The ELSI of Genetic Testing in the Workplace

工作场所基因检测的 ELSI

• 批准号: 6952933
• 负责人: Paul W Brandt-Rauf
• 金额: $ 8.05万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-05 至 2007-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6952933
• 关键词: clinical research; ethics; focus groups; genetic screening; health related legal; human subject; occupational health /safety; physicians; questionnaires; social change; work site

The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-health care setting, namely the workplace. Genetic technology in the form of genetic testing of workers is already being used in the workplace, and its use can be expected to grow over time. Recent examples that have come to regulatory attention have cast doubt on the ability of the occupational health work force to adequately deal with this issue in ways that best insure worker health and safety and are in the best interests of the workers and society. It is likely that occupational medicine physicians are directly involved in the development and implementation of employer policies regarding the use of such genetic technology in the workplace, as well as the interpretation and control of the resulting information. Therefore, it is critical to understand how occupational medicine physicians are employing this technology and to ensure that they are well-informed of the ethical, legal and social implications of its use. Thus, in this project, we propose to survey occupational medicine physicians to determine the extent of their use of genetic testing in the workplace and their level of knowledge and concern regarding the ethical, legal and social implications of such testing. The results of this study will provide information that will have direct utility in the development, implementation and evaluation of appropriate educational interventions targeting occupational medicine physicians in subsequent proposals. This is therefore a necessary first step in anticipating, analyzing and addressing the potentially adverse ethical, legal and social effects arising from the expanded uses of emerging genetic technologies in the workplace.

该提案的目的是开始预测，分析和解决在关键的非健康护理环境中使用新的遗传信息和技术的道德，法律和社会含义，即工作场所。工人基因检测形式的遗传技术已经在工作场所使用，并且预计其使用将随着时间的推移而增长。最近引起监管关注的示例引起了人们对职业卫生劳动力充分处理此问题的能力的怀疑，以最好的方式确保工人的健康和安全，并符合工人和社会的最大利益。职业医学医师可能直接参与了有关在工作场所使用这种遗传技术的制定和实施政策，以及对所得信息的解释和控制。因此，重要的是要了解职业医学医师如何采用这项技术，并确保他们对其使用的道德，法律和社会影响有很好的信息。因此，在这个项目中，我们建议调查职业医学医师，以确定他们在工作场所中使用基因检测的程度，以及他们对这种测试的道德，法律和社会含义的知识水平和关注。这项研究的结果将提供有关在随后的建议中针对职业医学医师的适当教育干预措施的开发，实施和评估中直接实用的信息。因此，这是预期，分析和解决因工作场所中新兴遗传技术扩大的使用而产生的潜在不利道德，法律和社会影响的必要第一步。