Internet Support for Self-Managing Neuropathic Pain

自我管理神经性疼痛的互联网支持

• 批准号: 7108131
• 负责人: JONAS I BROMBERG
• 金额: $ 15.88万
• 依托单位: INFLEXXION, INC.
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-08-01 至 2008-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7108131
• 关键词: Address; Adoption; Advocate; Aging; American; Attention; Behavioral; Caring; Clinical; Collaborations; Communication; Condition; Depressed mood; Diagnosis; Education; Evaluation; Face; Family; Feedback; Flowcharts; Foundations; High Prevalence; Incidence; Individual; Internet; Intervention; Learning; Left; Life; Maps; Medical; Modeling; Numbers; Pain; Pain management; Patient Education; Patient Participation; Patients; Personal Satisfaction; Persons; Phase; Population; Prevalence; Procedures; Process; Provider; Public Health; Quality of life; Range; Recommendation; Research Design; Role; Sampling; Self Assessment; Self Management; Site; Societies; Time; Work; Writing; base; concept; cost; design; desire; experience; improved; improved functioning; painful neuropathy; pressure; prevent; programs; skills; sound; success; theories; tool

DESCRIPTION (provided by applicant): Neuropathic pain (NP) exacts a huge toll on the individual, the family, and society. NP may prevent a person from working, socializing, or enjoying a family life and is associated with depressed mood and a poor quality of life. Estimates of the prevalence of NP range between 1.5% and 7.7% of the population. Traditional medical approaches to pain management have shown limited success in treating NP and "medicalize" patients, placing them in a passive role with limited emphasis on active self-management. Optimal care should engage patients in self-management so they can learn how to identify, avoid, and help manage their pain; a process wherein patient and clinical provider work together to reduce pain and improve functioning. The process requires active participation by the patient and good communication between patient and provider. Time demands leave little room for desired patient-provider collaboration, and many patients have no chance to develop self-management skills elsewhere, resulting in missed opportunities to improve the patient's well-being, function, and quality of life. Widely accessible, tailored interventions are needed to facilitate patient education and the adoption of empirically sound and theory driven behavioral self-management skills. The Internet is an excellent vehicle to help people with NP self-manage their condition. However, existing consumer-oriented pain management Websites do not offer theory driven intervention, empirically-based tailoring, or engaging interactive tools for learning new skills, tracking progress, and communicating with providers. We propose developing an interactive pain self-management Website called ManageNP.com to fill this unmet need. The content and intervention components will be developed through an empirical process called Concept Mapping, in which input from key stakeholders (people with NP, clinical experts, and patient advocates) is used to help define the program's content and intervention components. The Website will provide clinically reliable information about diagnosis, treatment, and management of NP, written for consumers in a clear and engaging manner. A unique feature of the site will be a suite of self-assessments that provide tailored motivational feedback, along with self-management recommendations that address patient priorities and problems. No Website currently offers this combination of empirically derived self-management features and thus will represent a significant advance in NP care.

描述（由申请人提供）：神经性疼痛 (NP) 对个人、家庭和社会造成巨大损失。 NP 可能会妨碍一个人工作、社交或享受家庭生活，并与情绪低落和生活质量差有关。 NP 患病率估计在人口的 1.5% 到 7.7% 之间。传统的疼痛管理医学方法在治疗 NP 和“治疗”患者方面取得的成功有限，使患者处于被动角色，对主动自我管理的重视有限。最佳的护理应该让患者进行自我管理，以便他们能够学习如何识别、避免和帮助管理他们的疼痛；患者和临床提供者共同努力减轻疼痛和改善功能的过程。该过程需要患者的积极参与以及患者和提供者之间的良好沟通。时间紧迫，患者与提供者之间的协作空间很小，许多患者没有机会在其他地方培养自我管理技能，从而错过了改善患者福祉、功能和生活质量的机会。需要广泛使用、量身定制的干预措施来促进患者教育和采用经验丰富和理论驱动的行为自我管理技能。互联网是帮助 NP 患者自我管理病情的绝佳工具。然而，现有的以消费者为导向的疼痛管理网站不提供理论驱动的干预、基于经验的定制或用于学习新技能、跟踪进展以及与提供者沟通的互动工具。我们建议开发一个名为 ManageNP.com 的交互式疼痛自我管理网站来满足这一未满足的需求。内容和干预组成部分将通过称为概念图的实证过程来开发，其中主要利益相关者（NP 患者、临床专家和患者倡导者）的输入用于帮助定义计划的内容和干预组成部分。该网站将以清晰、引人入胜的方式为消费者提供有关 NP 诊断、治疗和管理的临床可靠信息。该网站的一个独特功能是提供一套自我评估，提供量身定制的激励反馈，以及解决患者优先事项和问题的自我管理建议。目前还没有网站提供这种根据经验得出的自我管理功能的组合，因此将代表 NP 护理的重大进步。