From "Small Stories" to "Communities of Care" With/In Narratives of Illness and Death

从“小故事”到“护理社区”与/在疾病和死亡的叙述中

• 批准号: EP/Y014057/1
• 负责人: Angela Woods
• 金额: $ 23.84万
• 依托单位: Durham University
• 依托单位国家: 英国
• 项目类别: Fellowship
• 财政年份: 2024
• 资助国家: 英国
• 起止时间: 2024 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=EP%2FY014057%2F1
• 关键词: Small; Stories; Communities; Care; Narratives

SMALLCOMM explores how narratives of illness, death and bereavement are located at the intersection of community networks and narrativized by communities. How do communities narrate experiences of illness and death? What does community mean in this context-who and what is involved, and how? What narrative forms, structures and practices emerge? How do these narratives engage with and depart from larger cultural scripts? What are the wider cultural and theoretical implications of approaching illness and death narratives as a community practice? Focusing on the notion of 'communities of care' -complex human and non-human networks based on relational, reciprocal and emancipative affective practices- SMALLCOMM seeks to understand not only how these communities are built and how illness, dying and death may be mis/understood through narrative, but also how narrative shapes and mobilises practical responses to experiences of pain, loss and grief. SMALLCOMM contributes to a growing body of scholarship on illness narrative that seeks to account for greater complexity (of experience as well as of narrative form and context): (i) bringing death studies in to dialogue with critical medical humanities; (ii) focusing on the narrative products and practices of communities; (iii) developing a new analytical framework for collective narratives. It employs a mixed-method approach: (a) A hermeneutical-phenomenological study explores social and affective interactions, and the tension between experientiality and interpretation, in a selection of literary and visual narratives of illness and death (2014-2022); (b) A qualitative study using reading/writing workshops (built on narrative medicine and participatory design methods) addresses the ways in which people have come collectively to articulate difficult experiences of illness and death. Two groups will be recruited across different communities in Durham and Paris to bring a comparative and cross-cultural dimension to the research.

SMALLCOMM 探讨了疾病、死亡和丧亲之痛的叙述如何位于社区网络的交汇处并由社区进行叙述。社区如何讲述疾病和死亡的经历？在这种情况下，社区意味着什么——涉及谁、涉及什么、以及如何涉及？出现了哪些叙事形式、结构和实践？这些叙述如何与更大的文化脚本相结合和背离？将疾病和死亡叙事作为社区实践有哪些更广泛的文化和理论含义？ SMALLCOMM 专注于“护理社区”的概念——基于关系、互惠和解放性情感实践的复杂人类和非人类网络——SMALLCOMM 不仅试图了解这些社区是如何建立的，以及疾病、死亡和死亡可能如何被误解/通过叙事来理解，还包括叙事如何塑造和动员对痛苦、失落和悲伤经历的实际反应。 SMALLCOMM 为越来越多的疾病叙事学术做出了贡献，旨在解释更大的复杂性（经验以及叙事形式和背景）：（i）将死亡研究与重要的医学人文学科进行对话； (ii) 关注社区的叙事产品和实践； (iii) 为集体叙事制定新的分析框架。它采用了混合方法： (a) 解释学现象学研究在一系列关于疾病和死亡的文学和视觉叙事中探讨了社会和情感相互作用，以及体验性和解释之间的紧张关系（2014-2022）； (b) 利用阅读/写作讲习班（以叙事医学和参与式设计方法为基础）进行的一项定性研究，探讨了人们集体表达疾病和死亡的困难经历的方式。将在达勒姆和巴黎的不同社区招募两个小组，为研究带来比较和跨文化的维度。