The Residential Care Transition Module

住院护理过渡模块

基本信息

批准号：
10168229
负责人：
JOSEPH E. GAUGLER
金额：
$ 26.25万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-06-01 至 2022-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10168229
关键词：
Address Administrative Supplement Admission activity Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Assisted Living Facilities Buffers COVID-19 COVID-19 pandemic Caregiver Burden Caregiver support Caregivers Caring Clinical Research Collection Communication Communities Competence Consultations Control Groups Coping Skills Counseling Data Dementia Dementia caregivers Emotional Enrollment Environment Evaluation Family Family Caregiver Family member Health Impaired cognition Individual Institutionalization Intervention Interview Mental Depression Mental Health Methods Modeling Nursing Homes Outcome Parents Participant Personal Satisfaction Persons Preventive Randomized Randomized Controlled Trials Reporting Research Residential Treatment Role Self Efficacy Services Stress Structure Surveys Telephone Translating Treatment/Psychosocial Effects Visit care giving burden care recipients coping depressive symptoms design effective intervention emotional distress experience family caregiving health data improved insight instrumental activity of daily living interest longitudinal analysis longitudinal dataset memory care novel pandemic disease parent grant psychoeducation psychological distress psychosocial residential care facility response skills stressor success symposium therapy design treatment as usual treatment group trial design usual care arm

项目摘要

Parent Study Abstract Emerging research on family caregiving and institutionalization has found that families do not disengage from care responsibilities following relatives’ admissions to residential long-term care settings. Families instead remain involved in a spectrum of care activities ranging from instrumental activities of daily living to emotional support. Perhaps for these reasons, a number of studies have noted that caregiving stress, depression, or other key outcomes remain stable or sometimes increase following residential long-term care (RLTC) entry for certain types of caregivers. A few interventions have attempted to increase family involvement after institutionalization, but no rigorous studies have demonstrated that these interventions are effective in helping families navigate transitions to RLTC environments. The Residential Care Transition Module (RCTM) provides 6 formal sessions of consultation (one-to-one and family sessions) over a 4-month period to those family caregivers who have admitted a relative to a RLTC setting. In this randomized controlled trial, family members who have admitted a cognitively impaired relative to a RLTC setting will be randomly assigned to the RCTM [(n = 120)] or a usual care control condition [(n = 120)]. A mixed methods analysis will be used to pursue the following aims: Specific Aim 1) Assess whether the RCTM yields statistically significant reductions in family members’ primary subjective stress and negative mental health outcomes; Specific Aim 2) Determine whether family members who receive the RCTM will indicate statistically significant decreases in secondary role strains over a 12-month period when compared to usual care controls; Specific Aim 3) Determine whether RCTM family members report statistically significant decreases in residential care stress when compared to family members in the usual care control group; and Specific Aim 4) Delineate the mechanism of action of RCTM under conditions of high and low success by “embedding” qualitative components (30 semi-structured interviews) at the conclusion of the 12-month evaluation. The proposed project will fill an important clinical and research gap by evaluating a psychosocial intervention designed for families following RLTC placement that determines whether and how the RCTM can help families better navigate the residential care transitions of cognitively impaired relatives.

家长研究摘要关于家庭照顾和收容的新兴研究发现，家庭并没有脱离亲属入住长期护理机构后的护理责任。继续参与一系列护理活动，从日常生活的工具性活动到情感活动也许由于这些原因，许多研究指出，照顾压力、抑郁或支持。在进入长期住院护理 (RLTC) 后，其他关键结果保持稳定或有时有所增加某些类型的护理人员尝试采取一些干预措施来增加家庭参与。制度化，但没有严格的研究表明这些干预措施能有效帮助家庭如何过渡到 RLTC 环境。住院护理过渡模块 (RCTM) 提供 6 次正式咨询会议（一对一和家庭会议）为那些已接纳亲属进入 RLTC 的家庭护理人员提供为期 4 个月的家庭会议在这项随机对照试验中，承认有认知障碍的家庭成员。 RLTC 设置将随机分配给 RCTM [(n = 120)] 或常规护理控制条件 [(n = 120)]。将使用混合方法分析来实现以下目标：具体目标 1) 评估是否 RCTM 在统计上显着减少了家庭成员的主要主观压力和负面情绪心理健康结果；具体目标 2) 确定接受 RCTM 的家庭成员是否会表明在 12 个月期间，次要角色菌株与常规护理控制；具体目标 3) 确定 RCTM 家庭成员报告是否具有统计显着性与常规护理对照组的家庭成员相比，住院护理压力有所减轻；具体目标 4) 描述 RCTM 在高成功率和低成功率条件下的作用机制在 12 个月结束时“嵌入”定性成分（30 次半结构化访谈）拟议的项目将通过评估社会心理来填补重要的临床和研究空白。为 RLTC 安置后的家庭设计的干预措施，确定 RCTM 是否以及如何能够帮助家庭更好地应对认知障碍亲属的寄宿护理过渡。

项目成果

期刊论文数量（6）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

过渡到长期护理：家庭护理人员的痴呆症、社区和咨询经验。

DOI：
发表时间：
2021
期刊：
影响因子：
2.8
作者：
Zmora, Rachel;Statz, Tamara L;Birkeland, Robyn W;McCarron, Hayley R;Finlay, Jessica M;Rosebush, Christina E;Gaugler, Joseph E
通讯作者：
Gaugler, Joseph E

The ResidentialCare Transition Module: a single-blinded randomized controlled evaluation of a telehealth support intervention for family caregivers of persons with dementia living in residential long-term care.

住宅护理过渡模块：对居住在长期住宅护理中的痴呆症患者的家庭护理人员的远程医疗支持干预进行单盲随机对照评估。

DOI：
发表时间：
2020
期刊：
影响因子：
4.1
作者：
Gaugler, Joseph E;Statz, Tamara L;Birkeland, Robyn W;Louwagie, Katie W;Peterson, Colleen M;Zmora, Rachel;Emery, Ann;McCarron, Hayley R;Hepburn, Kenneth;Whitlatch, Carol J;Mittelman, Mary S;Roth, David L
通讯作者：
Roth, David L

Caring for a Relative With Dementia in Long-Term Care During COVID-19.

在 COVID-19 期间，在长期护理中照顾患有痴呆症的亲属。

DOI：
发表时间：
2022-03
期刊：
影响因子：
7.6
作者：
Mitchell, Lauren L;Albers, Elizabeth A;Birkeland, Robyn W;Peterson, Colleen M;Stabler, Henry;Horn, Brenna;Cha, Jinhee;Drake, Anna;Gaugler, Joseph E
通讯作者：
Gaugler, Joseph E

Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.

COVID-19 大流行期间在长期护理中照顾患有痴呆症的亲属：一项前瞻性纵向研究。

DOI：
发表时间：
2023
期刊：
影响因子：
0
作者：
Mitchell, Lauren L;Horn, Brenna;Stabler, Henry;Birkeland, Robyn W;Peterson, Colleen M;Albers, Elle A;Gaugler, Joseph E
通讯作者：
Gaugler, Joseph E

Reimagining Family Involvement in Residential Long-Term Care.

重新构想家庭参与住院长期护理。