1Florida Alzheimer's Disease Research Center Outreach, Recruitment and Engagement (ORE) Core

1佛罗里达阿尔茨海默病研究中心外展、招募和参与 (ORE) 核心

基本信息

批准号：
10413195
负责人：
Rosie E Curiel Cid
金额：
$ 34.25万
依托单位：
UNIVERSITY OF FLORIDA
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-06-15 至 2025-04-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10413195
关键词：
Address African American African American population Alzheimer disease detection Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Applied Research Area Autopsy Black race Brain Clinic Clinical Clinical Research Clinical Trials Collaborations Communication Communities County Cultural Diversity Data Dementia Development Disease Early Diagnosis Education Education and Outreach Educational Materials Elderly Enrollment Ensure Evaluation Feedback Florida Follow-Up Studies Fostering Goals Healthcare Hispanic Hispanic Americans Hispanic Populations Individual Knowledge Language Lead Literature Magnetic Resonance Imaging Measures Medical center Memory Disorders Methods Minority Mission Monitor Neuropsychology Not Hispanic or Latino PET/CT scan Participant Persons Phase Population Population Heterogeneity Postdoctoral Fellow Prevalence Registries Research Research Personnel Research Project Grants Research Training Resources Risk Factors Scanning Scientist Site Time Training Training Activity Training Support Underrepresented Minority Underserved Population Universities Update Work aging population base cohort community engagement community partnership data management dementia risk disorder risk education research empowered ethnic diversity ethnic minority experience faculty research follow-up genetic analysis interest medical schools minority communities neuroimaging neuropathology next generation outreach pre-clinical prevent programs racial diversity racial minority recruit retention rate success tool underserved minority

项目摘要

The state of Florida’s high ethnic and racial diversity provides a unique platform to address an array of scientific and clinical questions to refine our current understanding of how AD+ADRD present and progress among the nation’s diverse cultural groups. Moreover, early detection has become a global priority, given that identifying individuals at-risk for disease during the pre-symptomatic phases may yield the greatest efficacy in emerging treatments in AD+ADRD clinical trials. Thus, the 1Florida Alzheimer’s Disease Research Center has placed a special emphasis on recruiting diverse individuals during the preclinical (preMCI) or prodromal (early MCI) phases, which is of significant value for longitudinal follow up studies. The 1Florida ADRC addresses these major national priorities, represents our demographic landscape, and leverages the scientific expertise of our investigators. The 1Florida ADRC ORE Core’s objectives are to actively facilitate community and professional outreach and education programs so that our Clinical and Neuropathology Cores and affiliated researchers can enroll individuals who are interested in helping develop ways to better assess, treat and prevent AD+ADRD, particularly people from underserved and underrepresented minority communities. We propose to achieve this by i) assembling a racially and ethnically diverse team, ii) further developing, strengthening, and empowering our academic-community partners, iii) developing and implementing culturally appropriate and dual language outreach and educational materials, iv) broadening our communications with stakeholders in a more “live” manner through in-person reciprocal dialogue, and v) serve as cross-cultural experts to support the training of emerging clinician scientists and other professionals through the REC. In the current application, we are strengthening and expanding our partnerships with a focus on more actively engaging stakeholders from minority communities to be involved in the “1Florida ADRC Ambassadors Council”. The feedback of our Ambassadors will allow us to implement pragmatic and effective methods for community engagement in the Hispanic and AA communities in a manner that resonates with our diverse cultural groups. Ultimately, the success of our strategies and programs will be reflected in recruitment and retention rates, especially in the specifically targeted diverse populations. The ORE Core will work closely with the Data Management Core and Clinical Core, to deploy tools to capture data that will evaluate all activities. Our success will also be measured by maintaining an engaged and satisfied cadre of Ambassadors that are representatives of our diverse community, as well as a notable expansion of sustained platforms for outreach and education throughout the state. Importantly, the ORE team has significant cross-cultural expertise that will be valuable for providing training to RE component to ensure that our knowledge about effective practices to engage, assess and treat underrepresented minorities is made available to emerging clinician scientists and other ADRC teams that are working with similar populations.

佛罗里达州高度的民族和种族多样性提供了一个独特的平台来解决一系列科学问题和临床问题，以完善我们目前对 AD+ADRD 如何在 AD+ADRD 中出现和进展的理解此外，鉴于识别国家的不同文化群体，早期发现已成为全球优先事项。在症状前阶段有患病风险的个体可能会在新出现的疾病中产生最大的疗效 AD+ADRD 临床试验中的治疗方法因此，佛罗里达州阿尔茨海默病研究中心已安排了一项治疗。特别强调在临床前 (preMCI) 或前驱期 (早期 MCI) 期间招募不同的个体阶段，这对于纵向随访研究具有重要价值，1Florida ADRC 解决了这些主要问题。国家优先事项，代表我们的人口状况，并利用我们的科学专业知识 1Florida ADRC ORE 核心的目标是积极促进社区和专业人士的发展。外展和教育计划，以便我们的临床和神经病理学核心和附属研究人员能够招募有兴趣帮助开发更好地评估、治疗和预防 AD+ADRD 方法的个人，我们建议实现这一目标，特别是来自服务不足和代表性不足的少数群体的人们。通过 i) 组建一支种族和民族多元化的团队，ii) 进一步发展、加强和赋权我们的学术界合作伙伴，iii) 制定和实施文化上适当的双语言外展和教育材料，iv) 以更加“生动”的方式扩大我们与利益相关者的沟通 v) 作为跨文化专家，支持培训新兴临床科学家和其他专业人员通过 REC 在当前的应用中。加强和扩大我们的伙伴关系，重点是更积极地吸引少数群体的利益相关者参与“1佛罗里达 ADRC 大使理事会”的社区我们大使的反馈。将使我们能够实施务实有效的方法来促进西班牙裔和 AA 的社区参与以与我们不同文化群体产生共鸣的方式最终实现我们的成功。战略和方案将反映在招聘和保留率中，特别是在具体目标群体中 ORE 核心将与数据管理核心和临床核心密切合作，以部署工具来捕获评估所有活动的数据，我们的成功也将通过维护来衡量。一支敬业且满意的大使队伍，他们是我们多元化社区的代表，以及显着扩大全州范围内的持续宣传和教育平台。 ORE 团队拥有丰富的跨文化专业知识，这对于为 RE 组件提供培训非常有价值确保我们对参与、评估和治疗代表性不足的少数群体的有效做法的了解可供新兴临床科学家和其他与类似人群合作的 ADRC 团队使用。