PIONEER - Health Data Research Hub for Acute Care

PIONEER - 急症护理健康数据研究中心

基本信息

批准号：
MC_PC_21015
负责人：
Elizabeth Sapey
金额：
$ 76.12万
依托单位：
University Hospitals Birmingham NHS Foundation Trust
依托单位国家：
英国
项目类别：
Intramural
财政年份：
2021
资助国家：
英国
起止时间：
2021 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=MC_PC_21015
关键词：
PIONEER Health Data Research Hub

项目摘要

PIONEER aims to improve healthcare pathways and treatments by understanding the symptoms and diseases people have when they become unwell: whether they had been to hospital or other healthcare providers before with the same problems; the time it took to make a diagnosis; and the care they received. PIONEER enhances public trust in health data use, working with patients, the public and other stakeholders to ensure that governance of data access is transparent and in the public interest. PIONEER is commited to communicating these principles effectively to improve understanding, and raise the profile of, the value of health data research. PIONEER is improving the quality and accuracy of acute care health data by: working with healthcare providers; providing a secure and scalable data environment; and placing patients and the public at the heart of all data sharing decisions. PIONEER brings scale and efficiency to dataset aggregation and curation of anonymised routinely collected data relevant to unplanned and acute health care. PIONEER makes these datasets discoverable and appropriately accessible to research organisations, NHS bodies and those who are conducting innovation activities which will lead to direct patient benefit. PIONEER provides an environment of cross-sector collaboration with strong relationships between patients, the public, NHS, industry and academic researchers to support research, development and innovation.

先驱者旨在通过了解人们不适时患有症状和疾病来改善医疗保健途径和治疗方法：无论他们去过医院还是其他医疗保健提供者，他们都有同样的问题；诊断所需的时间；以及他们收到的照顾。先锋增强了公众对健康数据使用的信任，与患者，公众和其他利益相关者合作，以确保数据访问的治理是透明的，并且符合公共利益。先驱者致力于有效地传达这些原则，以提高理解和提高健康数据研究价值的概况。先锋通过：与医疗保健提供者合作提高急性护理健康数据的质量和准确性；提供安全可扩展的数据环境；并将患者和公众置于所有数据共享决策的核心。先锋将规模和效率带入了与计划外和急性医疗保健相关的匿名收集数据的数据集聚合和策划。先锋使这些数据集可发现，并可以适当地访问研究组织，NHS机构以及正在进行创新活动的人，这将导致直接的患者利益。 Pioneer提供了跨部门合作的环境，该环境与患者，公众，NHS，行业和学术研究人员之间的牢固关系，以支持研究，发展和创新。

项目成果

期刊论文数量（10）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Considerations for patient and public involvement and engagement in health research

DOI：
10.1038/s41591-023-02445-x
发表时间：
2023-07-20
期刊：
NATURE MEDICINE
影响因子：
82.9
作者：
Aiyegbusi，Olalekan Lee;McMullan，Christel;Wraith，David C.
通讯作者：
Wraith，David C.

Small airway function measured using forced expiratory flow between 25% and 75% of vital capacity and its relationship to airflow limitation in symptomatic ever-smokers: a cross-sectional study.

DOI：
10.1136/bmjresp-2022-001385
发表时间：
2022-10
期刊：
BMJ open respiratory research
影响因子：
4.1
作者：
通讯作者：

Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff.

DOI：
10.1186/s40900-021-00281-2
发表时间：
2021-06-14
期刊：
Research involvement and engagement
影响因子：
0
作者：
Atkin C;Crosby B;Dunn K;Price G;Marston E;Crawford C;O'Hara M;Morgan C;Levermore M;Gallier S;Modhwadia S;Attwood J;Perks S;Denniston AK;Gkoutos G;Dormer R;Rosser A;Ignatowicz A;Fanning H;Sapey E;PIONEER Data Hub
通讯作者：
PIONEER Data Hub

The diagnosis of asthma. Can physiological tests of small airways function help?