Minority Predoctoral Fellowship Program

少数族裔博士前奖学金计划

• 批准号: 7273664
• 负责人: Carlton Haywood
• 金额: $ 4.45万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-07-25 至 2009-07-24
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7273664
• 关键词: Adult; Affect; African American; Age; Attitude; Belief; Blood; Caring; Clinic; Cross-Sectional Studies; Education; Equilibrium; Fellowship; Fellowship Program; Focus Groups; Healthcare Systems; Heart; Hereditary Disease; Individual; Institutes; Institution; Lung; Medical; Medical Research; Minority; Morbidity - disease rate; Names; Patients; Persons; Physicians; Recruitment Activity; Reporting; Research; Research Personnel; Sickle Cell Anemia; Socioeconomic Status; Trust; United States National Institutes of Health; experience; interest; mortality; pre-doctoral; research study; willingness

Sickle Cell Disease (SCD) is the most common genetic disease affecting African Americans in the U.S. SCO contributes to significant morbidity and mortality among affected persons. Researchers report difficulty in recruiting adults with SCD for participation in medical research. This study will examine willingness to participate in medical research among adults with SCD. Focus groups and a cross-sectional survey will be used to answer four research questions: 1) What are the beliefs and concerns towards participation in medical research expressed by adults with SCD? 2) Do levels of trust in physicians (interpersonal trust) and medical institutions (institutional trust) differ between adults with SCD receiving care at a historically black medical institution and those that are not? 3) Does willingness to participate in medical research differ between adults with SCD receiving care at a historically black medical institution and those that are not? 4) What factors will be associated with the adult SCD patient's willingness to participate in medical research? Results of the study will be used to better understand those factors associated with research participation among adults with SCD.

镰状细胞疾病（SCD）是影响美国SCO非裔美国人的最常见遗传疾病，导致受影响的人的大量发病和死亡。研究人员报告说，难以招募SCD参加医学研究的成年人。这项研究将研究SCD成年人参加医学研究的意愿。焦点小组和横断面调查将用于回答四个研究问题：1）参与SCD成年人表达的医学研究的信念和担忧是什么？ 2）在SCD接受医疗机构（机构信任）（机构信任）（机构信任）的成年人之间，SCD在历史悠久的黑人接受护理方面的信任程度有所不同 医疗机构和那些没有的机构？ 3）参加医学研究的意愿在SCD的成年人之间在历史悠久的黑人医疗机构中接受护理而有所不同吗？ 4）与成人SCD患者愿意参加医学研究的意愿将有哪些因素？该研究的结果将用于更好地理解与SCD成年人研究参与有关的因素。