Improving Decision Making in Patients with Rheumatic Disease

改善风湿病患者的决策

• 批准号: 8022726
• 负责人: Liana Fraenkel
• 金额: $ 17.39万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-07-01 至 2016-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8022726
• 关键词: Age; Alabama; Area; Award; Basic Science; Behavioral; Biometry; Clinical Research; Clinical Trials; Collaborations; Commit; Communication; Critiques; Decision Aid; Decision Making; Development; Educational Curriculum; Educational process of instructing; Effectiveness; Ensure; Epidemiology; Evaluation; Faculty; Funding; Future; Geriatrics; Goals; Grant; Healthcare; Institution; Internal Medicine; Knee; Measures; Medical; Medicine; Mentors; Methods; Mid-Career Clinical Scientist Award (K24); Occupations; Ohio; Outcome; Patients; Persons; Principal Investigator; Process; Public Health; Quality of Care; Randomized Controlled Trials; Research; Research Methodology; Research Personnel; Research Project Grants; Research Training; Resources; Rewards; Rheumatism; Rheumatoid Arthritis; Rheumatology; Role; Schools; Staging; Structure; Texas; Time; Training; Training Programs; Universities; Work; career; clinical practice; college; design; efficacy testing; experience; improved; interest; medical schools; meetings; patient oriented research; programs; risk perception; success; tool

DESCRIPTION (provided by applicant): The goals of the proposed projects are to support my continued development and impact as a mentor, to establish a research training program for patient oriented research (POR) in the Section of Rheumatology at my institution, and to expand my current POR program. Regarding the former, I am strongly committed to devoting a significant percent of my career to mentoring. Among the trainees I am currently working with, I am the primary mentor for 2 junior faculty (1 who is a K awardee), 2 rheumatology fellows interested in pursing a career in POR, and 3 residents planning a career in rheumatology. While my primary interest is in the field of decision making, my training and previous practical experience in epidemiology allow me to be an effective mentor for trainees interested in other aspects of POR related to rheumatic disease. Given my commitment to mentoring, Yale's rich resources dedicated to POR, and strong institutional support to create this program, the K24 Award provides an invaluable opportunity to expand my mentoring efforts and to establish a specialized structured POR curriculum. The program will ensure that fellows interested in becoming independent investigators will be supported by an interdisciplinary team of mentors and will acquire training in clinical research methods and biostatistics. In addition, I will establish a biweekly Research in Progress meeting during which trainees and faculty will be expected to present materials at all stages of development and offer constructive critiques during each session. The training program will include formal mentoring sessions which will adhere to a process for moving research forward. The POR training program will also include formal evaluation of trainees and mentors. In addition to mentoring young investigators, one of my important long-term goals is to advance my own research agenda so that I can continue to conduct scientifically rigorous and meaningful POR. I have established a defined area of expertise and a strong network of collaborators with complementary proficiencies that will support and enhance my research program. Current examples include collaborations with Dr. Curtis (UAB) with whom I have recently submitted a grant to develop individualized outcome estimates in rheumatoid arthritis, Drs. Reyna (Cornell) and Peters (Ohio State) who are basic science experts in decision making and are current collaborators on a project to develop a decision aid in rheumatoid arthritis, Dr. Almazor (MD Anderson) with whom I am working on 2 projects examining the value of conjoint analysis in patients with knee OA, and Dr. Street (Baylor College of Medicine) an internationally renowned expert on communication, who is a collaborator on a new research project: Measuring Patients' Risk Perceptions in Real Time. New planned studies will continue to focus on understanding the reasons underlying poor quality decision making in clinical practice and I will expand my current projects to include randomized controlled trials to test the efficacy/effectiveness of the tools developed.

描述（由申请人提供）：拟议项目的目标是支持我作为导师的持续发展和影响，以在我机构的风湿病学部分建立针对患者研究的研究培训计划（POR），并扩大我当前的POR计划。关于前者，我强烈致力于将自己的职业生涯的很大一部分用于指导。在我目前与之合作的学员中，我是2名初级教师（1名是K获奖者）的主要导师，有2名有兴趣从事POR职业的风湿病学研究员以及计划从事风湿病学职业的3名居民。尽管我的主要兴趣是在决策领域，但我在流行病学方面的培训和以前的实践经验使我可以成为对与风湿病有关的其他POR方面感兴趣的受训者的有效导师。鉴于我致力于指导，耶鲁大学的丰富资源致力于POR，并为创建该计划提供了强有力的机构支持，因此K24奖为扩大我的指导工作并建立专业的结构化POR课程提供了宝贵的机会。该计划将确保有兴趣成为独立调查员的研究员将得到跨学科的导师团队的支持，并将获得有关临床研究方法和生物统计学的培训。此外，我将建立每两周一次的研究会议，在此期间，学员和教职员工将在开发的各个阶段介绍材料，并在每次会议期间提供建设性的批评。该培训计划将包括正式的指导会议，这些课程将遵守推进研究的过程。 POR培训计划还将包括对学员和导师的正式评估。除了指导年轻的研究人员外，我的重要长期目标之一是提高自己的研究议程，以便我可以继续进行科学严格且有意义的POR。我已经建立了一个定义的专业知识领域，并具有互补的能力的强大合作者网络，可以支持和增强我的研究计划。当前的例子包括与柯蒂斯博士（UAB）的合作，我最近提交了一项赠款，以开发类风湿关节炎中的个性化结果估计。雷纳（康奈尔）和彼得斯（俄亥俄州立大学）是决策基础科学专家，并且是一个在类风湿关节炎中开发决策辅助的项目的当前合作者，阿尔玛佐尔博士（MD Anderson）（MD Anderson），我正在与2个项目一起研究，该项目研究了与膝盖OA和医学博士的一名专家，他们在膝盖OA和医学学院进行了一名专家，他们在竞争方面进行了研究：实时测量患者的风险感知。新的计划研究将继续专注于理解临床实践中质量不佳决策的原因，我将扩大目前的项目，包括随机对照试验，以测试开发工具的功效/有效性。