Managing Adolescent Asthma Virtually (MAAV)

虚拟管理青少年哮喘 (MAAV)

基本信息

批准号：
10481220
负责人：
Laverne Morrow Carter
金额：
$ 25.5万
依托单位：
HEALTH IN COLOR, INC.
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-21 至 2024-01-20
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10481220
关键词：
Acute Address Adherence Adolescent Adoption Affect Age Air Pollution Algorithms Allergens American Android Assessment tool Asthma Behavior Behavioral Black Populations Black race Caring Categories Cause of Death Cessation of life Chest Child Childhood Childhood Asthma Chronic Chronic lung disease Collaborations Communication Coughing Custom Decision Making Development Developmental Delay Disorders Developmental Disabilities Diagnosis Education Emergency Care Emergency department visit Environment Environmental Risk Factor Ethnic group Evaluation Exposure to Family Feedback Genetic Goals Guidelines Health Health Personnel Health Technology Healthcare Systems Hospital Costs Individual Inhalators Inherited Inpatients Intervention Intervention Studies Knowledge Link Literature Lung Capacity Medical Medicine Mental Depression Monitor Motivation National Heart, Lung, and Blood Institute Obesity Outcome Participant Patient Preferences Patients Persons Pharmaceutical Preparations Phase Population Poverty Prevalence Prevention program Preventive service Process Provider Public Health Randomized Recommendation Recording of previous events Recurrence Reporting Research Risk Risk Assessment Schools Self Care Self Efficacy Self Management Self Perception Shortness of Breath Smoke Socioeconomic Status Surveys System Technology Toxin United States National Institutes of Health Update Wheezing Work acceptability and feasibility acute care asthma exacerbation asthmatic patient base behavioral adherence commercialization design digital digital health digital intervention digital media disorder control disorder prevention economic outcome empowered experience family management follow-up health care availability health care service utilization health economics high risk improved low socioeconomic status lung injury mortality mortality risk patient oriented people of color personalized care post intervention prevent preventable death primary care services programs prototype psychosocial stressors racial and ethnic recruit risk stratification satisfaction sex skills social media theories usability virtual web platform

项目摘要

ABSTRACT MANAGING ADOLESCENT ASTHMA VIRTUALLY (MAAV) The Issue: Although asthma may affect people of all ages, backgrounds, or sex, people of color are disproportionally burdened [1]. Nearly 25 million Americans are diagnosed with asthma, and the U.S. reports over 3,000 preventable deaths annually with 75% higher risk for Black populations compared to Whites [1, 2]. However, Black adolescents experience the highest asthma prevalence and mortality compared to all other pediatric groups [2]. In fact, Blacks experience risks for death caused by asthma at double to triple the likelihood of death for all other racial/ethnic groups[1, 2]. People living in poverty also experience higher rates of asthma, but as socioeconomic status increases, asthma rates wane [1, 2]. Conversely, asthma self- management education and support (ASMES) is associated with multiple positive health and economic outcomes (e.g., improved knowledge/self-care behaviors, increased lung capacity, increased use of primary care and preventive services, and reduced acute care and inpatient hospital costs) [1, 3, 4]. The REESSI Solution: The goal of this Phase I project, Managing Adolescent Asthma Virtually (MAAV), is to examine the feasibility and acceptability of a multi-component interactive digital app designed to help Black adolescents and their families manage and control childhood asthma by risk stratification algorithms or ASRA. As part of the proposed study, we will work with our End-User and Expert Advisory Panels to design a culturally and developmentally appropriate mobile-based intervention using a web platform. We will focus on seven potential key topics – 1-Asthma Overview and Risks Categories, 2-Management Through Behavioral Changes, 3-Psychosocial Stressors, 4-Asthma Medications, 5-Asthma Monitoring and Self- Management, 6-Preventing Acute and Chronic Complications, and 7- Managing Acute and Chronic Complications, each with six proposed intervention components in the final commercial version – (a) a medically accurate animated ELesson, tailored to risk, (b) follow-up group chat with a certified asthma educator, (c) provider/expert video, (d) offline scripted adolescent-caretaker discussion, (e) AI driven answers- solutions to frequent questions-issues and (f) daily customized adherence booster texts for one year. During Phase I, the project team will develop the content for (1) all seven modules and (2) the prototype, which will consist of the first two topics–each including a portion of the six components, respectively. The Project Team: The 10-month Phase I project will engage an accomplished transdisciplinary team of experts from the fields of public health, medicine, intervention research, and digital media technology who have successfully worked together on similar projects. The Study: Our study is guided by two primary aims: (1) develop the prototype with a focus on two of the seven topics in collaboration with our End-User Panel, Expert Advisory Panel, and (2) evaluate scientific merit (knowledge) and feasibility (usability, appeal, and satisfaction), while using the NIH Commercialization programs to dive deeper into markets and sustainable reimbursements for MAAV.

摘要虚拟管理青少年哮喘 (MAAV) 问题：虽然哮喘可能影响所有年龄、背景或性别的人，但有色人种据美国报告，近 2500 万美国人被诊断患有哮喘。每年有超过 3,000 例可预防的死亡，与白人相比，黑人的风险高出 75% [1, 2]。然而，与其他所有人相比，黑人青少年的哮喘患病率和死亡率最高事实上，黑人因哮喘死亡的风险是儿科人群的两倍到三倍。所有其他种族/族裔群体的死亡可能性[1, 2] 生活在贫困中的人的死亡率也较高。哮喘的发生率，但随着社会经济地位的提高，哮喘发病率下降 [1, 2]。管理教育和支持（ASMES）与多种积极的健康和经济相关结果（例如，知识/自我护理行为的提高、肺活量的增加、主要功能的使用增加护理和预防服务，并减少急症护理和住院费用）[1,3,4]。 REESSI 解决方案：第一阶段项目“虚拟管理青少年哮喘 (MAAV)”的目标是检查旨在帮助黑人的多组件交互式数字应用程序的可行性和可接受性青少年及其家庭通过风险分层算法或 ASRA 管理和控制儿童哮喘。作为拟议研究的一部分，我们将与最终用户和专家咨询小组合作设计一个我们将重点关注使用网络平台进行适合文化和发展的移动干预。七个潜在的关键主题 – 1-哮喘概述和风险类别，2-管理方法行为改变，3-心理压力源，4-哮喘药物，5-哮喘监测和自我治疗管理，6-预防急性和慢性并发症，7-管理急性和慢性并发症并发症，在最终商业版本中每种并发症都有六个建议的干预组件 - (a) a 医学上准确的动画电子课程，针对风险量身定制，(b) 与经过认证的哮喘患者进行后续群聊教育者，(c) 提供者/专家视频，(d) 离线脚本青少年看护者讨论，(e) 人工智能驱动的答案- 常见问题的解决方案以及 (f) 一年内每日定制的坚持助推文本。第一阶段，项目团队将开发 (1) 所有七个模块和 (2) 原型的内容，这将由前两个主题组成，每个主题分别包含六个组成部分的一部分。项目团队：为期 10 个月的第一阶段项目将聘请一支经验丰富的跨学科团队来自公共卫生、医学、干预研究和数字媒体技术领域的专家在类似项目上成功合作。研究：我们的研究有两个主要目标：（1）开发原型，重点关注其中两个与我们的最终用户小组、专家顾问小组合作的七个主题，以及 (2) 评估科学价值（知识）和可行性（可用性、吸引力和满意度），同时使用 NIH 商业化深入研究 MAAV 市场和可持续报销的计划。