Patient and family participation in hospice team meeting

患者和家属参加临终关怀团队会议

• 批准号: 7074959
• 负责人: Debra Parker Oliver
• 金额: $ 13.97万
• 依托单位: UNIVERSITY OF MISSOURI-COLUMBIA
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-05-03 至 2008-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7074959
• 关键词: caregivers; clinical research; communication; family; hospices; neoplasm /cancer; pain; quality of life

DESCRIPTION (provided by applicant): In congruence with the NCI challenge goal to eliminate suffering due to cancer, and its public health mission related to patient care, this proposal seeks to test a new intervention which will improve the quality of care at the end of life and quality of life for dying cancer patients and family. This project proposes to strengthen hospice care for cancer patients by enabling patient/family participation in hospice interdisciplinary teams (IDTs) through use of a commercially available videophone. The overall purpose of this exploratory project is to test an intervention to improve end of life care by involving cancer patients and family caregivers in hospice IDT meetings. The hypothesis is that the active participation of cancer patients and their primary family caregiver in the hospice IDT meeting will improve communication, pain management and quality of life. The exploratory study will allow for testing of the intervention logistics, identifying sampling and recruitment issues, assessing the qualitative methodology, and testing of specific instruments. The study aims to:1) use observation and interviews to explore communication between the team and patient/family, 2) test measures to assess changes in pain and symptom management, and 3) test measures to assess changes in quality of life. The theoretical model developed by Saltz and Schaefer advocate the assessment of the IDT context, process, structure, and outcomes as a foundation for involving patients and families in the IDT. This exploratory intervention uses a quasi-experimental design in a sequential two-phase mixed methods approach involving qualitative and quantitative methods in parallel and equal status. The qualitative design includes observations of team meetings and interviews with family members. The quantitative component uses previously used instruments to measure the outcomes of participation in IDT meetings. Phase I involves the observation and measurement of hospice cancer patients who are not involved in the IDT meeting to serve as a comparison group. Phase II introduces the videophone as a tool to support patient and family involvement in the IDT meeting. The results of this study will provide preliminary data for a larger multi-phase, multi-site follow-up project.

描述（由申请人提供）：与 NCI 消除癌症痛苦的挑战目标及其与患者护理相关的公共卫生使命相一致，本提案旨在测试一种新的干预措施，该干预措施将在年底时提高护理质量临终癌症患者及其家人的生活和生活质量。该项目提议通过使用市售可视电话让患者/家属参与临终关怀跨学科团队 (IDT)，从而加强对癌症患者的临终关怀。该探索性项目的总体目的是通过让癌症患者和家庭护理人员参与临终关怀 IDT 会议来测试改善临终护理的干预措施。假设癌症患者及其主要家庭护理人员积极参与临终关怀 IDT 会议将改善沟通、疼痛管理和生活质量。探索性研究将允许测试干预后勤、确定抽样和招募问题、评估定性方法以及测试特定仪器。该研究的目的是：1）利用观察和访谈来探索团队与患者/家人之间的沟通，2）测试措施来评估疼痛和症状管理的变化，3）测试措施来评估生活质量的变化。 Saltz 和 Schaefer 开发的理论模型提倡对 IDT 背景、过程、结构和结果进行评估，作为让患者和家庭参与 IDT 的基础。这种探索性干预采用准实验设计，采用连续两阶段混合方法，涉及并行和平等状态的定性和定量方法。定性设计包括对团队会议的观察和对家庭成员的访谈。定量部分使用以前使用的工具来衡量参加 IDT 会议的结果。第一阶段包括对未参加 IDT 会议的临终癌症患者进行观察和测量，作为对照组。第二阶段引入可视电话作为支持患者和家属参与 IDT 会议的工具。这项研究的结果将为更大的多阶段、多地点后续项目提供初步数据。