Centre for Administrative Data Research and Evaluation (CADRE) - an ESRC Administrative Data Research Centre

行政数据研究与评估中心 (CADRE) - ESRC 行政数据研究中心

• 批准号: ES/L007444/1
• 负责人: David Ford
• 金额: $ 1064.76万
• 依托单位: Swansea University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2013
• 资助国家: 英国
• 起止时间: 2013 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FL007444%2F1
• 关键词: Centre; Administrative; Data; Research; Evaluation

Administrative data is the term used to refer to the datasets collected by the Government and other public bodies which, amongst other things, is used to generate information to guide policy and the development of public services. Some examples are the Census and National Household Surveys, and datasets about education, health and social services, employment and benefits, crime, housing, the environment and the economy. These datasets hold great value for research, especially if they are linked together. However, as information about individuals is very sensitive, it must be very carefully managed so that it is anonymous, safe and secure, and used only in the public interest by approved researchers. Data linkage research is the term applied to the development of methods of bringing datasets together and linking them so that important public issues (such as education, crime and employment) can be studied in relation to each other. There are a range of techniques to make sure that the linked datasets used by researchers are kept anonymous throughout.The Centre for Administrative Data Research & Evaluation (CADRE) is a powerful new centre specialising in making UK-wide administrative data safely available for research. CADRE has a strong team, with a wealth of experience in data linkage and in economic and social research. CADRE will work closely with CIPHER (the Centre for the Improvement of Population Health through E-records Research), in a new, purpose-designed building, massively increasing the opportunities for research to benefit people and society. The main aim of CADRE is to create a world-class administrative data research centre, that is widely known for its ability to access, link and make safe use of data for high quality research. Our work will be underpinned by a robust Governance framework. This means that we will follow all the rules, laws and regulations that govern data usage, and set many new standards, so that our work is always ethical and respects the rights and privacy of individuals and organisations. CADRE has a set of objectives are these are to:1. Provide powerful, robust, state-of-the art data linkage and data access facilities. This will include highly secure 'safe rooms' where researchers will work on the data.2. Run a high quality, equitable and efficient 'customer focused' user support service, free at the point of access, ensuring that the analytical opportunities provided by CADRE are accessible to the widest possible community of researchers3. Create a rich linked administrative data resource for the UK research community, by enabling datasets from different organisations to be used together safely.4. Carry out original research using linked administrative data. This will include developing new methods for data linkage, working with government, law and ethics bodies on the Governance of data use, and working with the general public and organisations to understand their views on data linkage. We will work with other researchers to answer important social and economic research questions.5. Provide a range of high-quality training and development opportunities for researchers, public service professionals and policy makers.6. Involve members of the public in the work of CADRE, and engage with the public to raise awareness of data linkage research, to understand the concerns they may have, and to seek to provide reassurance. 7. Build good working relationships and collaborations within the Administrative Data Research Network (ADRN), with Welsh Government, other UK governments, and their National Statistical Agencies (NSAs), the economic and social science research community and health researchers.

行政数据是指政府和其他公共机构收集的数据集，除其他外，用于生成信息以指导政策和公共服务的发展。一些例子包括人口普查和全国家庭调查，以及有关教育、卫生和社会服务、就业和福利、犯罪、住房、环境和经济的数据集。这些数据集对于研究具有巨大价值，尤其是当它们链接在一起时。然而，由于有关个人的信息非常敏感，因此必须非常谨慎地对其进行管理，以确保其匿名、安全可靠，并且仅由经批准的研究人员出于公共利益的目的使用。数据链接研究是指开发将数据集整合在一起并链接起来的方法，以便可以相互关联地研究重要的公共问题（例如教育、犯罪和就业）。有一系列技术可以确保研究人员使用的链接数据集始终保持匿名。行政数据研究与评估中心 (CADRE) 是一个强大的新中心，专门致力于使英国范围内的行政数据安全地用于研究。 CADRE拥有强大的团队，在数据联动和经济社会研究方面拥有丰富的经验。 CADRE 将与 CIPHER（通过电子记录研究改善人口健康中心）在一座专门设计的新建筑中密切合作，大幅增加造福人民和社会的研究机会。 CADRE 的主要目标是创建一个世界一流的行政数据研究中心，该中心以其访问、链接和安全使用数据进行高质量研究的能力而闻名。我们的工作将以健全的治理框架为基础。这意味着我们将遵守管理数据使用的所有规则、法律和法规，并制定许多新标准，以便我们的工作始终符合道德规范并尊重个人和组织的权利和隐私。 CADRE 有一系列目标：1．提供强大、稳健、最先进的数据链接和数据访问设施。这将包括高度安全的“安全室”，研究人员将在其中处理数据。2。运行高质量、公平且高效的“以客户为中心”的用户支持服务，在访问点免费，确保尽可能广泛的研究人员群体能够获得 CADRE 提供的分析机会3。通过使来自不同组织的数据集能够安全地一起使用，为英国研究界创建丰富的链接管理数据资源。4。使用关联的管理数据开展原创研究。这将包括开发数据链接的新方法，与政府、法律和道德机构合作进行数据使用的治理，以及与公众和组织合作以了解他们对数据链接的看法。我们将与其他研究人员合作，回答重要的社会和经济研究问题。5．为研究人员、公共服务专业人员和政策制定者提供一系列高质量的培训和发展机会。6．让公众参与 CADRE 的工作，并与公众互动，提高对数据联动研究的认识，了解他们可能关心的问题，并寻求提供保证。 7. 在行政数据研究网络（ADRN）内与威尔士政府、英国其他政府及其国家统计机构（NSA）、经济和社会科学研究界以及卫生研究人员建立良好的工作关系和合作。

项目成果

Born into Care: characterising newborn babies and infants in care proceedings in England and Wales

出生在护理中：描述英格兰和威尔士护理程序中新生婴儿和婴儿的特征

• DOI: 10.23889/ijpds.v4i3.1285
• 发表时间: 2019
• 期刊: International Journal of Population Data Science
• 作者: Alrouh B

Identifying patients with asthma-chronic obstructive pulmonary disease overlap syndrome using latent class analysis of electronic health record data: a study protocol.

• DOI: 10.1038/s41533-018-0088-4
• 发表时间: 2018-06-20
• 期刊: NPJ primary care respiratory medicine
• 影响因子: 3.1
• 作者: Al Sallakh MA;Rodgers SE;Lyons RA;Sheikh A;Davies GA
• 通讯作者: Davies GA

Development of an algorithm for determining smoking status and behaviour over the life course from UK electronic primary care records.

• DOI: 10.1186/s12911-016-0400-6
• 发表时间: 2017-01-05
• 期刊: BMC medical informatics and decision making
• 影响因子: 3.5
• 作者: Atkinson MD;Kennedy JI;John A;Lewis KE;Lyons RA;Brophy ST;DEMISTIFY Research Group
• 通讯作者: DEMISTIFY Research Group

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.

• DOI: 10.23889/ijpds.v4i1.586
• 发表时间: 2019-02-12
• 期刊: International journal of population data science
• 作者: Aitken M;Tully MP;Porteous C;Denegri S;Cunningham-Burley S;Banner N;Black C;Burgess M;Cross L;van Delden JJ;Ford E;Fox S;Fitzpatrick NK;Gallacher K;Goddard C;Hassan L;Jamieson R;Jones KH;Kaarakainen M;Lugg-Widger F;McGrail K;McKenzie A;Moran R;Murtagh MJ;Oswald M;Paprica A;Perrin N;Richards EV;Rouse J;Webb J;Willison DJ
• 通讯作者: Willison DJ

STRategies to manage Emergency ambulance Telephone Callers with sustained High needs: an Evaluation using linked Data (STRETCHED) - a study protocol.

• DOI: 10.1136/bmjopen-2021-053123
• 发表时间: 2022-03-29
• 期刊: BMJ open
• 影响因子: 2.9
• 作者: Aslam RW;Snooks H;Porter A;Khanom A;Cole R;Edwards A;Edwards B;Evans BA;Foster T;Fothergill R;Gripper P;John A;Petterson R;Rosser A;Tee A;Sewell B;Hughes H;Phillips C;Rees N;Scott J;Watkins A
• 通讯作者: Watkins A