Sudden Death in the Young (SDY) Initiative

青少年猝死 (SDY) 倡议

• 批准号: 8732370
• 金额: $ 40.3万
• 依托单位: NATIONAL HEART, LUNG, AND BLOOD INSTITUTE
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/8732370
• 关键词: Age-Years; Award; Centers for Disease Control and Prevention (U.S.); Cessation of life; Child; Clinical; DNA; Data; Data Set; Death Certificates; Development; Evaluation; Funding; Future; Grant; Incidence; Individual; Investigation; Medical Records; National Heart, Lung, and Blood Institute; Pathology Report; Phase; Public Health; Registries; Research Infrastructure; Research Personnel; Resources; Sampling; Serum; Services; Specimen; Sudden Death; Sudden infant death syndrome; System; United States; authority; data registry; population based; programs; prospective

The Sudden Death in the Young (SDY) Initiative is a two-phase program to explore and provide greater understanding of SDY. During the first phase of the program, NHLBI is obtaining services from CDC for the development of a surveillance system and registry that will broaden and enhance the activities of the National Center for Child Death Review (http://childdeathreview.org/) and the Sudden Unexpected Infant Death (SUID) Registry (http://www.cdc.gov/SIDS/). This will result in the first prospective, population-based data set compiled for the comprehensive evaluation of SDY in the United States. The SDY Registry will include data from death certificates, medical records, death scene investigations, and pathology reports. In addition, a serum sample for DNA extraction will be collected from a subset of cases. It will provide the opportunity to estimate incidence more precisely than any previous study and to establish an infrastructure for future expanded use. After establishment of the registry, the CDC will enter into an Intra-Departmental Delegation Authority (IDDA) with NHLBI to assist NHLBI with the award and administration of NHLBI grants to state public health agencies to collect data for the registry.

年轻人（SDY）倡议的突然死亡是一个两阶段的计划，旨在探索和提供对SDY的更多了解。 During the first phase of the program, NHLBI is obtaining services from CDC for the development of a surveillance system and registry that will broaden and enhance the activities of the National Center for Child Death Review (http://childdeathreview.org/) and the Sudden Unexpected Infant Death (SUID) Registry (http://www.cdc.gov/SIDS/).这将导致第一个基于人群的基于人口的数据集，用于对美国SDY进行全面评估。 SDY注册表将包括死亡证明，病历，死亡现场调查和病理报告的数据。另外，将从一部分病例中收集用于DNA提取的血清样品。它将提供比以前的任何研究更精确地估计发病率的机会，并为未来的扩展使用建立基础设施。建立注册表后，疾病预防控制中心将与NHLBI一起签订一个部门内代表团局（IDDA），以协助NHLBI授予NHLBI授予和管理NHLBI授予州公共卫生机构以收集注册表的数据。