Understanding and addressing loneliness in people with chronic obstructive pulmonary disease

了解和解决慢性阻塞性肺疾病患者的孤独感

基本信息

批准号：
ES/X005259/1
负责人：
Lisa Brighton
金额：
$ 14.27万
依托单位：
King's College London
依托单位国家：
英国
项目类别：
Fellowship
财政年份：
2022
资助国家：
英国
起止时间：
2022 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FX005259%2F1
关键词：
Understanding addressing loneliness people chronic

项目摘要

Chronic Obstructive Pulmonary Disease (COPD) is a common lung condition, affecting over three million people in the UK[1] and over 325 million people worldwide[2]. Common and disabling symptoms include breathlessness, cough and fatigue, which increasingly limit individuals' daily activities[3], and contribute to social isolation and loneliness[4]. Related to this, people with COPD are at increased risk of depression[5], and have almost twice the odds of dying by suicide than someone without the disease[6]. While medications, vaccinations, exercise- and self-management interventions can help people with COPD to manage their condition, the disease and its symptoms worsen over time there is currently no cure. Psychosocial support for people with COPD as they live and die with this disease is an essential clinical priority, yet there is still a lack of research in this area.Throughout my PhD project I worked with people with COPD and frailty, and loneliness was raised a common concern by both research participants and service user representatives. For example, when exploring experiences of frailty and rehabilitation services[7], participants emphasised feelings of loneliness as their declining health limited their day-to-day activities, and how they often missed the social aspects of group rehabilitation when their programme came to an end. As I collaborated with additional service users to design a new approach, they again highlighted the need to address, and measure, social outcomes. While these influences led to a heightened focus on loneliness within my PhD work about COPD and frailty, it was clear that dedicated research is needed to fully address this important unmet need.People with COPD have described feeling isolated and lonely in previous interview studies [7-10], and although population data is currently limited, it appears between 10-35% [11, 12] of people with COPD may be experiencing loneliness. People with chronic respiratory disease are likely at particular risk of loneliness: they face a shrinking social world due to the impacts of their symptoms on mobility. This is compounded by societal issues of stigma and shame due to perceptions of their illness as 'self-inflicted' and more recently negative public reactions to symptoms like cough due to associations with Covid-19[13]. Given evidence outside of lung disease showing that loneliness is associated with worse physical and psychological health, including putting people at higher risk of suicidal thoughts and behaviours[14], plus economic consequences due to lost productivity and increased healthcare utilisation[15], addressing these concerns is of upmost importance to society. Within this fellowship, I aim to use the findings of my PhD as a bridge to a new, essential programme of work around loneliness and the wider psychosocial health of people with COPD. To consolidate my PhD and strengthen potential impact of this future work, my first two objectives are to improve my knowledge and research skills to support a future research career at the interface of psychology and respiratory health (objective 1), and to strengthen current and future impact opportunities through dissemination and networking with diverse stakeholders in respiratory psychology (objective 2). Activities to support these objectives include: structured training courses in behavioural science and statistics, mentoring by a health psychologist, a visit to international respiratory psychology experts, academic dissemination and networking through publications and conferences, and creating outputs specifically for policy-makers and the public. Alongside this, I will conduct further limited research on the role of loneliness in the physical and mental health of people with COPD through a secondary analysis of my PhD interview data (objective 3), and develop a competitive funding proposal to progress research in this area (objective 4).

慢性阻塞性肺疾病（COPD）是一种常见的肺部病，在英国影响超过300万人[1]和全球超过3.25亿人[2]。常见和残疾的症状包括呼吸困难，咳嗽和疲劳，这些症状越来越限制个人的日常活动[3]，并有助于社会隔离和孤独[4]。与此相关的是，患有COPD的人的抑郁症风险增加[5]，几乎是没有疾病的人的死亡几率[6]。尽管药物，疫苗接种，运动和自我管理干预措施可以帮助患有COPD的人管理其病情，但随着时间的流逝，疾病及其症状恶化，目前无法治愈。对患有COPD患者生活和死亡这种疾病的人的心理社会支持是重要的临床重点，但在这个领域仍然缺乏研究。通过我的博士学位项目，我与COPD和脆弱的人一起工作，研究参与者和服务用户代表都引起了人们的共同关注。例如，当探索脆弱和康复服务的经历[7]时，参与者强调孤独感是因为他们的健康限制了他们的日常活动，以及他们如何在计划结束时经常错过团体康复的社会方面。当我与其他服务用户合作设计一种新方法时，他们再次强调了解决和衡量社会成果的需求。尽管这些影响导致我在我的博士学位工作中对孤独感的关注更加关注，但很明显，需要专门的研究来充分满足这一重要的未满足的需求。COPD的人描述了先前的访谈研究中的孤立和孤独的研究[7-10]，尽管目前有限的人口数据在10-35％[11，12]之间出现在Copd poccopd中，但可能会经验丰富。患有慢性呼吸系统疾病的人可能会特别有孤独的风险：由于症状对流动性的影响，他们面临着越来越多的社会世界。由于对他们的疾病的看法为“自我造成的”，以及最近由于与Covid-19的伴侣的症状，污名和羞耻的社会问题更加复杂。鉴于肺部疾病之外的证据表明，孤独感与身体健康和心理健康差有关，包括使人们处于自杀思想和行为的风险更高的风险[14]，以及由于生产力失去和医疗保健利用而造成的经济后果[15]，解决这些问题对社会至关重要。在这一奖学金中，我的目标是将我的博士学位的发现作为围绕孤独和COPD患者更广泛的社会心理健康的新的，重要的工作计划的桥梁。为了巩固我的博士学位并增强未来工作的潜在影响，我的前两个目标是提高我的知识和研究技能，以支持心理学和呼吸健康界面的未来研究职业（目标1），并通过与呼吸心理学中的多样化利益相关者的分发和网络来增强当前和未来的影响机会（目标2）。支持这些目标的活动包括：行为科学和统计学的结构化培训课程，由健康心理学家的指导，访问国际呼吸心理学专家，通过出版物和会议的学术传播和网络，以及针对政策制定者和公众的创造成果。除此之外，我将通过对我的博士学位访谈数据（目标3）的次要分析（目标3）进行二次分析，对孤独感在患有COPD的人的身心健康中的作用进一步有限的研究（目标4）（目标4）。

项目成果

期刊论文数量（6）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Meditative movement for breathlessness in advanced COPD or cancer: a systematic review and meta-analysis.

DOI：
10.1183/16000617.0243-2022
发表时间：
2023-06-30
期刊：
European respiratory review : an official journal of the European Respiratory Society
影响因子：
0
作者：
通讯作者：

Development and implementation of the lung volume reduction pulmonary rehabilitation tool to identify eligibility for lung volume reduction in people with chronic obstructive pulmonary disease during pulmonary rehabilitation.

DOI：
10.1177/14799731231198863
发表时间：
2023-01
期刊：
CHRONIC RESPIRATORY DISEASE
影响因子：
4.1
作者：
Buttery, Sara C.;Williams, Parris J.;Brighton, Lisa J.;Batista, Craig;Dewar, Amy;Hogg, Lauren;Ingram, Karen;Korff, Gemma;Koulopoulou, Maria;Lammin, Helen;Maddocks, Matthew;Mcdonnell, Lynn;Mehta, Bhavin;Meyrick, Victoria;Pritchard, Lisa;Smith, Oliver;Trivedi, Puja;Lawson, Rod A.;Hopkinson, Nicholas S.
通讯作者：
Hopkinson, Nicholas S.

What is Frailty?