Rehabilitation Research & Training Center on Aging with Development Disabilities

康复研究

• 批准号: 7336184
• 负责人: TAMAR HELLER
• 金额: $ 2.5万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-01 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7336184
• 关键词: Rehabilitation; Research; Training; Center; Aging

DESCRIPTION (Provided by Applicant): The conference "State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living" is sponsored by the University of Illinois at Chicago's Rehabilitation Research and Training Center on Aging with Developmental Disabilities in collaboration with the American Association on Intellectual and Developmental Disabilities (AAIDD). It will be held on May 21-22, 2007 at the Sheraton Hotel in Atlanta during the AAIDD Annual meeting. This conference will examine the current knowledge and set the agenda for further research on the unique life course of adults with intellectual and developmental disabilities (I/DD) and on the social, environmental, and technological supports needed for promoting their health and community participation. It will focus on four thematic areas: 1) neurodevelopmental conditions; 2) health care services, health promotion needs, and health literacy; 3) family support and intergenerational caregiving; and 4) environmental barriers and supports to community living. These issues are gaining greater imperative as the population of adults aging with I/DD grows and their community visibility increases. Developmental disabilities includes many conditions. We often do not know their aging trajectories and lack understanding as to how these issues interact with the environment. Participants will parse and synthesize this information to gain consensus on clinical changes and identify their markers. Persons aging with I/DD often experience health disparities when compared with the general population As health care systems consolidate services and limit available resources and funding, the increased time pressures are especially problematic for adults with I/DD who often need extra time for examinations, tests, procedures, and communicating with health professionals. A large percentage of people with I/DD frequently live in poverty and have a lifetime need for supports. Throughout their lives, the vast majority of people with I/DD live with their families who fulfill the role of primary care providers for them. Researchers and practitioners recognize a growing need for aging friendly environments and technological advances including assistive technology and cognitive aids to provide support for adults with I/DD to participate in community living. Conference objectives are to focus on developing and translating research to improve our health and long term care delivery system for persons aging with I/DD through a research agenda aimed at increasing scientific knowledge, changing clinical practices, and promoting progressive public policies. It will include key researchers, policy makers and self-advocates from both the disability and aging communities. The sessions will include research presentations followed by creative intensive working sessions in each of the four themes. Proposed outcomes will include the following: monograph and journal issue on conference outcomes; statements of practice guidelines in aging and neurodevelopmental conditions, health care, health promotion, and health literacy, and age friendly environments; and a best practices brief describing innovative practices in providing family support. The purpose of the conference "State of the Science in Aging with DD: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living" is two-fold: 1) Invited international experts in the health care needs of adults with developmental disabilities (DD) will meet to review and establish consensus on the research to date and to set the agenda for future research to improve the quality and delivery of health services. 2) Researchers will present their findings at an open conference on Day 1 to increase the knowledge of professionals in health services and the field of developmental disabilities.

描述（由申请人提供）：会议“与发育障碍的衰老科学状态：对健康社区生活的生命周期轨迹和支持环境”由伊利诺伊大学在芝加哥大学的康复研究与培训中心与美国知识和发展障碍协会合作（AAIDD）合作（AAIDD）。它将于2007年5月21日至22日在AAIDD年度会议期间在亚特兰大的Sheraton酒店举行。这次会议将研究当前的知识，并为进一步研究智力和发育障碍成年人的独特生活课程（I/DD）以及促进其健康和社区参与所需的社会，环境和技术支持。它将集中在四个主题领域：1）神经发育条件； 2）医疗保健服务，健康促进需求和健康素养； 3）家庭支持和代际护理； 4）环境障碍和支持社区生活。随着成年人的I/DD增长衰老，社区知名度的提高，这些问题变得更加迫切。发育障碍包括许多条件。我们通常不知道他们的衰老轨迹，也缺乏对这些问题如何与环境相互作用的理解。参与者将解析并综合此信息，以在临床变化上达成共识并确定其标记。与普通人群相比，随着医疗保健系统巩固服务并限制了可用的资源和资金，随着I/DD衰老的人通常会经历健康差异，对于患有I/DD的成年人来说，增加的时间压力尤其有问题，而I/DD通常需要额外的时间进行考试，测试，程序，程序以及与卫生专业人员进行沟通。 I/DD患者中有很大一部分经常生活在贫困中，并且一生需要支持。在他们的一生中，绝大多数I/DD的人都与履行初级保健提供者作用的家人一起生活。研究人员和从业人员认识到，对友好型环境和技术进步的需求日益增长，包括辅助技术和认知辅助工具，以为I/DD的成年人提供支持，以参与社区生活。会议目标旨在通过研究议程来开发和翻译研究，以改善与I/DD老年人的健康和长期护理交付系统，旨在提高科学知识，改变临床实践和促进进步的公共政策。它将包括关键的研究人员，政策制定者和从残疾和衰老社区的自我倡导。会议将包括研究演讲，然后在四个主题中的每个主题中进行创造性的密集型工作会议。拟议的结果将包括以下内容：会议成果的专着和期刊问题；衰老和神经发育状况，医疗保健，健康促进以及健康素养以及年龄友好环境中实践指南的陈述；以及最佳实践简介，描述了提供家庭支持的创新实践。会议“与DD的老化科学状态：对健康社区生活的寿命轨迹和支持环境”的目的是两个方面：1）邀请国际障碍成人（DD）的国际保健需求（DD）会开会，以审查和确定迄今为止的研究并确定未来研究的研究，以提高参数，以提高质量和交付质量和交付健康服务。 2）研究人员将在第1天的公开会议上介绍他们的发现，以提高卫生服务专业人士的知识和发育障碍领域的知识。