Tailoring an Intervention for African-American Caregiver

为非裔美国护理人员量身定制干预措施

• 批准号: 6667178
• 负责人: JAMES C COYNE
• 金额: $ 15.85万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2005-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6667178
• 关键词: African American; behavioral /social science research tag; cancer rehabilitation /care; caregivers; clinical research; coping; culture; health care model; health care service evaluation; health care service utilization; health services research tag; home health care; human subject; interview; outcomes research; social support network; socioenvironment

DESCRIPTION (provided by applicant): Interventions for caregivers of cancer patients tend to reflect professionals' assumptions, and may not address caregivers' needs and interests. As a result, uptake of services is typically low, important issues are missed, and interventions often exclude many of those most in need. These problems are likely amplified when interventions designed for one sociocultural group are applied to another group. This project starts with an existing and tested intervention for caregivers of cancer patients from the broader population, and works to ensure its applicability and ease of use for a predominantly African American community by revising the content and methods of delivery based on input from caregivers in the West Philadelphia area. Our overarching goal is to ensure that the intervention is made acceptable, accessible, and responsive to the needs of low- and middle-income African Americans. We assume that the success of an intervention begins in its design, and that effectiveness in "real world" settings is determined by both efficacy and acceptance by those who are the targets of an intervention. This acceptance depends on accommodating the needs of those to be served and on overcoming barriers to participation. Further, design of an intervention that meets the needs of a particular target population should directly involve representatives of that population. This project will progress through two distinct phases. In the first phase, caregivers will experience the existing intervention and participate in focus groups or in-home semi-structured interviews. The specific aim of this phase is to develop culturally competent content in terms of the problems addressed and the solutions promoted in the intervention. The second phase incorporates the content refinements developed during the first phase into two alternative modes of delivery: community-based group intervention, and a combination of home-visit and telephone follow-ups. The experience of recipients choosing either of these interventions will again be assessed and results will used to further refine the intervention and its delivery. Beyond its specific aims, this project is intended to serve as a model strategy for the design and development of psychosocial interventions which have greater uptake and usefulness because they are responsive to the needs and preferences of potential consumers, and help overcome the barriers to participation that these individuals face.

描述（由申请人提供）：针对癌症患者护理人员的干预措施往往反映专业人士的假设，并且可能无法满足护理人员的需求和兴趣。因此，服务的使用率通常较低，重要问题被忽视，干预措施往往将许多最需要的人排除在外。当为一个社会文化群体设计的干预措施应用于另一群体时，这些问题可能会放大。该项目从针对更广泛人群的癌症患者护理人员的现有且经过测试的干预措施开始，并根据护理人员的意见修改交付内容和方法，努力确保其对以非裔美国人为主的社区的适用性和易用性。西费城地区。 我们的首要目标是确保干预措施能够被接受、易于获得并满足中低收入非裔美国人的需求。我们假设干预措施的成功始于其设计，而“现实世界”环境中的有效性取决于干预目标人群的有效性和接受程度。这种接受取决于满足服务对象的需求并克服参与障碍。此外，满足特定目标人群需求的干预措施的设计应直接涉及该人群的代表。 该项目将经历两个不同的阶段。在第一阶段，护理人员将体验现有的干预措施并参加焦点小组或家庭半结构化访谈。此阶段的具体目标是根据干预中所解决的问题和促进的解决方案开发具有文化竞争力的内容。第二阶段将第一阶段开发的内容细化纳入两种替代的交付模式：基于社区的团体干预以及家访和电话随访相结合。将再次评估接受者选择这些干预措施的经验，结果将用于进一步完善干预措施及其实施。除了其具体目标之外，该项目还旨在作为设计和开发心理社会干预措施的模型策略，这些干预措施具有更大的吸收率和实用性，因为它们响应潜在消费者的需求和偏好，并有助于克服参与障碍这些人面临的。