Dynamic Assessment of Pediatric Health and Functioning

儿科健康和功能的动态评估

• 批准号: 6918050
• 负责人: JOHN E WARE
• 金额: $ 9.36万
• 依托单位: QUALITYMETRIC, INC.
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-07-01 至 2007-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6918050
• 关键词: Internet; adolescence (12-20); behavioral /social science research tag; caregivers; child (0-11); child with disability; chronic disease /disorder; clinical research; computer human interaction; computer program /software; computer system design /evaluation; data collection methodology /evaluation; focus groups; functional ability; health; human data; human subject; parents; pediatrics; psychological adaptation; quality of life; questionnaires; role; social behavior

DESCRIPTION (provided by the applicant): Background: There is an urgent need to develop a practical yet precise system to measure health status for children with chronic health conditions across a continuum of medical care settings and services. This planning grant will be used to resolve conceptual, sampling, and data collection issues in order to develop a generic, norm-based computer adapted testing (CAT) system for measuring health and functioning for children and youth. The specific aims of this planning grant are to: (1) develop a consensus conceptual framework, construct definitions, and specific item content for a broad conceptualization of health that includes multiple domains of physical functioning, psychological well-being and social and role participation (represented here by "health status"); (2) demonstrate the ability to collect item pool data on the Internet from both caregivers and children; (3) build a prototype web-based Pediatric Health Status CAT; and (4) evaluate the feasibility, efficiency and accuracy of a prototype web-based Pediatric Health Status CAT. Research Design and Methods: The investigative team, which includes experts in CAT technology, clinical pediatrics, and instrument development, will guide a team of content specialists in developing consensus definitions of concepts through a series of parent and child focus groups, review of existing child health measures, secondary analyses of child health data from three sources - the Pediatric Evaluation of Disability Inventory (PEDI), Child Health Questionnaire (CHQ), and RAND Health Insurance Experiment (HIE) databases; and expert panel consensus meetings. In year 2, the PIs will explore strategies to collect item pool data from a representative sample of caregivers and children via a web based data collection portal and identify any effects of sampling bias on the structure of the item pool. Item response theory and other statistical methods will be used to evaluate the structure of item pools, establish item calibrations, and create preliminary algorithms for a prototype CAT system. The accuracy and precision of CAT-based score estimates and reductions in respondent burden will be tested using computer simulations. In year 3, 100 caregivers/children will be recruited for a field study to evaluate the feasibility, efficiency and accuracy of a prototype Pediatric CAT. Significance: In order to build a norm-based CAT for children, one needs to find an inexpensive means to link content and cross-calibrate scores across instruments and to norm items in large samples of children with and without chronic health conditions. By demonstrating the utility of the Internet to build and administer a web-based CAT system, one can take advantage of the efficiencies it offers to construct a fully developed norm-based CAT system in future work. A web based CAT used to assess pediatric health and functioning may eliminate the current fragmentation of widely-used generic instruments used across age and diagnostic groups and achieve a substantial improvement in measurement breadth and practicality as required for routine use of health status tools in medical research and practice.

描述（申请人提供）： 背景：迫切需要开发一个实用而精确的系统，以衡量在医疗环境和服务连续的慢性健康状况的儿童的健康状况。该计划赠款将用于解决概念，抽样和数据收集问题，以开发一种基于常规的计算机调整测试（CAT）系统，以衡量儿童和青少年的健康和功能。该计划赠款的具体目的是：（1）开发一个共识的概念框架，构造定义和特定项目内容，用于对健康的广泛概念化，其中包括身体功能，心理健康，社会和社会和角色参与的多个领域（在此代表“健康状况”）； （2）证明有能力从照顾者和儿童那里收集Internet上的项目池数据； （3）建立一个基于Web的原型儿科健康状况猫； （4）评估基于Web的原型儿科健康状况猫的可行性，效率和准确性。 Research Design and Methods: The investigative team, which includes experts in CAT technology, clinical pediatrics, and instrument development, will guide a team of content specialists in developing consensus definitions of concepts through a series of parent and child focus groups, review of existing child health measures, secondary analyses of child health data from three sources - the Pediatric Evaluation of Disability Inventory (PEDI), Child Health Questionnaire (CHQ), and RAND Health Insurance Experiment (HIE)数据库；和专家小组共识会议。在第二年，PIS将通过基于Web的数据收集门户网站探索从具有代表性的护理人员和儿童的代表性样本中收集项目池数据的策略，并确定采样偏差对项目池结构的任何影响。项目响应理论和其他统计方法将用于评估项目池的结构，建立项目校准并为原型CAT系统创建初步算法。将使用计算机模拟测试受访者负担的基于CAT的得分估计和减少的准确性和精度。在第3年，将招募100名护理人员/儿童进行现场研究，以评估原型小儿猫的可行性，效率和准确性。 意义：为了为儿童建造基于规范的猫，需要找到一种廉价的手段，以将内容和跨仪器的分数连接起来，并在具有和没有慢性健康状况的大型儿童样本中进行跨越的分数。通过展示互联网构建和管理基于Web的CAT系统的实用性，可以利用它在未来工作中构建完全开发的基于规范的CAT系统所提供的效率。用于评估儿科健康和功能的基于网络的猫可能会消除当前在年龄和诊断组中使用广泛使用的通用仪器的分裂，并在医疗研究和实践中常规使用健康状况工具所需的测量范围和实用性方面取得了重大改进。