Technological Home Care: Improving Caregiving

技术家庭护理：改善护理

• 批准号: 7250285
• 负责人: CAROL E SMITH
• 金额: $ 49.88万
• 依托单位: UNIVERSITY OF KANSAS MEDICAL CENTER
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-29 至 2010-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7250285
• 关键词: Address; Adult; Aging; Algorithms; Antibiotic Resistance; Care given by nurses; Caregivers; Caring; Catheter-related bloodstream infection; Catheters; Centers for Disease Control and Prevention (U.S.); Chronic; Chronic Disease; Classification; Clinical; Clinical Nursing; Clinical Trials; Clinical Trials Design; Communication; Condition; Continuity of Patient Care; Controlled Clinical Trials; Cost Analysis; Daily; Data; Data Analyses; Disease; Effectiveness; Elderly; Enrollment; Evaluation; Family; Family Caregiver; Foundations; Gastrointestinal Diseases; Gender; Goals; Guidelines; Health Care Costs; Health Services; Health Status; Health education; Healthcare; Healthy People 2010; Home Parenteral Nutrition; Home environment; Hospitals; Infection; Infection prevention; Infusion Pumps; Infusion procedures; Interdisciplinary Study; Internet; Intervention; Invasive; Joint Commission on Accreditation of Healthcare Organizations; Kansas; Knowledge; Laboratories; Life; Long-Term Effects; Mental Depression; Mentors; Methods; Modeling; Monitor; Morbidity - disease rate; Non-Malignant; Numbers; Nurses; Nutrient; Nutrition, Other; Outcome; Parenteral Nutrition; Patients; Phase; Placebo Control; Population; Problem Solving; Process; Purpose; Quality of life; Questionnaires; Reactive depression; Recommendation; Relative (related person); Reporting; Research Methodology; Rural; Safety; Self Management; Sepsis; Sleep; Sleep Deprivation; Sleep Disorders; Social isolation; Social support; Support System; Symptoms; System; Technology; Testing; Time; Training; United States Agency for Healthcare Research and Quality; University Hospitals; Venous; Visiting Nurse; Work; Writing; base; caregiving; catheter related infection; concept; cost; design; diaries; disability; experience; improved; innovation; middle age; mortality; novel; nursing intervention; outreach; patient home care; peer; satisfaction; skills; telehealth; theories; therapy development; virtual

DESCRIPTION (provided by applicant): Specific aims of this study are to test the effects of a nursing intervention (FamTechCare) on family caregivers' problem solving ability, participation in health care management, health status, depression, quality of life, and health care services costs. Subjects in the study will be family caregivers (n= 80) and 80 adult patients dependent for survival on Home Parenteral Nutrition (HPN) infusions due to nonmalignant gastrointestinal disorders. Recruitment is through Kansas University Hospital and its rural outreach centers. Enrollment will be staggered over the project in order to assure adequate numbers and representative gender and racial distributions. Research methods include a placebo-controlled longitudinal clinical trial design with crossover and interventions delivered by videophone nurse visits, internet-based home care algorithm guides and by peer support. Peers are family caregivers with extensive HPN experience who will be trained to mentor dyads via videophone. These FamTechCare interventions are based on extensive preliminary data and include new, innovative extensions for this study. The entire intervention was pilot- tested and found feasible and not a burden. Questionnaires and laboratory data used to obtain pre- and post-intervention data are valid, sensitive to change and reliable and were completed in an average 20 minutes during pilot testing. Data analyses will include nested linear mixed model hypothesis testing to detect effects on caregiver/patient dyads. The novel concept of nurse caring conveyed via internet is also tested. Traditional cost analysis and the, innovative Data Envelopment Analysis (DEA) will be used to describe each family's home care efficiency in relation to and health services costs. This study uses videophone and internet delivery which increases health care access and reduces health care disparities. The potential significance and the long term goals are to strengthen home caregiving skills, improve health status, quality of life and self-management of chronic illness symptoms and invasive home care treatment.

描述（申请人提供）：本研究的具体目的是测试护理干预（FamTechCare）对家庭护理人员解决问题的能力、参与医疗保健管理、健康状况、抑郁、生活质量和医疗保健的影响服务成本。研究对象包括家庭护理人员 (n= 80) 和 80 名因非恶性胃肠道疾病而依赖家庭肠外营养 (HPN) 输注生存的成年患者。招募是通过堪萨斯大学医院及其农村外展中心进行的。该项目将错开招生，以确保足够的人数以及具有代表性的性别和种族分布。研究方法包括安慰剂对照的纵向临床试验设计，通过视频电话护士就诊、基于互联网的家庭护理算法指南和同伴支持进行交叉和干预。同伴是具有丰富 HPN 经验的家庭护理人员，他们将接受培训，通过视频电话指导二人。这些 FamTechCare 干预措施基于广泛的初步数据，并包括本研究的新的创新扩展。整个干预措施经过试点测试，发现可行且不会造成负担。用于获取干预前后数据的调查问卷和实验室数据有效、对变化敏感且可靠，并且在试点测试期间平均 20 分钟内完成。数据分析将包括嵌套线性混合模型假设检验，以检测对护理人员/患者二人组的影响。通过互联网传达的护士关怀的新颖理念也得到了检验。传统的成本分析和创新的数据包络分析 (DEA) 将用于描述每个家庭与健康服务成本相关的家庭护理效率。这项研究使用可视电话和互联网传输，增加了医疗保健的可及性并减少了医疗保健的差距。潜在意义和长期目标是加强家庭护理技能，改善健康状况、生活质量以及慢性病症状的自我管理和侵入性家庭护理治疗。