CAREGIVING: ADVANCED-STAGE ORGAN SYSTEM FAILURE PATIENTS

护理：晚期器官系统衰竭患者

• 批准号: 6944740
• 负责人: Sandra H. Berry
• 金额: $ 10.77万
• 依托单位: RAND CORPORATION
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-01 至 2008-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6944740
• 关键词: caregivers; chronic obstructive pulmonary disease; clinical research; congestive heart failure; coping; emotional adjustment; emotions; evaluation /testing; health care quality; health care service evaluation; human subject; multiple organ failure; nursing intervention; spouses

DESCRIPTION (provided by applicant): Recent advances in medical treatment protocols have resulted in significant numbers of people into old age with eventually fatal chronic illness and progressive disability. Changes in health policy have meant that the responsibility for much of the care of these individuals has been shifted onto family members. One large and growing category of patients with advanced eventually fatal chronic illness is that of organ system failure, particularly congestive heart failure (CHF) and chronic obstructive pulmonary disease (COPD). These individuals have an erratic and uncertain disease course that is characterized by periods of relative stability punctuated by periodic episodes of acute illness, set in the context of progressive slow decline. The experience of family caregivers of individuals with advanced CHF and COPD is likely to differ significantly from that of caregivers of individuals with other types of chronic illness, such as dementia. However, current caregiving research has not focused on caregivers of individuals with advanced CHF and COPD as a discrete group with particular situational needs. The purpose of the proposed study is to explore the various aspects of caregiving for individuals with advanced chronic CHF and COPD in order to understand the impact of caregivers' experience from the caregivers' perspective. The study aims are to identify and describe: 1) the factors that influence caregiver outcomes in caregiving to individuals with advanced chronic CHF and COPD; 2) common caregiving demands related to the distinct qualities and features of the illness trajectory for advanced chronic CHF and COPD, and 3) the areas of need for intervention that will improve the caregivers' experience in caring for individuals with advanced CHF and COPD. Data will be gathered by conducting a series of focus groups with caregivers for individuals with advanced CHF and COPD. Participants will be selected to ensure diversity and will be divided into groups of spouse and non-spouse caregivers for living and deceased individuals. Data analysis will include: 1) a description caregiver perceptions of the features and qualities of the caregiving experience and 2) systematic coding to identify characteristics and trends. The results will be compared to the experience, as documented in the literature, of caregivers of individuals with other chronic illness in order to identify similarities and differences that can inform the development of caregiver interventions specific to advanced chronic CHF and COPD.

描述（由申请人提供）：医疗方案的最新进展导致大量患者进入老年，最终致命的慢性病和进行性残疾。 卫生政策的变化意味着，这些人的许多照顾的责任已转移到家庭成员身上。 一类大型且不断增长的患者最终致命的慢性病是器官系统衰竭，尤其是充血性心力衰竭（CHF）和慢性阻塞性肺疾病（COPD）。 这些人的疾病病程不稳定，其特征是相对稳定性的周期，其周期性发作的急性疾病会刺激，这是基于进行性缓慢下降的背景。 患有高级CHF和COPD的人的家庭护理人员的经验可能与患有其他类型的慢性疾病（例如痴呆症）的人的照顾者有显着差异。 但是，当前的护理研究并未集中在具有高级CHF和COPD的个人的护理人员，这是一个有特殊情况需求的离散群体。 拟议的研究的目的是为患有高级慢性CHF和COPD的人探索护理的各个方面，以便从看护人的角度了解看护人的经历的影响。 该研究的目的是识别和描述：1）影响护理人员在护理人员中的因素，对患有晚期慢性CHF和COPD患者的个人； 2）与高级慢性CHF和COPD的疾病轨迹的不同品质和特征有关的常见护理需求，以及3）干预需要的领域，这些领域将改善护理人员在照顾患有高级CHF和COPD的人方面的经验。 数据将通过为患有高级CHF和COPD的个体的一系列焦点小组进行一系列焦点小组来收集数据。 将选出参与者以确保多样性，并将其分为配偶和非配偶护理人员，以供起死者和死者的个人。 数据分析将包括：1）描述护理人员对护理经验的特征和素质的看法以及2）系统编码以识别特征和趋势。 结果将与文献中的经验相提并论，这些经验是患有其他慢性疾病的人的护理人员，以确定可以告知高级慢性CHF和COPD的护理人员干预措施的相似之处和差异。