INVEST. OF SEL. PATIENT GROUPS FROM CSSCD: STAT. CENTER

投资。

• 批准号: 2313272
• 负责人: SONJA M MCKINLAY
• 金额: $ 24.4万
• 依托单位: NEW ENGLAND RESEARCH INSTITUTES, INC.
• 依托单位国家: 美国
• 财政年份: 1989
• 资助国家: 美国
• 起止时间: 1989-04-15 至 1995-04-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2313272
• 关键词: INVEST.; SEL.; PATIENT; GROUPS; CSSCD

The main objective of this project is to serve as the Statistical Coordinating Center for the Investigation of Selected Patient Groups from the Cooperative Study of Sickle Cell Disease (CSSCD). Specifically, the purpose is to provide statistical support, data management, coordination and leadership for the clinical centers involved in the investigation. The purpose of the over-all investigation is to continue to follow two important groups of patients from the previous phase of this collaborative study. The CSSCD has been a multi-institutional cooperative study investigating the clinical course or natural history of sickle cell disease from birth to death. The investigation has involved the enrollment and follow-up of approximately 4,000 patients. The present investigation, however, involves only two patient groups selected for further study, the newborn cohort of patients entered before the age of six months, and the adult cohort of patients over 35 years of age. The newborn cohort has approximately 650 children currently being followed in the clinical centers ranging in age from 2 months to 10 years. There are 473 adults over 35 years of age with the oldest patient being 74 years old.

该项目的主要目的是作为统计 协调从 镰状细胞疾病（CSSCD）的合作研究。 具体来说， 目的是提供统计支持，数据管理，协调 以及参与调查的临床中心的领导。 这 整个调查的目的是继续遵循两个 该协作的上一个阶段的重要患者组的重要组 学习。 CSSCD一直是一项多机构合作研究 从出生到镰状细胞疾病的临床过程或自然史 死亡。 调查涉及的注册和随访 大约4,000名患者。 但是，本研究涉及 只有两个患者群体进一步研究，新生儿队的队列 患者在六个月之前进入，成年队列 35岁以上的患者。 新生队的队列大约有650 目前在年龄范围内的临床中心正在关注的儿童 从2个月到10年。 有473名35岁以上的成年人 最古老的患者是74岁。