EXTENDING ACCESS TO DATA FROM DEMOGRAPHIC SURVEILLANCE SYSTEM SITES IN AFRICA

扩大对非洲人口监测系统站点数据的访问

• 批准号: 7132086
• 负责人: SAMUEL J CLARK
• 金额: $ 5.65万
• 依托单位: UNIVERSITY OF COLORADO
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-09-15 至 2008-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7132086
• 关键词: Africa; archives; clinical research; computer data analysis; data management; data quality /integrity; epidemiology; geographic site; human data; information dissemination; information systems; longitudinal human study; technology /technique development

DESCRIPTION (provided by applicant): Much of Africa is experiencing a dramatic epidemiological transition driven in opposite directions by continuing improvements in the management of traditional infectious diseases, concurrent exploding HIV and TB epidemics, the continuing impact of malaria, and swift increases in the prevalence of chronic non- communicable diseases. Tragically there are very few representative, reliable data to illuminate these remarkable changes, or more importantly to guide the design and measure the effects of interventions aimed at improving the situation. A rapidly growing group of demographic surveillance system (DSS) sites is collecting valuable population-based, longitudinal data describing both the health and social dimensions of this epidemiological transition, and many of the roughly twenty DSS sites in Africa also conduct population-based health intervention testing and drugs trials. This data-archiving and data-use project fits into a long-term plan of the INDEPTH Network of DSS sites which has the overall goal of making the unique and valuable health and population data generated by DSS sites widely available and representative of larger populations that are more relevant to designing interventions and formulating policy. Together with an ongoing pilot of identical physical and cognitive function modules in several African and Asian DSS sites, this project contributes to the foundation of an envisaged multi-site study of adult health and aging in Africa. The specific aims of this project are to develop, prototype and pilot: 1) standards for the definition and management of DSS data, 2) policy, procedures and technology to make the data from one or more DSS sites widely available, 3) standardized, automated routines to calculate commonly used indices, rates and measures relating to longitudinal population data, 4) database designs and GIS tools to fully integrate health and demographic data with spatial and geographic information, and 5) methods to manage concurrent paper and electronic archives of DSS data. The Agincourt Demographic and Health Surveillance system site in South Africa has volunteered itself for this pilot project and is committed to providing access to its data at the end of the project using tools developed by the project and under the policies formulated as part of the project. Additional outcomes of this project will include: 1) piloted prototypes of the technology, tools, policies and procedures necessary to widely disseminate DSS data; 2) prototype routines to calculate standard measures from DSS data; 3) designs and tools to fully integrate DSS and geographic information; and 4) tools to tightly coordinate the management of concurrent paper and electronic archives of DSS data.

描述（由申请人提供）：大部分非洲正在经历急剧的流行病学转变，通过持续改善传统传统疾病的管理，同时爆炸的HIV和TB流行病，疟疾的持续影响，以及SWIFT的持续影响以及SWIFT在慢性非传播性疾病的普遍性上增加。可悲的是，很少有代表性，可靠的数据能够照亮这些显着的变化，或者更重要的是指导设计和衡量旨在改善情况的干预措施的影响。一组快速增长的人口监视系统（DSS）站点正在收集有价值的基于人群的纵向数据，描述了这种流行病学转变的健康和社会维度，非洲大约20个非洲的DSS站点也进行了基于人群的健康干预测试和药物试验。这个数据构建和数据使用项目符合DSS站点的内在网络的长期计划，该计划的总体目标是使DSS站点生成的独特而有价值的健康和人口数据广泛可用，并代表较大人口的人群，这些人群与设计干预措施和制定政策更相关。加上持续的几个非洲和亚洲DSS站点中相同物理和认知功能模块的飞行员，该项目促进了一个设想的对非洲成人健康和衰老的多站点研究的基础。该项目的具体目的是开发，原型和试点：1）DSS数据定义和管理的标准，2）政策，程序和技术，从一个或多个DSS站点中获得数据，以广泛可用信息以及5）管理DSS数据的并发纸张和电子档案的方法。南非的Agincourt人口和健康监视系统现场为该试点项目提供了自愿参加，并致力于使用该项目开发的工具和根据项目的一部分制定的政策，在项目结束时提供对其数据的访问权限。该项目的其他结果包括：1）技术，工具，政策和程序的试验原型，以广泛传播DSS数据； 2）原型例程，以计算DSS数据的标准度量； 3）设计和工具完全集成了DSS和地理信息； 4）工具以紧密协调DSS数据的并发纸张和电子档案的管理。