Leveraging Social Media to Improve Health Outcomes in Adolescents with Diabetes

利用社交媒体改善青少年糖尿病患者的健康状况

• 批准号: 10470183
• 负责人: Faisal Saleem Malik
• 金额: $ 18.9万
• 依托单位: SEATTLE CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-07 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10470183
• 关键词: Acute; Address; Adherence; Adolescent; Age; Alaska; Attitude; Blindness; Caregivers; Caring; Characteristics; Child; Childhood; Childhood diabetes; Chronic; Chronic Disease; Clinic; Clinical; Collaborations; Communication; Data; Development; Diabetes Mellitus; Diabetic Ketoacidosis; Disease Management; Educational workshop; Effectiveness; Elements; Endocrinologist; Enrollment; Environment; Faculty; Feedback; Focus Groups; Glycosylated hemoglobin A; Goals; Health; Health Services; Hospitals; Idaho; Insulin-Dependent Diabetes Mellitus; Intervention; Kidney Failure; Media Intervention; Medical; Medical Care Team; Mentors; Methodology; Montana; Outcome; Patient Outcomes Assessments; Patients; Pediatric Hospitals; Perception; Personnel Management; Process; Quality of life; Randomized; Randomized Controlled Trials; Reporting; Research; Research Activity; Research Design; Research Institute; Research Personnel; Research Training; Risk; Risk Management; Sampling; Scientist; Self Care; Self Efficacy; Stress; Surveys; System; Techniques; Teenagers; Testing; Thinking; Time; Training; Training Activity; Training Programs; United States; Vulnerable Populations; Washington; Work; Wyoming; Youth; acceptability and feasibility; adolescent health outcomes; advanced disease; base; behavioral health intervention; care costs; comparative effectiveness; conventional therapy; cost; design; diabetes education; diabetes management; diabetes self-management; digital; feasibility testing; glycemic control; health care quality; health care service utilization; health care settings; improved; innovation; meetings; member; patient oriented; peer support; pilot test; preference; primary outcome; programs; recruit; response; secondary outcome; skills; social media; social networking website; therapy development; tool; treatment as usual; user centered design

PROJECT SUMMARY/ABSTRACT This proposal describes a five-year research training program that will allow me to achieve my long-term goal of becoming an independent faculty-scientist dedicated to improving healthcare quality and patient health for youth with diabetes. The majority of adolescents with type 1 diabetes (T1D) in the United States are not meeting the goals of therapy. I propose to develop tools to provide innovative diabetes management support to adolescents outside of the clinic setting through the use of social media (SM) and evaluate its feasibility and acceptability to adolescents with T1D. SM has become an integral part of adolescents’ lives and at this time, there is an absence of high quality empirical studies investigating the use of SM in the healthcare setting. Given the need for impactful interventions to support adolescent T1D management, this work has the potential to result in a major advance for disease management in this vulnerable population. The goal of this proposal is to develop a patient-centered SM intervention that will enhance patient self-efficacy and improve health outcomes for adolescents with T1D. I will achieve this goal by first identifying several different SM intervention strategies for distinct segments of adolescents with diabetes. In Aim 1, I plan to conduct a survey of a large sample of adolescents with T1D to examine perceptions on how SM can be utilized in diabetes management and then using latent class analysis techniques, I will segment adolescents based on patient characteristics and preferences around the use of SM. In Aim 2, I will incorporate additional stakeholder input, including caregivers and healthcare team members, through the use of user-centered design workshops to develop a pilot SM intervention based on previous formative work. By engaging adolescents, caregivers, and healthcare team members in an iterative process of user-centered design workshops I hope to develop a SM intervention that is consistent with key stakeholder values, preferences and goals. In Aim 3, I will pilot the SM intervention in a randomized controlled trial and examine its feasibility and acceptability. In addition, I plan to explore the impact on patient-reported outcomes (e.g. self-efficacy) and glycemic control. My research will be supported by an outstanding group of mentors with expertise in social media research, pediatric diabetes, survey research, and the design of clinical interventions. By accomplishing the aims in this proposal, I will address current gaps in our understanding of how to leverage SM to support adolescents with chronic disease. In addition, this proposal will allow me to take the next critical steps on my research training trajectory by providing me the opportunity to acquire additional research skills required to design, evaluate and implement behavioral health interventions using social media. Ultimately, this proposal will allow me to build a research program to investigate system-oriented, patient-centered solutions to improve the delivery and quality of medical care to youth with diabetes.!

项目摘要/摘要 该建议描述了一个五年的研究培训计划，该计划将使我实现长期目标 成为一个独立的教师科学家，致力于改善医疗保健质量和患者健康 糖尿病的青年。美国大多数患有1型糖尿病（T1D）的青少年不是 达到治疗的目标。我建议开发工具，以提供创新的糖尿病管理支持 通过使用社交媒体（SM）并评估其可行性和 对具有T1D的青少年的可接受性。 SM已成为青少年生活不可或缺的一部分，此时 没有高质量的实证研究研究在医疗保健环境中使用SM。 鉴于需要有影响力的干预措施来支持青少年T1D管理，这项工作具有潜力 在这一脆弱人群中为疾病管理带来了重大进步。 该建议的目的是开发以患者为中心的SM干预措施，以增强患者的自我有效 并改善T1D青少年的健康状况。我将首先确定几个目标来实现这一目标 不同的SM干预策略为糖尿病青少年的不同部分。在AIM 1中，我打算 对大量具有T1D的青少年样本进行调查，以检查如何利用SM 在糖尿病管理中，然后使用潜在类分析技术，我将基于 使用SM的患者特征和偏好。在AIM 2中，我将合并其他利益相关者 通过使用以用户为中心的设计研讨会，包括护理人员和医疗团队成员在内 根据以前的形成性工作开发试点SM干预。通过吸引青少年，照顾者， 以及在以用户为中心的设计研讨会的迭代过程中，医疗团队成员我希望开发一个 与关键利益相关者价值观，偏好和目标一致的SM干预措施。在AIM 3中，我将驾驶 在随机对照试验中进行干预，并检查其可行性和可接受性。此外，我计划 探索对患者报告的结果（例如自我有效）和血糖控制的影响。 我的研究将得到一群具有社交媒体研究专业知识的杰出导师的支持， 小儿糖尿病，调查研究以及临床干预的设计。通过完成目标 提案，我将解决当前的差距，以了解如何利用SM来支持青少年 慢性病。此外，该建议将使我能够在研究培训中采取下一个关键步骤 通过为我提供机会获得设计，评估和 使用社交媒体实施行为健康干预措施。最终，该建议将使我能够建立一个 研究计划，以调查以系统为导向的，以患者为中心的解决方案，以提高交付和质量 糖尿病青年的医疗保健。

项目成果

Screening for Mental Health Comorbidities in a Pediatric Diabetes Clinic Setting.

• DOI: 10.2337/cd20-0037
• 发表时间: 2021-01
• 期刊: Clinical diabetes : a publication of the American Diabetes Association
• 作者: Roberts AJ;Barry D;Yi-Frazier J;Rutman L;Pihoker C;Malik FS
• 通讯作者: Malik FS

Mental health comorbidities in adolescents and young adults with type 2 diabetes.

• DOI: 10.1016/j.pedn.2021.07.028
• 发表时间: 2021-11
• 期刊: Journal of pediatric nursing
• 作者: Roberts AJ;Bao H;Qu P;Moss A;Kim G;Yi-Frazier JP;Pihoker C;Malik F
• 通讯作者: Malik F

Identifying Suicide Risk in Adolescents and Young Adults With Type 1 Diabetes: Are Depression Screeners Sufficient?

识别患有 1 型糖尿病的青少年和年轻人的自杀风险：抑郁症筛查是否足够？

• DOI: 10.2337/dc21-1553
• 发表时间: 2022
• 期刊: Diabetes care
• 影响因子: 16.2
• 作者: Moss,AshleyC;Roberts,AlissaJ;Yi-Frazier,JoyceP;Read,KendraL;Taplin,CraigE;Weaver,KathrynW;Pihoker,Catherine;Hirsch,IrlB;Malik,FaisalS
• 通讯作者: Malik,FaisalS

Adapting to telemedicine in the COVID-19 era: Feasibility of dried blood spot testing for hemoglobin A1c.

• DOI: 10.1016/j.dsx.2021.02.010
• 发表时间: 2021-01
• 期刊: Diabetes & metabolic syndrome
• 作者: Roberts AJ;Malik F;Pihoker C;Dickerson JA
• 通讯作者: Dickerson JA

Driving Safety in Adolescents and Young Adults With Type 1 Diabetes.

患有 1 型糖尿病的青少年和年轻人的驾驶安全。

• DOI: 10.2337/ds20-0021
• 发表时间: 2020
• 期刊: Diabetes spectrum : a publication of the American Diabetes Association
• 作者: Roberts,AlissaJ;Moss,Ashley;Malik,FaisalS;Taplin,Craig;Pihoker,Catherine;Hirsch,IrlB;Read,Kendra;Yi-Frazier,JoyceP
• 通讯作者: Yi-Frazier,JoyceP