CAREGIVING: ADVANCED-STAGE ORGAN SYSTEM FAILURE PATIENTS

护理：晚期器官系统衰竭患者

• 批准号: 6944740
• 负责人: Sandra H. Berry
• 金额: $ 10.77万
• 依托单位: RAND CORPORATION
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-01 至 2008-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6944740
• 关键词: caregivers; chronic obstructive pulmonary disease; clinical research; congestive heart failure; coping; emotional adjustment; emotions; evaluation /testing; health care quality; health care service evaluation; human subject; multiple organ failure; nursing intervention; spouses

DESCRIPTION (provided by applicant): Recent advances in medical treatment protocols have resulted in significant numbers of people into old age with eventually fatal chronic illness and progressive disability. Changes in health policy have meant that the responsibility for much of the care of these individuals has been shifted onto family members. One large and growing category of patients with advanced eventually fatal chronic illness is that of organ system failure, particularly congestive heart failure (CHF) and chronic obstructive pulmonary disease (COPD). These individuals have an erratic and uncertain disease course that is characterized by periods of relative stability punctuated by periodic episodes of acute illness, set in the context of progressive slow decline. The experience of family caregivers of individuals with advanced CHF and COPD is likely to differ significantly from that of caregivers of individuals with other types of chronic illness, such as dementia. However, current caregiving research has not focused on caregivers of individuals with advanced CHF and COPD as a discrete group with particular situational needs. The purpose of the proposed study is to explore the various aspects of caregiving for individuals with advanced chronic CHF and COPD in order to understand the impact of caregivers' experience from the caregivers' perspective. The study aims are to identify and describe: 1) the factors that influence caregiver outcomes in caregiving to individuals with advanced chronic CHF and COPD; 2) common caregiving demands related to the distinct qualities and features of the illness trajectory for advanced chronic CHF and COPD, and 3) the areas of need for intervention that will improve the caregivers' experience in caring for individuals with advanced CHF and COPD. Data will be gathered by conducting a series of focus groups with caregivers for individuals with advanced CHF and COPD. Participants will be selected to ensure diversity and will be divided into groups of spouse and non-spouse caregivers for living and deceased individuals. Data analysis will include: 1) a description caregiver perceptions of the features and qualities of the caregiving experience and 2) systematic coding to identify characteristics and trends. The results will be compared to the experience, as documented in the literature, of caregivers of individuals with other chronic illness in order to identify similarities and differences that can inform the development of caregiver interventions specific to advanced chronic CHF and COPD.

描述（由申请人提供）：医疗方案的最新进展导致大量人进入老年，最终患上致命的慢性疾病和进行性残疾。 卫生政策的变化意味着照顾这些人的大部分责任已转移到家庭成员身上。 患有晚期最终致命慢性疾病的一大类且不断增长的患者是器官系统衰竭患者，特别是充血性心力衰竭（CHF）和慢性阻塞性肺疾病（COPD）。 这些人的病程不稳定且不确定，其特点是相对稳定的时期，中间夹杂着急性疾病的周期性发作，并且是在进行性缓慢衰退的背景下进行的。 晚期 CHF 和 COPD 患者的家庭护理人员的经历可能与患有其他类型慢性病（例如痴呆症）患者的护理人员的经历有很大不同。 然而，当前的护理研究并未将晚期 CHF 和 COPD 患者的护理人员作为具有特定情况需求的离散群体来关注。 拟议研究的目的是探索晚期慢性 CHF 和 COPD 患者护理的各个方面，以便从护理人员的角度了解护理人员经验的影响。 该研究的目的是确定和描述：1）影响晚期慢性 CHF 和 COPD 患者护理结果的因素； 2) 与晚期慢性 CHF 和 COPD 疾病轨迹的独特品质和特征相关的常见护理需求，以及 3) 需要干预的领域，以改善护理人员护理晚期 CHF 和 COPD 患者的经验。 将通过与护理人员针对晚期 CHF 和 COPD 患者开展一系列焦点小组活动来收集数据。 将选择参与者以确保多样性，并将分为在世和已故个人的配偶和非配偶照顾者组。 数据分析将包括：1) 描述护理人员对护理体验的特征和质量的看法；2) 系统编码以识别特征和趋势。 结果将与文献中记录的其他慢性病患者的护理人员的经验进行比较，以确定相似之处和差异，从而为制定针对晚期慢性 CHF 和 COPD 的护理人员干预措施提供信息。