National Study of Disability Trends and Dynamics

全国残疾趋势和动态研究

• 批准号: 8735258
• 负责人: JUDITH KASPER
• 金额: $ 13.5万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-09-30 至 2014-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8735258
• 关键词: 4 year old; Age; Americas; Assisted Living Facilities; Baby Booms; Behavioral; Biological Markers; Birth; Blindness; Caring; Censuses; Chronic; Complex; Country; Data; Data Collection; Data Files; Data Linkages; Databases; Development; Devices; Diffusion; Disease; Economics; Educational Status; Elderly; Environment; Equilibrium; Ethnic group; Expenditure; Family; Fostering; Future; Growth; Health; Hetastarch; High birth weight infant; Impairment; Independent Living; Individual; Institute of Medicine (U.S.); Intervention; Investigation; Language Disorders; Lead; Life; Link; Long-Term Care; Longevity; Mainstreaming; Measurement; Measures; Medical; Medicare; Methodological Studies; Minority Groups; Modeling; Monitor; Movement; New York; Nursing Homes; Older Population; Outcome; Pathway interactions; Patient Self-Report; Performance; Personal Satisfaction; Persons; Policies; Population; Poverty; Prevalence; Procedures; Process; Protocols documentation; Quality of life; Randomized; Recovery; Relative (related person); Replacement Arthroplasty; Research; Research Personnel; Respondent; Risk Factors; Role; Sampling; Science; Self Care; Services; Societies; Socioeconomic Factors; Subgroup; Survey Methodology; Surveys; System; Technology; Testing; Time; Walking; Woman; age related; base; cardiovascular disorder risk; care systems; cohort; contextual factors; design; disability; end of life; experience; high risk; improved; mortality; multidisciplinary; operation; programs; racial and ethnic; repaired; social; socioeconomics; statistics; trend; user-friendly

DESCRIPTION (provided by applicant): This application proposes to design, test, field, and disseminate a new National Study of Disability Trends and Dynamics (NSDTD) to: (I) promote scientific inquiry into late-life disability trends and dynamics, their antecedents and correlates, and disparities therein, and (II) advance study of the social and economic consequences of late-life disability for individuals, families, and society. To achieve these aims, a multidisciplinary consortium with experience in disability measurement, survey design and operations, and dissemination will: (1) Design and test, using state-of-the-art survey methodology: (a) a comprehensive, validated disability measurement protocol that includes self-report and performance-based measures of functioning; allows disaggregation of activity limitations into impairments, the environment, and compensatory strategies; and includes measures of social participation; (b) questions to assess the interplay of disablement with treatment of health conditions and self-care strategies; (c) questions on key economic and social consequences of disability including living and care arrangements, medical and long-term care expenditures, and other aspects of economic well-being and quality of life; (d) measures, largely harmonized with existing surveys, to allow investigation of racial/ethnic and socioeconomic disparities and the intervening role of other key risk factors in trends and trajectories; and (e) modules that will be randomly assigned to subgroups of respondents that will allow cross-walks to disability measures in the NLTCS and other major surveys. (2) Collect data in person from a sample of 12,000 Medicare enrollees ages 65 and older, resurvey them at annual intervals, and refresh the sample at 5-year intervals. (3) Conduct methodological studies to validate the enhanced disability protocol, lay the groundwork for a biomarker supplement, and improve the quality and efficiency of data collection. (4) Implement a process whereby external investigators propose new data collection modules. (5) Provide linkages to mortality data and external databases that enable analyses of disability and long-term care related public program expenditures, movement through the medical and long-term care system, the supply and quality of medical and long-term care, and the role of public long-term care policies. (6) Clean, document, and disseminate public use and restricted data files. A high priority will be placed on timely distribution of high-quality, user-friendly, and well-documented data files and on building a broad user base.

描述（由申请人提供）：本申请建议设计、测试、实地考察和传播一项新的国家残疾趋势和动态研究 (NSDTD)，以： (I) 促进对晚年残疾趋势和动态及其前因的科学探究和相关性以及其中的差异，以及（II）深入研究晚年残疾对个人、家庭和社会的社会和经济后果。为了实现这些目标，在残疾测量、调查设计和操作以及传播方面拥有丰富经验的多学科联盟将： (1) 使用最先进的调查方法进行设计和测试： (a) 全面、经过验证的残疾测量包括自我报告和基于绩效的功能衡量标准的协议；允许将活动限制分解为损伤、环境和补偿策略；并包括社会参与措施； (b) 评估残疾与健康状况治疗和自我护理策略之间相互作用的问题； (c) 关于残疾的主要经济和社会后果的问题，包括生活和护理安排、医疗和长期护理支出以及经济福祉和生活质量的其他方面； (d) 与现有调查基本一致的措施，以便调查种族/族裔和社会经济差异以及其他关键风险因素在趋势和轨迹中的干预作用； (e) 将随机分配给受访者亚组的模块，这些模块将允许在 NLTCS 和其他主要调查中跨过残疾措施。 (2) 亲自从 12,000 名 65 岁及以上的医疗保险参保者样本中收集数据，每年对其进行重新调查，并每 5 年刷新样本。 （3）开展方法学研究，验证增强型残疾方案，为生物标志物补充奠定基础，提高数据收集的质量和效率。 (4) 实施外部调查人员提出新数据收集模块的流程。 (5) 提供与死亡率数据和外部数据库的链接，以便分析残疾和长期护理相关的公共计划支出、医疗和长期护理系统的流动、医疗和长期护理的供应和质量，以及公共长期护理政策的作用。 (6) 清理、记录和传播公共使用和受限数据文件。将高度重视及时分发高质量、用户友好且记录齐全的数据文件以及建立广泛的用户基础。