Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10474604
• 负责人: Martha X Sajatovic
• 金额: $ 37.17万
• 依托单位: CLEVELAND CLINIC LERNER COM-CWRU
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10474604
• 关键词: African American; African American population; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Biological; COVID-19 pandemic; Caring; Cities; Clinical; Clinical Investigator; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communication; Communities; Community Health Education; Community Outreach; Country; County; Data; Dementia; Dementia caregivers; Dementia with Lewy Bodies; Diagnosis; Disease; Elderly; Enrollment; Ensure; Evaluation; Feedback; Foundations; Funding; Goals; Heterogeneity; Hispanic; Hispanic Populations; Home; Impaired cognition; Individual; Industrialization; Investigation; Leadership; Methods; Minority; Mission; Modeling; Nature; Neurocognitive Deficit; Newsletter; Ohio; Outreach Research; Participant; Pathologic; Patient Recruitments; Persons; Population; Protocols documentation; Research; Research Personnel; Risk; Rural Community; Sampling; Special Population; Subgroup; Underrepresented Populations; Veterans; Work; apolipoprotein E-4; clinical center; community engagement; community partnership; ethnic minority; ethnoracial minority; experience; high risk; improved; innovation; interest; marginalized population; member; metropolitan; mild cognitive impairment; outreach; participant retention; personalized care; programs; psychologic; racial minority; recruit; social culture; suburban communities; virtual; volunteer; web site; webinar

PROJECT SUMMARY The Outreach, Recruitment, and Engagement Core (OREC) will be responsible for providing important liaison and outreach between the Cleveland Alzheimer's Disease Research Center (CADRC) and people with dementia, their care partners and both the professional and local lay community, so that information may be communicated bi-directionally. The OREC will be led by Dr. Martha Sajatovic, a clinical investigator with over 2 decades of clinical trials and research experience, with focus on community outreach and engagement of traditionally hard-to-reach or marginalized populations. To best meet the needs of the Center, the OREC must develop and maintain a robust pool of volunteers within Northeast Ohio, with and without cognitive impairment, who are willing to participate in the CADRC Clinical Core (CC) and other activities (e.g., clinical trials). The OREC will accomplish this through 4 specific aims. The OREC will promote recruitment and retention of participants in clinical research in close collaboration with the CC (Specific Aim 1). Both cores will continuously coordinate and evaluate recruitment and outreach efforts to identify the most effective strategies, develop new recruitment methods, and build even more extensive collaboration with community stakeholders and an expanded referral network. In Specific Aim 2, the OREC will focus recruitment of key subgroups, including African-Americans (AA), individuals with dementia with Lewy bodies and atypical Alzheimer's disease (AD), and cognitively normal controls. Taken together, these special populations will provide valuable new data on asymptomatic, at-risk individuals, and individuals in the earliest stages of neurocognitive decline. The OREC will leverage the existing Minority Advisory Board (MAB) to raise awareness of the CADRC within the AA community. Recruitment of other sub-groups will build upon successful funded programs to recruit from existing subject samples. Another goal of the OREC is to promote community education and communication, disseminate research findings, and obtain feedback that will continue to improve the academic-community partnership by engaging both the lay community as well as local and regional professional groups (Specific Aim 3). The OREC will aim to support all other members of the CADRC cores as it relates to linkage between the OREC and other cores. The OREC will facilitate communication between all cores, optimize outreach activities and help ensure that all cores are actively collaborating in the central goal of advancing AD research (Specific Aim 4).

项目概要 外展、招聘和参与核心 (OREC) 将负责提供重要的信息 克利夫兰阿尔茨海默病研究中心 (CADRC) 与患有阿尔茨海默病的人之间的联络和外展 痴呆症患者、他们的护理伙伴以及专业人士和当地非专业人士，以便信息可以被 双向通信。 OREC 将由 Martha Sajatovic 博士领导，她是一名临床研究员，拥有超过 2 数十年的临床试验和研究经验，重点关注社区外展和参与 传统上难以接触或边缘化的人群。为了最好地满足中心的需求，OREC 必须 在俄亥俄州东北部发展并维持一支强大的志愿者队伍，无论有没有认知障碍， 愿意参加 CADRC 临床核心 (CC) 和其他活动（例如临床试验）的人。奥瑞克 将通过 4 个具体目标来实现这一目标。 OREC 将密切合作促进临床研究参与者的招募和保留 与 CC（具体目标 1）。两个核心将不断协调和评估招聘和推广 努力确定最有效的策略，开发新的招聘方法，并建立更广泛的 与社区利益相关者合作并扩大转介网络。在具体目标 2 中，OREC 将 重点招募关键亚群体，包括非裔美国人 (AA)、路易痴呆症患者 身体和非典型阿尔茨海默病（AD），以及认知正常的对照。综合起来，这些特殊的 人群将尽早提供有关无症状、高危个体和个体的宝贵新数据 神经认知衰退的阶段。 OREC 将利用现有的少数族裔咨询委员会 (MAB) 来筹集资金 AA 社区内 CADRC 的认识。其他小组的招募将在成功的基础上进行 资助从现有受试者样本中招募的计划。 OREC 的另一个目标是促进社区发展 教育和交流，传播研究成果，并获得持续改进的反馈 通过让非专业社区以及地方和区域参与来建立学术界伙伴关系 专业团体（具体目标 3）。 OREC 的目标是支持 CADRC 核心的所有其他成员 它涉及 OREC 和其他核心之间的链接。 OREC 将促进各方之间的沟通 核心，优化外展活动，并帮助确保所有核心积极合作，以实现以下核心目标： 推进 AD 研究（具体目标 4）。