North American Fetal Therapy Network Biannual Scientific Meetings
北美胎儿治疗网络每两年一次的科学会议
基本信息
- 批准号:8043647
- 负责人:
- 金额:$ 0.6万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2009
- 资助国家:美国
- 起止时间:2009-04-06 至 2012-02-29
- 项目状态:已结题
- 来源:
- 关键词:Academic Medical CentersAddressAmericanAreaBiometryCanadaChildChild health careClinicalClinical ResearchCollaborationsDevelopmentDisabled PersonsEducational workshopEthical IssuesEuropeanFetal DiseasesFetal TherapiesFinancial SupportFundingFutureHuman DevelopmentIndividualIndustryInstitutesMedical EthicsMentorsMinority GroupsMissionNational Heart, Lung, and Blood InstituteNatural HistoryNatureNeeds AssessmentNorth CarolinaOutcomeParticipantPediatric HospitalsPeer ReviewPhiladelphiaProcessProtocols documentationRare DiseasesResearchResearch PersonnelResearch Project GrantsResearch ProposalsSan FranciscoTherapeuticTherapeutic StudiesUnited StatesUnited States National Institutes of HealthUniversitiesWomanauthoritycostfetalfetal diagnosisimprovedinnovationmedical specialtiesmeetingsmemberorganizational structureprenatal interventionprenatal therapypublic health relevance
项目摘要
DESCRIPTION (provided by applicant): Support is requested to underwrite the cost of the North American Fetal Therapy Network (NAFTNet) biannual meetings for the next five years. The network was created to address issues pertaining to fetal therapy that arose from the NIH workshop held on August 16-17, 2004, "Fetal Treatment: Needs Assessment and Future Directions", which was supported by the National Institutes of Child Health and Human Development (NICHD), the Office of Rare Diseases and the National Heart, Lung, and Blood Institute. It was recommended that a cooperative group of investigators and clinicians be formed to help set a national agenda for research, clinical progress and ethical issues in the field. Further, it was recognized that the development of such a group would be a challenge due to the innovative and entrepreneurial nature of fetal therapy. Participants at the workshop from the Children's Hospital of Philadelphia, University of North Carolina, Vanderbilt University Medical Center and University of San Francisco moved forward during the following year to develop the organizational structure of NAFTNet with the primary mission to create a collaborative clinical research network to study the natural history of fetal disease and develop therapeutic prenatal interventions to improve outcomes. In October of 2005 representatives of 18 major North American fetal therapy units were invited to a meeting in Dallas, TX where the concept, organizational plan and mission of NAFTNet were presented to the group. Twenty centers have now joined agreeing to (1) a peer-review and mentoring process of submission of research protocols (2) participation and support of NAFTNet approved protocols and (3) institutional financial support. The peer-review process is coordinated in the scientific meetings with a free exchange and dissemination of ideas amongst individuals from the participating centers who are authorities in the areas of fetal diagnosis and treatment and ad hoc members representing the specialties of medical ethics and biostatistics. NAFTNet is a 501c3 organization that seeks to achieve appropriate representation of women and racial/ethnic minorities and persons with disabilities. In the past three years 14 research proposals have been submitted, 10 have gained NAFTNet support and are underway, 2 are financially supported by industry and federal funds, 1 is presently under consideration as a collaboration research effort with the EUROFETUS group, a fetal therapy research project funded by the European Commission.
PUBLIC HEALTH RELEVANCE: Support is being requested for the biannual North American Fetal Therapy Network (NAFTNet) meetings for the next five years. NAFTNet is a "not for profit" collaborative research organization whose members are recognized authorities in the field of fetal therapy from major clinical research units in the United States and Canada. NAFTNet's primary mission is to provide a cooperative clinical research network to study the natural history of fetal disease and to develop therapeutic prenatal interventions to improve outcomes.
描述(由申请人提供):请求支持承担未来五年北美胎儿治疗网络 (NAFTNet) 每两年一次的会议的费用。该网络的创建是为了解决 2004 年 8 月 16 日至 17 日举行的 NIH 研讨会“胎儿治疗:需求评估和未来方向”中出现的与胎儿治疗有关的问题,该研讨会得到了美国国立儿童健康和人类发展研究所的支持(NICHD)、罕见疾病办公室和国家心肺血液研究所。建议成立一个由研究人员和临床医生组成的合作小组,帮助制定该领域研究、临床进展和伦理问题的国家议程。此外,人们认识到,由于胎儿治疗的创新和创业性质,这样一个小组的发展将是一个挑战。来自费城儿童医院、北卡罗来纳大学、范德比尔特大学医学中心和旧金山大学的研讨会参与者在接下来的一年里继续发展 NAFTNet 的组织结构,其主要任务是创建一个协作临床研究网络,研究胎儿疾病的自然史并制定治疗性产前干预措施以改善结局。 2005 年 10 月,北美 18 个主要胎儿治疗单位的代表受邀参加在德克萨斯州达拉斯举行的会议,会上向大家介绍了 NAFTNet 的概念、组织计划和使命。目前已有 20 个中心加入,同意 (1) 提交研究方案的同行评审和指导流程 (2) 参与和支持 NAFTNet 批准的方案以及 (3) 机构财政支持。同行评审过程在科学会议上进行协调,参与中心的胎儿诊断和治疗领域的权威人士以及代表医学伦理学和生物统计学专业的临时成员之间自由交流和传播想法。 NAFTNet 是一个 501c3 组织,旨在实现妇女、种族/族裔少数群体和残疾人的适当代表性。在过去三年中,已提交 14 项研究提案,其中 10 项已获得 NAFTNet 支持并正在进行中,2 项得到行业和联邦基金的财政支持,1 项目前正在考虑与 EUROFETUS 小组(胎儿治疗研究)进行合作研究项目由欧盟委员会资助。
公共健康相关性:正在请求为未来五年每两年一次的北美胎儿治疗网络 (NAFTNet) 会议提供支持。 NAFTNet是一个“非营利”合作研究组织,其成员都是来自美国和加拿大主要临床研究单位的胎儿治疗领域公认的权威。 NAFTNet 的主要使命是提供一个合作临床研究网络来研究胎儿疾病的自然史并开发治疗性产前干预措施以改善结果。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Anthony Johnson其他文献
Anthony Johnson的其他文献
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