Family Empowerment: Adapting Successful Disclosure Strategies for HIV+ Parents

家庭赋权：为艾滋病毒父母采取成功的披露策略

• 批准号: 7119424
• 负责人: TOODY MAHER
• 金额: $ 16.39万
• 依托单位: SCIENCE2MARKET, LLC
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-08-01 至 2007-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7119424
• 关键词: AIDS education /prevention; HIV infections; audiotape; behavior therapy; behavioral /social science research tag; clinical research; coping; family structure /dynamics; focus groups; human subject; human therapy evaluation; interview; self care; self help organization; therapy design /development

DESCRIPTION (provided by applicant): One (1) million adults in the US and 42 million families globally must decide if, to whom, when, and how to disclose their HIV+ serostatus. Often, disclosure of serostatus has a long-term negative impact on children and extended family members of HIV+ parents; this team has developed a coping-skills intervention that can positively impact the adjustment over 6 years of HIV+ parents, their children, and grandchildren. The intervention has been delivered in a small group setting over multiple sessions. However, most treatment settings do not serve enough HIV+ parents to form ongoing groups; attendance at sessions is a major barrier for a small group delivery format; and tailoring the delivery to ethnic and gender subgroups is difficult in a small group setting. The goal of this STTR project is to adapt an evidence-based intervention for HIV+ parents on disclosure of serostatus that can be delivered in a stand alone self-help format, not a small group and will allow for broad dissemination of the intervention in multiple settings and through multiple vehicles (agencies, direct mail, physicians, pharmacies and HIV+ parents). In Phase I, we will examine the feasibility of a new format for our existing evidence-based disclosure intervention, Project TALK, by: (a) adapting existing scripts and session activities to be delivered in a different format (from small group to stand alone self-help packet); (b) pilot testing the acceptability and the market potential of a sample session with donor agencies, community organizations, physicians, pharmacists, HIV testing sites and HIV+ parents; and (c) finalizing plans to produce a prototype and evaluate the intervention's effect on disclosure and positive adjustment of parent's living with HIV and their children in a field trial in Phase II. To conduct this work, Science2Market [S2M], a for-profit company, has joined with UCLA researchers to utilize the expertise of a university-based research team with experts in community care and dissemination. If the sample session is highly acceptable to the potential market and the price/unit is feasible for dissemination we will proceed to Phase II application to examine the efficacy of the new intervention.

描述（由申请人提供）：美国和全球4200万个家庭的一（1）个成年人必须决定是否，何时，何时以及如何披露其HIV+ Cerostatus。通常，披露血清对艾滋病毒+父母的儿童和大家庭的长期负面影响；该团队开发了一种应对技能干预措施，可以在6年的艾滋病毒+父母，他们的孩子和孙子身上对调整产生积极影响。干预措施是在一个小组设置中进行多个课程进行的。但是，大多数治疗环境都无法为艾滋病毒+父母提供足够的服务来形成正在进行的群体。参加会议是小组交付格式的主要障碍；在小组环境中，很难量身定制向种族和性别亚组的交付。该STTR项目的目的是调整艾滋病毒+父母的基于证据的干预措施，以披露血清的披露，可以单独使用自助格式，而不是小组，而不是小组，并且可以通过多个设置和多个车辆（机构，直接邮件，直接邮件，物体，药房，药房和HIV+父母）进行广泛的散布。在第一阶段，我们将研究一种新格式对我们现有的基于证据的披露干预，项目谈话的可行性，作者：（a）调整现有的脚本和会话活动，要以不同的格式（从小组到独立的自助数据包）； （b）试点测试与捐助机构，社区组织，医师，药剂师，艾滋病毒测试网站和艾滋病毒+父母的样本会议的可接受性和市场潜力； （c）最终确定制作原型的计划，并评估干预措施对II阶段的现场试验中父母对艾滋病毒及其子女的披露和积极调整的影响。为了进行这项工作，营利性公司Science2market [S2M]已与UCLA研究人员一起利用具有社区护理和传播专家的大学研究团队的专业知识。如果样本会话对潜在市场高度接受，并且价格/单位对于传播是可行的，我们将继续进行第二阶段的应用，以检查新干预的功效。