Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

基本信息

批准号：
10475185
负责人：
Sophia Wang
金额：
$ 26.46万
依托单位：
INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-01 至 2026-06-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10475185
关键词：
Address African American African American population Aging Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Awareness Biological Markers Brain COVID-19 pandemic Caregivers Clinical Research Collaborations Collection Communities Community Outreach Data Databases Development Disease Dissemination and Implementation Early Diagnosis Effectiveness Elderly Enrollment Event Family Family member Foundations Future Goals Health Fairs Health Professional Impaired cognition Indiana Internet Investments Mission Monitor Newsletter Participant Patients Persons Play Privatization Public Health Radio Recruitment Activity Research Research Infrastructure Role Social Work Strategic Planning Time Translations Trust Underrepresented Populations Veterans Work base brain health cohort community organizations community partnership dashboard education resources ethnic minority experience health care service high risk member mild cognitive impairment neuroimaging marker outreach outreach program prevent programs racial minority recruit research study retention rate rural dwellers service providers social media success virtual

项目摘要

Project Summary – Outreach, Recruitment and Engagement Core (OREC) The OREC of the Indiana Alzheimer’s Disease Research Center (IADRC) plays a key role in achieving the goals of the IADRC through its community outreach and recruitment activities. It also serves as an educational resource on AD and related dementias for healthcare professionals, patients, caregivers, and family members living in Indiana, neighboring regions, and beyond. As increasing numbers of older adults experience late life cognitive impairment and associated challenges, outreach in our local and statewide community is crucial to inform them and their families about the importance of early diagnosis, available treatment and management options, and the critically important role of participating in research at the IADRC. The OREC has developed numerous important relationships with health professionals and aging-related organizations throughout the state, which increase the visibility and reach of our programs. The IADRC and the OREC have had great success in increasing research participation in the African American community and other underrepresented participant groups who are or may be at higher risk for AD and related dementias. The IADRC understands the importance of building rapport and trusting relationships with community members, health care and social service providers. The OREC will build on its successfully developed foundation of community-based collaboration over the past 30 years. The OREC has three overall goals: Outreach--to promote the understanding of brain health and neurodegenerating diseases in Indiana, neighboring regions and beyond; Recruitment--to facilitate recruitment of research participants to the IADRC and related research studies; and Retention—to retain research participants in the IADRC and related research studies. Our outreach programs greatly impact the increasing awareness of dementing disorders, which in turn, increase the likelihood of participation in the IADRC, providing support to the National Alzheimer’s Plan Act (NAPA) goal of preventing and effectively treating AD by 2025.

项目摘要 – 外展、招聘和参与核心 (OREC) 印第安纳阿尔茨海默病研究中心 (IADRC) 的 OREC 在以下方面发挥着关键作用：通过社区外展和招募活动实现 IADRC 的目标。还可以作为医疗保健方面 AD 和相关痴呆症的教育资源居住在印第安纳州及其邻近地区的专业人士、患者、护理人员和家庭成员，随着越来越多的老年人经历晚年认知障碍等。相关挑战，我们当地和司法界的外展活动对于告知他们至关重要及其家人了解早期诊断、可用治疗和管理的重要性选项，以及参与 IADRC 研究的至关重要的作用。与健康专业人士和衰老相关领域建立了许多重要的关系遍布全州的组织，这提高了我们计划的知名度和影响力。 IADRC 和 OREC 在增加研究参与方面取得了巨大成功非裔美国人社区和其他代表性不足的参与者群体，他们是或可能是患 AD 和相关痴呆症的风险较高 IADRC 理解建设的重要性。与社区成员、医疗保健和社会服务的融洽和信任关系 OREC 将建立在其成功开发的社区基础之上。 OREC 过去 30 年来的合作有三个总体目标：外展——促进对邻近印第安纳州的大脑健康和神经退行性疾病的了解地区及其他地区；招募——促进 IADRC 招募研究参与者和相关研究；和保留——保留 IADRC 的研究参与者和我们的外展计划极大地影响了人们的认识的提高。痴呆症，这反过来又增加了参与 IADRC 的可能性，为《国家阿尔茨海默病计划法案》(NAPA) 预防和有效预防这一目标提供支持到 2025 年治疗 AD。