ISCF HDRUK DIH Sprint Exemplar: PED4PED - People with Epilepsy sharing Data for care with Paramedics and the Emergency Department

ISCF HDRUK DIH Sprint 示例：PED4PED - 癫痫患者与护理人员和急诊科共享护理数据

• 批准号: MC_PC_18035
• 负责人: Anthony Marson
• 金额: $ 27.32万
• 依托单位: University of Liverpool
• 依托单位国家: 英国
• 项目类别: Intramural
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MC_PC_18035
• 关键词: ISCF; HDRUK; DIH; Sprint; Exemplar

Epilepsy is one of many chronic diseases (e.g. diabetes, asthma, mental health conditions) that can have acute exacerbations requiring urgent care. When an ambulance is called for someone that has had a seizure, paramedics do not have access to information that can inform acute management: diagnosis, usual seizure type, rescue medication protocol, place of safety or next of kin. As a result many patients are taken to the emergency department (ED) unnecessarily. Similarly, staff in the ED do not have access to this information, resulting in unnecessary admissions, investigations and potential treatment errors.Together with paramedics, patients, neurologists and ED representatives, we have identified a core dataset that should be available to paramedics and ED staff. Core data items are held in the Neurology EPR (diagnosis and management), primary care (prescribing), ED (previous attendances), ambulance (999 calls). Mersey and Cheshire STP have created a health information exchange (e-Xchange) linking the NHS partners, and along with Lancashire and South Cumbria STP has been awarded a second wave LHCRE, Share2Care. We will build on e-Xchange and Share2Care, working with Forcare, to make core data available to paramedics and ED staff, to improve outcomes for patients and the health service.

癫痫是许多慢性疾病（例如糖尿病、哮喘、精神健康状况）之一，可能会急性发作，需要紧急护理。当为癫痫发作的人叫救护车时，护理人员无法获得可以为紧急处理提供信息的信息：诊断、通常的癫痫类型、救援药物方案、安全地点或近亲。结果，许多患者不必要地被送往急诊室 (ED)。同样，急诊室的工作人员无法访问这些信息，从而导致不必要的入院、调查和潜在的治疗错误。我们与护理人员、患者、神经科医生和急诊室代表一起确定了一个应可供护理人员和急诊室使用的核心数据集职员。核心数据项保存在神经病学 EPR（诊断和管理）、初级保健（处方）、ED（既往就诊）、救护车（999 呼叫）中。默西郡和柴郡 STP 创建了一个连接 NHS 合作伙伴的健康信息交换 (e-Xchange)，并且与兰开夏郡和南坎布里亚郡 STP 一起获得了第二波 LHCRE（Share2Care）。我们将在 e-Xchange 和 Share2Care 的基础上，与 Forcare 合作，向护理人员和急诊室工作人员提供核心数据，以改善患者和医疗服务的结果。