Crowdsourcing for adolescent health: development and evaluation of a tool to collect data on the state and determinants of adolescent physical health

青少年健康众包：开发和评估收集青少年身体健康状况和决定因素数据的工具

• 批准号: MR/X029050/2
• 负责人: Andrew James Williams
• 金额: $ 13.94万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FX029050%2F2
• 关键词: Crowdsourcing; adolescent; health; development; evaluation

While growing up through adolescence and going on to get work we develop behaviours, like how much we exercise or eat, that impact on the rest of our lives. Research is needed to help us understand what behaviours change our health for better or worse, and what influences those behaviours. Some behaviours are easier to measure, and we even have technology in our phones that can count how many steps we do each day. However, other behaviours are more difficult to measure, they might be embarrassing or harder for people to explain because they relate to feelings. We think it's important that people can record things at the time they happen (rather trying to recall them later). Health researchers need to be able to collect several types of data from people as they go about their lives, and it has been recommended that smartphone apps might be a way to do this.Apps have been used in research to help us understand different diseases like COVID but in apps like these, people have a reason to pick up the phone and use it - they get a very clear benefit from it. So, we need to explore the reasons a teenager would use a health app. We have already heard from young people taking part in our own research or other studies that they use apps to track physical activity, diet, and periods, for example. Parents have also told us that tracking health is a good use of a phone for teenagers. We want to know if people would be motivated to use the app to report when something makes their health better or worse, or changes their behaviour. Our idea is that by sharing information with other young people about places or situations that improve or reduce their health, young people will become citizen scientists. The information collected becoming evidence to share with people who make decisions like head teachers or politicians, so that the places or situations improve, and everyone can be healthier.We will also make sure that the app is easy and quick to use, only asking appropriate questions. The app will need to keep the information private and safely share the data with researchers. During the project we will develop these different features of the app with young people and parents to make sure it fits with what people want and would use, being fun where appropriate but also serious and reassuring where required - we understand that health data is important to people and we want people to feel comfortable using this app. We will start by working with small groups of young people from different places and backgrounds to make sure the app works for lots of people. Eventually we will run big tests of the app with schools and communities. Events will be organised for lots of young people to share their thoughts and ideas, called hack-a-thons and design jams, helping to design the app. Young people will also decide on a name for the app. The app will then be used in research studies to help us learn how to help improve health. The young people themselves will also be scientists able to review and use their own data to improve their health and wellbeing, and make where they live, study and work healthier places.

在青春期成长并继续工作的过程中，我们会养成一些行为，例如锻炼或饮食的量，这些行为会影响我们的余生。需要研究来帮助我们了解哪些行为会改善或恶化我们的健康，以及是什么影响这些行为。有些行为更容易测量，我们的手机甚至有技术可以计算我们每天走了多少步。然而，其他行为更难以衡量，它们可能会令人尴尬或更难解释，因为它们与感受有关。我们认为，人们能够在事情发生时记录下来（而不是事后试图回忆起来），这一点很重要。健康研究人员需要能够在人们的生活中收集多种类型的数据，有人建议智能手机应用程序可能是实现这一目标的一种方式。应用程序已被用于研究中，以帮助我们了解不同的疾病，例如面对新冠疫情，但在此类应用程序中，人们有理由拿起手机并使用它——他们从中获得了非常明显的好处。因此，我们需要探讨青少年使用健康应用程序的原因。例如，我们已经从参与我们自己的研究或其他研究的年轻人那里听说，他们使用应用程序来跟踪身体活动、饮食和经期等。家长还告诉我们，对于青少年来说，追踪健康状况是手机的一个很好的用途。我们想知道当某些事情使他们的健康状况变得更好或更糟，或者改变他们的行为时，人们是否会有动力使用该应用程序进行报告。我们的想法是，通过与其他年轻人分享有关改善或降低健康的地点或情况的信息，年轻人将成为公民科学家。收集到的信息将成为证据，与校长或政治家等做出决策的人分享，以便改善地方或情况，让每个人都变得更健康。我们还将确保该应用程序易于使用且快速，只需提出适当的要求问题。该应用程序需要保密信息并与研究人员安全地共享数据。在项目期间，我们将与年轻人和家长一起开发该应用程序的这些不同功能，以确保它符合人们的需求和使用方式，在适当的情况下有趣，但在需要的情况下也很严肃和令人放心 - 我们知道健康数据对于人们，我们希望人们能够放心地使用这个应用程序。我们将首先与来自不同地方和背景的一小群年轻人合作​​，以确保该应用程序适用于很多人。最终我们将与学校和社区一起对该应用程序进行大规模测试。将为许多年轻人组织一些活动，以分享他们的想法和想法，称为黑客马拉松和设计果酱，帮助设计应用程序。年轻人还将决定该应用程序的名称。然后，该应用程序将用于研究，帮助我们了解如何帮助改善健康。年轻人本身也将成为科学家，能够审查和使用自己的数据来改善他们的健康和福祉，并使他们的生活、学习和工作场所变得更健康。