Youth and Parent Knowledge of Diabetes Complications

青少年和家长对糖尿病并发症的了解

• 批准号: 6948280
• 负责人: Tim Wysocki
• 金额: $ 8.61万
• 依托单位: NEMOURS CHILDREN'S CLINIC
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-15 至 2009-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6948280
• 关键词: adolescence (12-20); anxiety; child health care personnel; clinical research; communication; conflict; coping; decision making; diabetes education; diabetes mellitus therapy; disease /disorder proneness /risk; focus groups; health surveys; human subject; insulin dependent diabetes mellitus; medical complication; middle childhood (6-11); parent offspring interaction; patient oriented research; psychological adaptation; social adjustment; therapy compliance

DESCRIPTION (provided by applicant): Youth with type 1 diabetes mellitus (DM1) face long-term risks of microvascular (e.g. retinopathy, nephropathy, neuropathy) and macrovascular (e.g. cardiovascular disease) complications of the disease. Little is known about patients' and parents' knowledge of these, complications, how they acquire this information and how they cope with it. Insufficient or erroneous knowledge about these risks may predispose patients and parents to unfavorable psychological adjustment to DM1. Studies of healthy adolescents suggest that their knowledge of other risks (e.g. reproductive health; AIDS; smokeless tobacco) is often inaccurate and incomplete. The proposed program of research could lead to developmentally-tailored provision of accurate information about these risks and empirically-validated guidance for parents to assist them in communicating with their children about this sensitive topic. These contributions might promote better psychological adjustment to DM1, better relationships among youth, parents and health professionals and more constructive motivation for DM1 self-management. The candidate for this Mid-Career Investigator Award in Patient-Oriented Research, Tim Wysocki, Ph.D., has a well-established program of clinical research into the psychological aspects of diabetes in youth and of mentoring in the context of that program. This award would allow the candidate to open this novel line of research while expanding his skills to include focus groups, qualitative and internet-based research methods. It would also enhance mentoring of several early-career pediatric psychologists who would participate in the design, implementation, analysis and dissemination of three sequential and cumulative studies addressing these issues. Study 1 is a qualitative analysis of focus group discussions among parents of youth with DM1 about their exposure to information about long-term complications of DM1. Study 2 is an e-mailed survey of health care professionals that would capture information on their practices, philosophy and decision-making regarding provision of information about these risks to parents and youth at various developmental and experiential stages. Study 3 is a cross-sectional study of parent and youth knowledge of long-term complications of DM1 and associations of that knowledge with measures of psychological adjustment, coping styles, diabetes-related anxiety, family communication and conflict about the disease, and diabetes treatment adherence. All of these studies have been designed and will be implemented with careful sensitivity to human subject protection issues. This research will provide substantial information about the optimal content, manner of presentation, source, and timing of the provision of information about the long-term complications of diabetes to youth with DM1 and their parents.

描述（由申请人提供）：患有1型糖尿病的青年（DM1）面临微血管的长期风险（例如视网膜病，肾病，神经病）和大型血管（例如心血管疾病）的疾病并发症。关于患者和父母的这些知识，并发症，他们如何获取这些信息以及如何应对这些信息，知之甚少。关于这些风险的不足或错误的了解可能会使患者和父母对DM1的心理调整不利。对健康青少年的研究表明，他们对其他风险的了解（例如生殖健康；艾滋病；无烟烟草）通常是不准确和不完整的。拟议的研究计划可能会导致有关这些风险的准确信息的开发规定，并为父母提供经验验证的指导，以帮助他们与孩子与孩子有关这个敏感的话题进行沟通。这些贡献可能会促进对DM1的更好的心理调整，青年，父母和卫生专业人员之间的更好关系，以及更具建设性的DM1自我管理动机。这项以患者为导向研究的中期研究者奖的候选人蒂姆·韦索基（Tim Wysocki）博士曾在该计划的背景下针对年轻人和指导的糖尿病的心理方面进行了良好的临床研究计划。该奖项将使候选人能够开放这项新颖的研究系列，同时扩大自己的技能，包括焦点小组，定性和基于互联网的研究方法。这还将加强对几位早期职业儿科心理学家的指导，他们将参与解决这些问题的三项顺序和累积研究的设计，实施，分析和传播。研究1是对DM1青年父母之间的焦点小组讨论的定性分析，内容涉及他们接触DM1长期并发症的信息。研究2是一封对医疗保健专业人员的电子邮件调查，该调查将获取有关其实践，理念和决策的信息，以提供有关这些风险在各种发展和体验阶段向父母和青年提供的信息的信息。研究3是对父母和青年对DM1的长期并发症的知识的横断研究，以及该知识与心理适应，应对方式，与糖尿病相关的焦虑，家庭交流和疾病的冲突以及糖尿病治疗治疗依从性的关联。所有这些研究均已设计，并将对人类受试者保护问题进行仔细的敏感性实施。这项研究将提供有关提供有关DM1及其父母青年的长期并发症的信息的最佳内容，表现方式，来源和时机的大量信息。