TUBEROUS SCLEROSIS COMPLEX CONSENSUS CONFERENCE

结节性硬化症共识会议

• 批准号: 2564940
• 负责人: VICKY HOLETS WHITTEMORE
• 金额: $ 2.5万
• 依托单位: TUBEROUS SCLEROSIS ALLIANCE
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-07-01 至 1999-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2564940
• 关键词: meeting /conference /symposium; tuberous sclerosis

DESCRIPTION: This is a proposal by the National Tuberous Sclerosis Association to hold a conference to discuss current aspects of research in tuberous sclerosis. The proposal has 9 aims for the proposed conference. This conference request comes three years after a similar conference was held through National Tuberous Sclerosis Association and the NIH funding. The conference is planned for July 1-2, 1998 at the Hyatt Regency Hotel in Bethesda, MD. The format is of a consensus conference, with presentations of 20 minutes, followed by a 5-10 minute discussion by panel members. There will be breakout sessions to develop consensus. Eight panels are planned. Panel 6 will have 4 subdivisions. The panels will present their consensus findings at the end of the conference. The conference proceedings will be synthesized and published as a report by the NTSA. It will contain recommendations for the following: 1) clinical diagnostic testing and follow-up screening of individuals with TSC, 2) recommendations for research priorities, 3) identification of resources needed to accomplish the identified priorities, 4) identification of barriers that make it difficult to carry out research.

描述：这是国家结节性硬化症协会的提案 协会召开会议讨论当前研究领域 结节性硬化症。 该提案为拟议会议提出了 9 个目标。 该会议请求是在类似会议召开三年后提出的 通过国家结节性硬化症协会和美国国立卫生研究院的资助举办。 会议计划于 1998 年 7 月 1 日至 2 日在美国的凯悦酒店举行。 马里兰州贝塞斯达。 形式是共识会议，并有演讲 20 分钟，然后由小组成员进行 5 至 10 分钟的讨论。 那里 将举行分组会议以达成共识。 计划有八个面板。 第 6 组将有 4 个细分。 各小组将提出他们的共识 会议结束时得出的结论。 会议论文集将 由 NTSA 综合并作为报告发布。 它将包含 建议如下：1) 临床诊断测试和 TSC 患者的后续筛查，2) 研究建议 优先事项，3）确定完成目标所需的资源 确定优先事项，4）确定造成困难的障碍 进行研究。