Preparing Caregivers for the Death of their Loved One

让护理人员为亲人的去世做好准备

• 批准号: 6963126
• 负责人: RANDY S. HEBERT
• 金额: $ 12.45万
• 依托单位: UNIVERSITY OF PITTSBURGH AT PITTSBURGH
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-27 至 2010-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6963126
• 关键词: behavioral /social science research tag; bereavement; caregivers; clinical research; data collection methodology /evaluation; death; education evaluation /planning; educational resource design /development; handbook; health care personnel; health care personnel education; health education; human subject; patient care personnel relations; patient oriented research; psychological adaptation; quality of life; questionnaires; terminal patient care

DESCRIPTION (provided by applicant): This proposal is designed to provide Dr. Randy Hebert with the training and experience to become an independent palliative care and bereavement researcher. The candidate will build upon his fellowship training in public health and medical education with mentoring from accomplished researchers including Robert Arnold, MD and Richard Schulz, PhD, as well as independent study and coursework in health communication, clinical interventions methodology, and bereavement. Dr. Hebert will have the resources of a Division of General Internal Medicine with a history of success in mentoring junior faculty and the nationally respected Comprehensive Palliative Care Program and Center for Research on Health Care. The purpose of this proposal is to develop an intervention that will improve the physical, psychological, and spiritual well-being of bereaved family caregivers. Despite often prolonged care giving, caregivers frequently do not feel prepared, or adequately forewarned, for their loved one's death. Bereaved caregivers who were not prepared for the death suffer from higher rates of anxiety, depression, and complicated grief. Lack of preparedness has been shown to be related to inadequate communication about death and dying between caregivers and the healthcare providers (HCPs) caring for the patient. Although both agree that discussing death and dying is important, caregivers and HCPs are uncomfortable discussing these issues and HCPs often do not possess the skills necessary to address caregivers' questions. A two-armed intervention will be developed to address these barriers. First, Dr. Hebert will conduct qualitative interviews with caregivers and HCPs recruited from a large and diverse inpatient palliative care service and a community-based hospice in order to develop a question prompt sheet (QPS) that encourages caregivers to ask questions about death and dying. Second, to ensure that HCPs answer caregivers' questions in a competent, sensitive manner, the candidate will obtain the opinions of a varied panel of experts to develop a handbook that will then be used to train HCPs to address caregivers' questions. Finally, in order to determine feasibility, the intervention will be pilot tested in a sample of caregivers of terminally ill patients and the HCPs caring for the patients. Dr. Hebert's clinical experience in palliative care and fellowship training in public health and medical education give him a unique perspective to develop such an intervention. This award will facilitate the candidate's transition to an independent researcher and will lead to future studies of interventions designed to improve the well-being of family caregivers.

描述（由申请人提供）：本提案旨在为 Randy Hebert 博士提供成为独立姑息治疗和丧亲研究者的培训和经验。候选人将在公共卫生和医学教育领域的进修培训的基础上，在罗伯特·阿诺德医学博士和理查德·舒尔茨博士等杰出研究人员的指导下，以及在健康传播、临床干预方法和丧亲之痛方面的独立研究和课程。赫伯特博士将拥有普通内科部门的资源，该部门在指导初级教师方面拥有成功的历史，以及全国受人尊敬的综合姑息治疗计划和医疗保健研究中心。该提案的目的是制定一种干预措施，改善失去亲人的家庭照顾者的身体、心理和精神健康。尽管经常提供长时间的护理，但护理人员常常对亲人的死亡感到没有准备或没有得到充分的预警。没有为死亡做好准备的失去亲人的照顾者患焦虑、抑郁和复杂悲伤的比例更高。事实证明，缺乏准备与照顾患者的护理人员和医疗保健提供者 (HCP) 之间关于死亡和临终的沟通不充分有关。尽管双方都同意讨论死亡和濒临死亡很重要，但护理人员和 HCP 不愿意讨论这些问题，而且 HCP 往往不具备解决护理人员问题所需的技能。将制定双臂干预措施来解决这些障碍。首先，Hebert 博士将对从大型多元化住院姑息治疗服务机构和社区临终关怀机构招募的护理人员和 HCP 进行定性访谈，以制定问题提示表 (QPS)，鼓励护理人员提出有关死亡和临终的问题。其次，为了确保 HCP 以称职、敏感的方式回答护理人员的问题，候选人将获得不同专家小组的意见，以制定一本手册，然后用于培训 HCP 来解决护理人员的问题。最后，为了确定可行性，该干预措施将在绝症患者的护理人员和照顾患者的医护人员样本中进行试点测试。赫伯特博士在姑息治疗方面的临床经验以及公共卫生和医学教育方面的进修培训使他在制定此类干预措施方面具有独特的视角。该奖项将促进候选人向独立研究员的过渡，并将引导未来对旨在改善家庭护理人员福祉的干预措施进行研究。