Parental adherence to CF homecare: research chaplaincy career commitment

家长对 CF 家庭护理的遵守：研究牧师职业承诺

基本信息

批准号：
8128444
负责人：
Daniel Huck Grossoehme
金额：
$ 11.7万
依托单位：
CINCINNATI CHILDRENS HOSP MED CTR
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-08-13 至 2015-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8128444
关键词：
Adherence Adult Affect American Antibiotics Attitude Award Behavior Behavioral Model Belief Caring Child Child health care Childhood Chronic Care Chronic Disease Chronically Ill Collaborations Competence Counseling Cross-Sectional Studies Cystic Fibrosis Data Data Analyses Diagnosis Disease Distal Doctor of Philosophy Emotional Family Goals Health Home Care Services Home environment Hospitalization Inpatients Institution Intervention Interview Intravenous Lead Life Link Mediating Medical Mentored Patient-Oriented Research Career Development Award Mentors Mentorship Methods Motivation Outcome Outcomes Research Parents Patients Play Positioning Attribute Prevalence Publications Publishing Quality of life Questionnaires Religion Religion and Psychology Religion and Spirituality Research Research Design Research Methodology Research Personnel Resources Role Schools Self Efficacy Self Management Sickle Cell Anemia Site Social support Solid Spirituality Structure Telephone Testing Time Training Work base career career development children with cystic fibrosis coping diaries experience improved innovation patient home care patient oriented programs public health relevance skills

项目摘要

DESCRIPTION (provided by applicant): Cystic fibrosis (CF) is a life-shortening disorder, the course of which is exacerbated by nonadherence to recommended medical treatments at home. While much is known about factors affecting adherence, less is known about the role of other factors, including spirituality. Objectives: The Candidate's long-term goal is to develop an independent research career as an academic research chaplain focused on the role of child health outcomes and spirituality. The specific outcomes for this are award are to: a) enhance my understanding and competence in mixed-methods research and outcomes research and b) obtain the necessary professional and academic skills to succeed as an independent investigator. Training: For my career development, I plan to take further training in specific qualitative and quantitative methods and data analysis. My mentorship team is comprised of experts in the fields of outcomes research, qualitative and quantitative methods, CF, and spirituality research: Michael Seid, PhD (sponsor), Joel Tsevat, MD, MPH (co-sponsor), Dennis Drotar, PhD (co-sponsor), Kenneth Pargament, PhD, Annette Mahoney, PhD, George Fitchett, D Min, PhD. Jeffrey Jacobson, PhD, Rhonda VanDyke, PhD and James Acton, MD. Research Design & Methods: The central hypothesis is that spirituality is a factor in the lives of parents of children with CF, spiritual constructs are related to adherence, and that this effect is at least partially mediated by attitudes towards treatment, subjective norms, and self-efficacy. This proposal consists of 3 projects involving a total of 124 parents of children with CF. Project 1 is a longitudinal qualitative study with 24 parents using semi-structured interviews to determine the role of spirituality for parents in relation to their child's health and their adherence intentions. Project 2 is a quantitative cross-sectional study of 100 parents using questionnaires and the Daily Phone Diary to quantify the degree to which spiritual variables are related to adherence intentions among parents of children with CF. Project 3 is a quantitative cross-sectional study of 100 parents using the data collected in Project 2 to determine the extent to which the relationship between spiritual variables and parental adherence are mediated by attitudes, norms and self-efficacy. The Candidate's contribution will be to integrate spirituality into an already existing behavioral model of adherence, and to understand how a parent's spirituality impacts their adherence intentions and behaviors. The proposed research is significant because this understanding will enable us to improve existing adherence interventions and thus child health outcomes. PUBLIC HEALTH RELEVANCE: Adherence to chronic care treatments is uniformly poor, resulting in additional missed days of school and work for children and parents, increased need for antibiotics (including intravenous home administration antibiotics by parents) and inpatient hospitalizations. Despite the documented importance of spirituality in American families, little effort has yet been made to explore its role in relation to parental adherence to their child's recommended home health care. This proposed study both creates an independent researcher and identifies potential enhancements to existing adherence-improving interventions by the inclusion of spirituality that would contribute to even greater adherence and thus improved child heath.

描述（由申请人提供）：囊性纤维化 (CF) 是一种缩短寿命的疾病，如果不遵守家庭推荐的药物治疗，则会加剧其病程。虽然人们对影响依从性的因素了解甚多，但对包括灵性在内的其他因素的作用却知之甚少。目标：候选人的长期目标是作为一名专注于儿童健康结果和灵性作用的学术研究牧师，发展独立的研究职业。该奖项的具体成果是：a）增强我对混合方法研究和成果研究的理解和能力，b）获得作为独立研究者取得成功所需的专业和学术技能。培训：为了我的职业发展，我计划接受具体定性和定量方法以及数据分析方面的进一步培训。我的导师团队由结果研究、定性和定量方法、CF 和灵性研究领域的专家组成：Michael Seid 博士（发起人）、Joel Tsevat 医学博士、公共卫生硕士（共同发起人）、Dennis Drotar 博士（共同发起人）、Kenneth Pargament 博士、Annette Mahoney 博士、George Fitchett 博士 D Min 博士。 Jeffrey Jacobson 博士、Rhonda VanDyke 博士和 James Acton 医学博士。研究设计和方法：中心假设是，灵性是 CF 儿童父母生活中的一个因素，灵性构建与依从性相关，并且这种影响至少部分由对治疗的态度、主观规范和自我调节-功效。该提案由 3 个项目组成，共涉及 124 名 CF 儿童家长。项目 1 是一项纵向定性研究，涉及 24 名家长，采用半结构化访谈来确定家长的灵性对其孩子的健康及其依从意图的影响。项目 2 是一项针对 100 名家长的定量横断面研究，使用问卷和每日电话日记来量化精神变量与 CF 儿童家长依从意愿的相关程度。项目 3 是一项针对 100 名父母的定量横断面研究，使用项目 2 中收集的数据来确定精神变量和父母依从性之间的关系在多大程度上受到态度、规范和自我效能的调节。候选人的贡献是将灵性融入现有的依从行为模型中，并了解父母的灵性如何影响他们的依从意图和行为。拟议的研究意义重大，因为这种理解将使我们能够改善现有的依从性干预措施，从而改善儿童健康结果。公共卫生相关性：长期护理治疗的依从性普遍较差，导致儿童和家长额外缺课和工作，对抗生素的需求增加（包括家长静脉注射抗生素）和住院治疗。尽管有记录表明灵性在美国家庭中很重要，但很少有人努力探索灵性在父母遵守孩子推荐的家庭医疗保健方面的作用。这项拟议的研究既创建了一名独立的研究人员，又通过纳入灵性来确定现有的提高依从性的干预措施的潜在增强措施，这将有助于提高依从性，从而改善儿童健康。