Feasibility of Alcohol and Tobacco Use Surveillance via Personal Health Records

通过个人健康记录进行烟酒使用监测的可行性

基本信息

批准号：
7504051
负责人：
ELISSA R WEITZMAN
金额：
$ 20.07万
依托单位：
BOSTON CHILDREN'S HOSPITAL
依托单位国家：
美国
项目类别：
财政年份：
2007
资助国家：
美国
起止时间：
2007-09-30 至 2010-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7504051
关键词：
Accounting Address Adoption Affect Alcohol consumption Alcohols Area Attention Attitude Behavior Behavioral Belief Benefits and Risks Caring Case Study Centers for Disease Control and Prevention (U.S.)Cessation of life Characteristics Clinic Clinical Clinical Data Communities Confidentiality Consent Counseling Data Data Analyses Data Collection Data Reporting Development Diffusion Electronics Enrollment Face Familiarity Feedback Funding Goals Health Health Care Costs Health Maintenance Organizations Health Promotion Health Status Health behavior Incentives Individual Influenza prevention Information Systems Information Technology Intervention Investigation Knowledge Learning Link Manuscripts Measures Medical Medical Surveillance Modeling Monitor Needs Assessment Outcome Patient Self-Report Patients Pattern Personal Health Records Population Population Surveillance Provider Public Health Purpose Qualitative Methods Range Reporting Research Research Infrastructure Respondent Risk Risk Behaviors Screening procedure Secondary Prevention Services Source Stream Surveys System Technology Testing Tobacco Tobacco use United States Dept. of Health and Human Services United States National Library of Medicine Variant alcohol monitoring authority cohort concept cost design digital health record member multidisciplinary response service intervention social software development statistics systems research tool

项目摘要

DESCRIPTION (provided by applicant): The goal of our project is to assess the feasibility of collecting behavioral self-report data about alcohol and tobacco use using surveys embedded in personally controlled health records (PCHR). A Federal initiative to advance personal health records has begun at the level of the Secretary of HHS. It presents an outstanding opportunity for developing new systems and tools for data collection and for exploring models for integrating behavioral reporting systems with health promotion and surveillance. As development, diffusion and adoption of PCHR technologies progress, it is critical to study their use and provide a 'proof-of-concept' for using them to collect a range of social and behavioral data for individual and population level research. This may be especially relevant to collecting data about sensitive health behaviors such as alcohol and tobacco use. A full- service medical provider (n=25,000 patients) has agreed to promote the INDIVO (formerly PING) PCHR to its members for this study and provide us with access to community and clinical data for validity testing. We will capitalize on this opportunity to address to specific aims: 1) To ascertain whether HMO members will participate in a system for electronic personally controlled health records and use this system to report about their health behaviors; and, 2) To ascertain whether patients will consent to share their identified personal health data with providers and their de-identified data with public health authorities for the purpose of coordinated care and public health surveillance. We will use descriptive and multivariate statistics to analyze the data, conducting a comprehensive study of participation and use of the system, consent for data sharing, paying special attention to the degree to which social, demographic and "digital divide" factors affect participation, and exploring how selection and participation biases related to social, demographic, knowledge- attitude-belief factors of subjects differ across health behavior areas. Learning more about these issues is essential to understanding the utility of these systems for research.

描述（由申请人提供）：我们项目的目标是评估使用个人控制健康记录 (PCHR) 中嵌入的调查收集有关饮酒和吸烟的行为自我报告数据的可行性。一项推进个人健康记录的联邦举措已在卫生与公众服务部部长层面启动。它为开发新的数据收集系统和工具以及探索将行为报告系统与健康促进和监测相结合的模型提供了绝佳的机会。随着 PCHR 技术的开发、传播和采用的进展，研究其使用并提供“概念验证”以使用它们收集一系列社会和行为数据以进行个人和群体水平的研究至关重要。这可能与收集有关敏感健康行为（例如饮酒和吸烟）的数据尤其相关。一家提供全方位服务的医疗提供者（n=25,000 名患者）已同意向其成员推广 INDIVO（以前称为 PING）PCHR 以进行本研究，并为我们提供社区和临床数据的访问权限以进行有效性测试。我们将利用这个机会来实现具体目标： 1) 确定 HMO 会员是否会参与电子个人控制健康记录系统并使用该系统报告其健康行为； 2) 确定患者是否同意与提供者分享其已识别的个人健康数据，并与公共卫生当局分享其去识别化的数据，以实现协调护理和公共卫生监测的目的。我们将使用描述性和多元统计来分析数据，对系统的参与和使用、数据共享的同意进行全面研究，特别关注社会、人口和“数字鸿沟”因素对参与的影响程度，以及探索与受试者的社会、人口、知识-态度-信念因素相关的选择和参与偏差在不同健康行为领域有何不同。了解更多关于这些问题对于了解这些系统在研究中的效用至关重要。