OFF TREATMENT ADAPTATION OF ADOLESCENT CANCER PATIENTS

青少年癌症患者的治疗适应期

• 批准号: 3386291
• 负责人: JIMMIE C. B. HOLLAND
• 金额: $ 31.26万
• 依托单位: SLOAN-KETTERING INST CAN RESEARCH
• 依托单位国家: 美国
• 财政年份: 1991
• 资助国家: 美国
• 起止时间: 1991-03-01 至 1996-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3386291
• 关键词: adolescence (12-20); blood /lymphatic neoplasm; child behavior; emotional adjustment; family structure /dynamics; family therapy; human subject; interview; longitudinal human study; medical records; neoplasm /cancer diagnosis; neoplasm /cancer education; neoplasm /cancer remission /regression; neoplasm /cancer therapy; pediatric neoplasm /cancer; posthospitalization care; psychosocial rehabilitation; quality of life; questionnaires; self concept; social adjustment; social behavior; social support network; statistics /biometry

This study is designed to 1) investigate how off-treatment adolescent cancer patients re-integrate normative developmental tasks when faced with the residual burdens of cancer diagnosis and treatment and 2) how family process characteristics influence the adequacy and rapidity of adolescent psychosocial re-integration following cessation of cancer treatment. Given that advances in cancer treatment have enabled a greatly improved likelihood of long-term survival for many adolescent cancer patients, this process of re-integration has become particularly germane. A nonequivalent control group design with multi-method (self-report, interviewer rating, observer rating, coding of family interaction) multi-wave assessment (T1- T4) will be sued to collect longitudinal data from a final sample of 100 adolescent cancer patients and their families. Data concerning three sets of variables will be collected: Medical parameters, adolescent psychosocial functioning and family context. Each patient and their family will be evaluate prior to cessation of cancer treatment and at three times over a 24 month "re-entry" period. In addition, a subset of the sample will be enrolled in a family-centered, psychoeducational program, aimed at evoking a facilitative family context for post-treatment re-entry. Multivariate data analyses will be used to examine the longitudinal course of adolescent cancer patients' and their families post-treatment re-entry to normative developmental activities and to determine whether family context influences the rapidity and adequacy of the adolescent's re-entry. We expect the findings from this study will advance knowledge of the processes by which off-treatment adolescent cancer patients resume normative activities following active treatment, and how certain family characteristics promote or impede this re-entry process. These issues may also be relevant to the promotion of mental health among other chronically ill adolescents and their families.

这项研究旨在1）研究非治疗青少年如何 癌症患者面临 癌症诊断和治疗的残留负担以及2）家庭如何 过程特征影响青少年的适当性和速度 停止癌症治疗后的社会心理重新融合。 给出 癌症治疗的进步已得到极大的改善 许多青春期癌症患者的长期生存的可能性，这 重新整合过程变得尤为明显。 不务实 使用多方法的对照组设计（自我报告，访调员评级， 观察者等级，家庭相互作用的编码）多波评估（T1- T4）将被起诉以收集最终样本的纵向数据 青春期癌症患者及其家人。 有关三组的数据 将收集变量：医疗参数，青少年 社会心理功能和家庭环境。 每个患者及其家人 将在停止癌症治疗之前进行评估和三次 在24个月的“重新进入”期间。 另外，样本的子集 将参加以家庭为中心的心理教育计划 唤起治疗后重新进入的便利家庭环境。 多元数据分析将用于检查纵向课程 青春期癌症患者及其家人的治疗后重新进入 进行规范性发展活动，并确定家庭是否 上下文会影响青少年重新进入的速度和充分性。 我们希望这项研究的发现将提高知识 非治疗青春期癌症患者恢复的过程 积极治疗后的规范活动以及某些家庭如何 特征促进或阻碍了这个重新进入过程。 这些问题可能 还与其他长期促进心理健康有关 生病的青少年及其家人。