Defining a Culturally Tailored Crisis Intervention Model Targeting African American Dementia Caregivers in Socially Disadvantaged Neighborhoods
定义针对社会弱势社区的非裔美国痴呆症护理人员的文化定制危机干预模型
基本信息
- 批准号:10396092
- 负责人:
- 金额:$ 6.32万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2021
- 资助国家:美国
- 起止时间:2021-05-01 至 2023-01-31
- 项目状态:已结题
- 来源:
- 关键词:AcuteAddressAfrican AmericanAfrican American populationAgingAlzheimer&aposs disease related dementiaAmericanBelief SystemCaregiversCaringClinical ServicesCommunitiesComplexConsequentialismCrisis InterventionDataDecision MakingDementiaDementia caregiversDiagnosisDiseaseEconomically Deprived PopulationEmergency department visitEnvironmentEnvironmental Risk FactorEthnic groupEventFamilyFibrinogenFoundationsFriendsFundingGoalsHealthHealth Services AccessibilityHospitalizationInfrastructureInterventionInterviewInvestigationKnowledgeMedicalModelingNational Institute on AgingNeighborhoodsOutcomePathway interactionsPersonal SatisfactionPhasePopulationPrecipitating FactorsPrevalencePrincipal InvestigatorProceduresProcessProviderRaceReportingResearchResearch PersonnelResearch PriorityResourcesRoleSamplingSeveritiesShapesTimeTrustUnited States National Institutes of HealthValidationVariantWorkage relatedcare giving burdencare outcomescare recipientscareercaregivingcontextual factorscultural valuesdementia caregivingdesigndimensional analysisdisabilityeffective interventionexperiencefirst responderhealth disparityhealth economicshealth equityhelp-seeking behaviorhigh riskintervention deliverymembermortalityneighborhood disadvantagepreventprospectiveracial and ethnicservice providersservice utilizationsocialsocial disadvantagesocial metricstheories
项目摘要
PROJECT ABSTRACT
Health disparities in Alzheimer’s disease and related dementia (ADRD) persist among African Americans who
are two-fold more likely to develop dementias. African Americans also rely more heavily on unpaid family or
friend caregivers to meet the complex needs of care recipients with ADRD than other racial/ethnic groups.
Disproportionately high caregiving burden is experienced within African American communities, as many African
American caregivers reside in socially disadvantaged neighborhoods—environments with fewer health,
economic, and social resources. African American caregivers also report high levels of unmet needs, which often
escalate to the point of crisis. Emerging evidence suggests that crisis events, defined as unplanned stressful
situations requiring immediate action, are frequently experienced by African American caregivers. Yet, effective
strategies for addressing African American ADRD needs and crisis in the context of social disadvantage are
lacking. Although addressing caregiving needs and disparities are national research priorities, efforts to address
crisis events have been hindered by under-inclusion of African Americans in research. Consequentially, it is not
known how African American caregivers perceive and manage crisis events in socially disadvantaged
environments, limiting identification of interventions to prevent, mitigate, and manage crisis in this context. The
proposed prospective qualitative will utilize a validated metric of social disadvantage to guide sampling and
Grounded Dimensional Analysis (GDA), a variant of Grounded Theory, to examine ADRD crisis. Aim 1 will
identify precipitating, mitigating, and modifiable features of crisis among African American caregivers in socially
disadvantaged environments and generate crisis intervention model. Sub-Aim 1A will examine the role of
environmental factors in shaping decision-making surrounding crisis events. Finally, Aim 2 will validate a
culturally tailored crisis intervention model for African Americans ADRD caregivers in the context of social
disadvantage. The proposed research will provide the urgently needed foundational knowledge to better
understand and ultimately shape interventions for crisis events in a high-risk and understudied ADRD population,
African American caregivers—and is directly responsive to priorities of the National Institute on Aging (NIA)
framework “Aging Well in the 21st Century: Strategic Directions for Research on Aging.” The study addresses
Goal C of the framework: “develop effective interventions to maintain health, well-being, and function and prevent
or reduce the burden of age-related diseases, disorders, and disabilities.” Findings from this research will
establish preliminary design components for mode of intervention delivery building on identified intervention
targets.
项目摘要
非洲裔美国人中阿尔茨海默病和相关痴呆症 (ADRD) 的健康差异仍然存在
非裔美国人患痴呆症的可能性是非裔美国人的两倍,他们也更加依赖无薪家庭或家庭。
与其他种族/族裔群体相比,照顾者朋友可以满足 ADRD 照顾者的复杂需求。
非裔美国人社区中承受着不成比例的高照护负担,因为许多非洲人
美国护理人员居住在社会弱势社区——健康状况较差的环境,
非裔美国护理人员的经济和社会资源也存在大量未满足的需求。
新出现的证据表明,危机事件被定义为计划外的压力。
非裔美国护理人员经常遇到需要立即采取行动的情况,但这种情况是有效的。
在社会弱势背景下解决非裔美国人 ADRD 需求和危机的战略是
尽管解决护理需求和差异是国家研究的优先事项,但仍需努力解决这一问题。
危机事件因非裔美国人参与研究不足而受到阻碍。因此,事实并非如此。
了解非裔美国护理人员如何看待和处理社会弱势群体的危机事件
环境,限制了在此背景下预防、减轻和管理危机的干预措施的确定。
拟议的前瞻性定性将利用经过验证的社会劣势指标来指导抽样和
扎根维度分析 (GDA) 是扎根理论的一种变体,用于检验 ADRD 危机。
识别非裔美国护理人员在社会方面的危机的诱发、缓解和可改变的特征
子目标 1A 将研究弱势环境并生成危机干预模型的作用。
最后,目标 2 将验证环境因素对危机事件决策的影响。
在社会背景下为非裔美国人 ADRD 护理人员量身定制的危机干预模型
所提出的研究将为更好地提供迫切需要的基础知识。
了解并最终制定针对高风险和未充分研究的 ADRD 人群中的危机事件的干预措施,
非裔美国护理人员 - 直接响应国家老龄化研究所 (NIA) 的优先事项
框架“21世纪的老龄化:老龄化研究的战略方向”。
该框架的目标 C:“制定有效的干预措施以维持健康、福祉和功能,并预防
或减轻与年龄相关的疾病、紊乱和残疾的负担。”
基于已确定的干预措施,建立干预实施模式的初步设计要素
目标。
项目成果
期刊论文数量(0)
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会议论文数量(0)
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{{ truncateString('Quinton Cotton', 18)}}的其他基金
Defining a Culturally Tailored Crisis Intervention Model Targeting African American Dementia Caregivers in Socially Disadvantaged Neighborhoods
定义针对社会弱势社区的非裔美国痴呆症护理人员的文化定制危机干预模型
- 批准号:
10192202 - 财政年份:2021
- 资助金额:
$ 6.32万 - 项目类别:
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