Interactive Outreach: CIS-Link to the Underserved

互动外展：CIS-Link 服务水平低下的人群

• 批准号: 7116331
• 负责人: RENA Joy PASICK
• 金额: $ 37.74万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-14 至 2008-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7116331
• 关键词: African American; Hispanic Americans; behavioral /social science research tag; caucasian American; clinical research; clinical trials; computer system design /evaluation; culture; educational resource design /development; educationally disadvantaged; focus groups; health care service availability; health care service utilization; health services research tag; human subject; information seeking behavior; interview; low socioeconomic status; medical outreach /case finding; medically underserved population; multilingualism; neoplasm /cancer; neoplasm /cancer education; public health; racial /ethnic difference

DESCRIPTION (provided by applicant): Interactive Outreach: CIS - Link to the Underserved (CIS-Link) Public hospital cancer patients, often of low socioeconomic status and diverse race/ethnicity (the "underserved"), have few options for understanding and managing their illness, and they are also underrepresented in clinical trials. The NCI's Cancer Information Service (CIS), a source of high-quality cancer information for the public, has gone largely unused by those most in need. To provide the missing link between the CIS and underserved cancer patients, this developmental study has 3 specific aims: 1. To increase use of the CIS by cancer patients who are traditionally underserved regarding cancer information and support: low SES and/or acculturation level African American, Hispanic, and White public hospital patients and their families through development of a culturally-appropriate, low-literacy, bilingual kiosk that provides a direct link to the CIS; 2. To adapt the CIS response for underserved patients through: a.) modification of the current CIS telephone response for low literacy and multiple cultures, and b.) development of a proactive telephone protocol to improve caller question asking skills, increase information efficacy, intent to adhere to treatment, and awareness of clinical trials; 3. To pilot test the kiosk and adapted CIS telephone protocols for feasibility and efficacy. This study consists of 2 phases. In Phase I, qualitative methods will be used to develop and pre-test kiosk video content and format. There will be two video content components: the cancer information component (basic information on cancer and/or treatments; specific content will be determined through formative research), and the CIS component (an introduction to the CIS encouraging use of the service and options for making contact). We will also adapt/develop culturally appropriate protocols for CIS staff through: i.) review of standard CIS training; ii.) prompted calls by patients to the CIS followed by patient and phone specialist interviews; and iii.) patient focus groups. In Phase II, a prototype kiosk will be pilot-tested at SFGH using observations, interviews, and tracking of calls to the CIS. Efficacy of the CIS protocols will be tested using pre- and post-call interviews of kiosk users. The conceptual framework is drawn from Subjective Culture, Anxiety/Uncertainty Management, and Social Learning theories.

描述（由申请人提供）：交互式外展：顺式 - 与服务不足的（CIS -LINK）公共医院癌症患者的联系，通常具有低社会经济地位和多样化的种族/种族/种族/种族/种族/种族（“服务不足”），几乎没有理解和管理疾病的选择，并且在临床试验中的占主导地位。 NCI癌症信息服务（CIS）是公众高质量癌症信息的来源，在很大程度上没有被最需要的人使用。 To provide the missing link between the CIS and underserved cancer patients, this developmental study has 3 specific aims: 1. To increase use of the CIS by cancer patients who are traditionally underserved regarding cancer information and support: low SES and/or acculturation level African American, Hispanic, and White public hospital patients and their families through development of a culturally-appropriate, low-literacy, bilingual kiosk that provides a direct link to the CIS; 2。通过以下方式适应服务不足的患者的CIS响应：）。 3。试点测试信息亭和改编的CIS电话协议，以确保可行性和功效。这项研究包括2个阶段。在第一阶段，定性方法将用于开发和预测试信息亭视频内容和格式。将有两个视频内容组成部分：癌症信息组成部分（有关癌症和/或治疗的基本信息；将通过形成性研究确定特定内容）和CIS组件（CIS的简介介绍了CIS的介绍，鼓励使用服务和选项来进行联系）。我们还将通过以下方式适应/制定适合CIS员工的文化适当方案：i。）对标准CIS培训的审查； ii。）提示患者打电话给CIS，然后进行患者和电话专家访谈；和iii。）患者焦点小组。在第二阶段，将使用观察，访谈和对CIS的呼叫进行观察，访谈和跟踪，在SFGH进行试验。 CIS协议的功效将使用信息亭用户的访谈前和呼叫后访谈进行测试。概念框架是由主观文化，焦虑/不确定性管理和社会学习理论所汲取的。