Telehealth nursing intervention for children with complex health care needs

针对具有复杂医疗保健需求的儿童的远程医疗护理干预

基本信息

批准号：
8320307
负责人：
STANLEY M FINKELSTEIN
金额：
$ 45.41万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
2009
资助国家：
美国
起止时间：
2009-09-30 至 2014-10-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8320307
关键词：
Abbreviations Accident and Emergency department Address Advanced Practice Nurse Ambulatory Care Area Calendar Care given by nurses Caregivers Caring Case Management Case Manager Child Child Care Childhood Chronic Chronic Disease Clinic Clinical Communication Communication Methods Complex Control Groups Data Discipline of Nursing Effectiveness Electronic Health Record Equipment and Supplies Evaluation Event Exposure to Family Family Study Goals Hand Health Health Planning Health Professional Health Services Health Status Healthcare Home environment Hospitalization Hospitalized Child Imagery Interdisciplinary Study Intervention Knowledge Medical Methods Minnesota Monitor Nurse Practitioners Outcome Parents Pediatric Hospitals Pediatric Nursing Pediatrics Perception Population Provider Quality of life Questionnaires Randomized Randomized Controlled Trials Registered nurse Reliance Reporting Research Role Sensitivity Training Groups Services Stress Surveys System Technology Telemedicine Telephone Testing Time Training Triage Visit Visual abstracting arm base experience follow-up group intervention health care quality health care service planning health care service utilization health related quality of life improved nursing intervention programs satisfaction standard of care telehealth treatment as usual

项目摘要

Project summary/abstract The overall objective of this study is to evaluate the effectiveness of a telehealth care coordination and case management nursing intervention for children with complex special health care needs. Children with complex special health care needs are those children who have multiple, complex, chronic health conditions who require health and related services of a type or amount beyond that required by children generally. When these children are hospitalized, they receive services as part of an integrated system that provides centralized record keeping and care orders, clearly identified roles and methods of communication for health professionals involved in their care, an established method to obtain equipment and supplies, and regular monitoring of the child's condition. However, when the same child is cared for at home, services are often fragmented, and rarely accessed and delivered in a coordinated system. The task of coordinating services and sharing information between providers almost always becomes the responsibility of the parent or guardian. Families report that their greatest challenges are the stress of coordinating multiple providers, and the disconnect and lack of communication between services and providers. This study will address these issues, using an advanced practice nurse program of telehealth care coordination and case management in support of these families. Either the telephone or telephone plus interactive video are used by an advanced practice nurse to provide care coordination and case management. Goals of the program are to (1) reduce the number of crisis or unplanned uses of health care services and increase the number of non-crisis or planned health care service usage, (2) improve the quality of life for these children and their families, and (3) reduce the deficit between help needed and help received for the families in caring for these children. The study objective will be accomplished using a three armed randomized controlled trial. Children will be randomized into a control group receiving usual care that includes LPN-delivered care coordination and RN-delivered telephone triage, an intervention group receiving APN-delivered telephone care coordination and case management, and another intervention group receiving APN-delivered telephone + video care coordination and case management services. It is hypothesized that as the level of telehealth use in coordination and management increases the utilization of unplanned, or crisis, health care service utilization will decrease, that families will receive more of their needed care, and quality of life for the children and their families will improve.

项目摘要/摘要这项研究的总体目的是评估远程医疗护理协调和案例的有效性针对具有复杂特殊医疗保健需求的儿童的管理护理干预。有复杂的孩子特殊的医疗保健需求是那些患有多个复杂，慢性健康状况的孩子需要一般儿童所要求的类型或金额的健康和相关服务。什么时候这些孩子已经住院，他们接受服务作为综合系统的一部分，该系统提供集中式的记录保存和护理订单，清楚地确定了卫生专业人员的角色和沟通方式参与他们的护理，一种获得设备和供应的既定方法，并定期监视孩子的状况。但是，当在家中照顾同一孩子时，服务通常会分散，并且很少在协调系统中访问和交付。协调服务和共享的任务提供者之间的信息几乎总是成为父母或监护人的责任。家庭报道他们最大的挑战是协调多个提供商的压力，以及脱节和服务与提供商之间缺乏沟通。这项研究将使用高级实践护士计划的远程医疗护理协调和案例管理支持这些计划家庭。高级练习护士使用电话或电话以及交互式视频提供护理协调和案件管理。该计划的目标是（1）减少危机数量或计划外的医疗保健服务使用，并增加非危机或计划的医疗保健数量服务使用情况，（2）改善这些儿童及其家人的生活质量，（3）减少赤字在需要的帮助和帮助这些孩子的家庭之间得到帮助。研究目标将是使用三个武装随机对照试验完成。儿童将被随机分为对照组接受通常的护理，包括LPN递送的护理协调和RN递送电话分类干预小组接收APN的电话护理协调和案件管理，另一个干预小组接收APN的电话 +视频护理协调和案例管理服务。假设，随着远程医疗的协调和管理水平，利用计划外或危机，医疗服务利用率将减少，家庭将获得更多他们所需的护理和儿童及其家人的生活质量将有所改善。

项目成果

期刊论文数量（10）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Meeting the needs of children with medical complexity using a telehealth advanced practice registered nurse care coordination model.

DOI：
10.1007/s10995-014-1654-1
发表时间：
2015-07
期刊：
MATERNAL AND CHILD HEALTH JOURNAL
影响因子：
2.3
作者：
Cady, Rhonda G.;Erickson, Mary;Lunos, Scott;Finkelstein, Stanley M.;Looman, Wendy;Celebreeze, Margaret;Garwick, Ann
通讯作者：
Garwick, Ann

The Impact of Telehealth and Care Coordination on the Number and Type of Clinical Visits for Children With Medical Complexity.

DOI：
10.1016/j.pedhc.2016.11.006
发表时间：
2017-07
期刊：
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
影响因子：
0
作者：
McKissick HD;Cady RG;Looman WS;Finkelstein SM
通讯作者：
Finkelstein SM

DOI：
10.1016/j.pedhc.2017.07.007
发表时间：
2018-01
期刊：
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
影响因子：
0
作者：
Looman WS;Hullsiek RL;Pryor L;Mathiason MA;Finkelstein SM
通讯作者：
Finkelstein SM

Effects of a Telehealth Care Coordination Intervention on Perceptions of Health Care by Caregivers of Children With Medical Complexity: A Randomized Controlled Trial.

DOI：
10.1016/j.pedhc.2015.01.007
发表时间：
2015-07
期刊：
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
影响因子：
0
作者：
Looman WS;Antolick M;Cady RG;Lunos SA;Garwick AE;Finkelstein SM
通讯作者：
Finkelstein SM

Care coordination for children with complex special health care needs: the value of the advanced practice nurse's enhanced scope of knowledge and practice.

DOI：
10.1016/j.pedhc.2012.03.002
发表时间：
2013-07
期刊：
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
影响因子：
0
作者：
Looman WS;Presler E;Erickson MM;Garwick AW;Cady RG;Kelly AM;Finkelstein SM
通讯作者：
Finkelstein SM