Ethical Issues in HIV/AIDS and Substance Abuse Research

艾滋病毒/艾滋病和药物滥用研究中的伦理问题

• 批准号: 6874654
• 负责人: LINDA D SANDER
• 金额: $ 16.45万
• 依托单位: MEHARRY MEDICAL COLLEGE
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-07-01 至 2008-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6874654
• 关键词: Ethical; Issues; HIV; AIDS; Substance

DESCRIPTION (provided by applicant): The current worldwide HIV/AIDS pandemic is having a devastating impact on African American and Hispanic populations in the United States. Recent surveillance data available from CDC indicate that 50% of new HIV infections occur in the African American community, which includes only 12% of the U.S. population. Hispanics, also representing 12% of the population account for 19% of new HIV cases. As much as one third of the HIV/AIDS in the African American community is associated with substance abuse, particularly injection drug use. Once infected, members of the minority community are less likely to receive timely care and are more apt to die sooner of AIDS associated disease. Given the horrific impact of HIV/AIDS on the African American community, one would assume that African Americans would be at the forefront of research efforts designed to develop better and cheaper treatments for AIDS and effective preventive vaccines. Unfortunately, the legacy of the Tuskegee Syphilis Trials lives on. The goal of this proposal is to increase understanding of the ethical issues surrounding the prevention and treatment of HIV/AIDS and substance abuse in minority communities and to better prepare researchers and other professionals to engage in ethically designed and implemented research of special significance to the minority community. The core of the program will be to offer on an annual basis: 1) a 2-day workshop "Seeing Beyond the Barriers: Minority Participation in HIV/AIDS and Substance Abuse Research" for persons involved in clinical research and ethical oversight of research involving HIV/AIDS and substance abuse. Participants may include researchers; physicians, IRB and CAB members and Community-based organization care providers. The course will offer a case-study approach to ethical issues in HIV/AIDS and substance abuse with class leadership provided by affected individuals, community leaders and professionals involved in these issues, and 2) a month long clinical elective "Clinical and Research Ethics: Issues in HIV/AIDS and Substance Abuse" for junior and senior medical and other students that will offer expertise in clinical and research ethics with emphasis on ethical issues relating to HIV/AIDS and substance abuse. The course will combine didactic presentations and case-study discussions with field experiences allowing students to interact with clinical researchers and community outreach leaders as they confront the ethical issues inherent in the practice of their professions.

描述（由申请人提供）：当前的全球艾滋病毒/艾滋病大流行对美国的非裔美国人和西班牙裔人口造成了毁灭性的影响。疾病预防控制中心（CDC）可获得的最新监测数据表明，在非裔美国人社区中，有50％的新艾滋病毒感染发生，其中仅包括美国人口的12％。西班牙裔人也占人口的12％，占新艾滋病毒案件的19％。非裔美国人社区中高达三分之一的艾滋病毒/艾滋病与药物滥用有关，尤其是注射毒品的使用。一旦被感染，少数族裔社区的成员就不太可能及时照顾，并且更容易死于艾滋病相关疾病。鉴于艾滋病毒/艾滋病对非裔美国人社区的可怕影响，人们会认为非裔美国人将处于研究工作的最前沿，旨在为艾滋病和有效的预防疫苗开发更好，更便宜的治疗方法。不幸的是，Tuskegee梅毒试验的遗产一直存在。该提案的目的是提高人们对少数群体预防和治疗艾滋病毒/艾滋病和药物滥用的道德问题的理解，并更好地使研究人员和其他专业人员做好准备，从而从事对少数族裔的特殊意义的道德设计和实施研究社区。该计划的核心将是每年提供的：1）为期2天的研讨会“超越障碍：少数群体参与艾滋病毒/艾滋病和药物滥用研究”，涉及临床研究的人以及涉及的研究的道德监督艾滋病毒/艾滋病和药物滥用。参与者可能包括研究人员；医师，IRB和CAB会员以及基于社区的组织护理提供者。该课程将为艾滋病毒/艾滋病的道德问题提供案例研究方法，并通过受影响的个人，社区领导者和参与这些问题的专业人员提供的班级领导和毒品滥用，以及2）一个月长的临床选修“临床和研究道德：艾滋病毒/艾滋病和药物滥用的问题”针对初级和高级医学和其他学生，这些问题将在临床和研究伦理方面提供专业知识，重点是与艾滋病毒/艾滋病和药物滥用有关的道德问题。该课程将结合教学演讲和案例研究的讨论以及现场经验，使学生能够与临床研究人员和社区外展领导人进行互动，以应对其职业实践中固有的道德问题。