ESTABLISH THE NATIONAL EPIDEMIOLYSIS BULLOSA REGISTRY

建立国家大流行病缓解登记处

• 批准号: 2298328
• 负责人: VIRGINIA P SYBERT
• 金额: $ 5.98万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 1992
• 资助国家: 美国
• 起止时间: 1992-07-01 至 1997-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2298328
• 关键词: ESTABLISH; NATIONAL; EPIDEMIOLYSIS; BULLOSA; REGISTRY

The purpose of this contract is to continue a clinical site to be operated under the National Epidermolysis Bullosa Registry which is aimed at searching for the basic defect, improving methods of diagnosis, and developing effective methods in treatment and prevention of the disease. The clinical site-will be responsible for direct contact with E.B. patients and for their enrollment in the Registry. This will include standardized history, physical examination, general laboratory examination, and those specialized studies required for E.B. diagnosis. Determination of the studies required for the diagnosis of E.B. and its subgroups is the responsibility of the Contractor.

该合同的目的是继续进行临床站点进行操作 在全国性表皮分解登记册中，针对 寻找基本缺陷，改善诊断方法和 在治疗和预防疾病方面开发有效的方法。 临床现场将负责与E.B.直接接触。患者 以及他们在注册表中注册。 这将包括标准化 历史，体格检查，一般实验室检查以及 E.B.所需的专门研究诊断。 确定 E.B.诊断所需的研究它的子组是 承包商的责任。