多健康行为变化； （3）他们可能非常适合那些对自己的医疗状况，社会隔离和港口手腕感到震惊的团体。因此，这种方法可能特别有用 适用于IBS的青少年。拟议计划的具体目标是通过虚拟教练Bodimojo伙伴来增强IBS的自我管理，并帮助看护人通过支持和健康促进材料来增强其青少年的自我保健。该干预措施的可行性将通过这些具体目的进行开发和评估：（1）进行深入的访谈，以收集与IBS，护理人员和提供者的青少年的意见，以告知基于移动的干预措施的设计和内容； （2）为虚拟教练创建教育内容计划和情感建模技术规范； （3）开发移动应用程序原型和家长视频教程； （4）对拥有IBS的青少年进行Bodimojo Buddy原型的试验测试； （5）与护理人员和提供者进行接受测试。

项目成果

Pediatric Irritable Bowel Syndrome: Perspectives on Pain and Adolescent Social Functioning.

小儿肠易激综合症：疼痛和青少年社会功能的观点。

• DOI: 10.1093/pm/pny056
• 发表时间: 2019
• 期刊: Pain medicine (Malden, Mass.)
• 作者: Donovan,Elizabeth;Martin,SarahR;Lung,Kirsten;Evans,Subhadra;Seidman,LauraC;Cousineau,TaraM;Cook,Elizabeth;Zeltzer,LonnieK
• 通讯作者: Zeltzer,LonnieK