Assessing the influence of family care resources on care utilization and transitions for older adults with dementia

评估家庭护理资源对痴呆症老年人护理利用和过渡的影响

• 批准号: 10305099
• 负责人: HwaJung Choi
• 金额: $ 5.87万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-01 至 2023-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10305099
• 关键词: Address; Adult; Adult Children; Adverse effects; Affect; Alzheimer' s disease related dementia; COVID-19; COVID-19 pandemic; Caring; Child; Chronic; Cognitive; Communities; Dementia; Distance Learning; Economics; Elderly; Emergency department visit; Family; Family Caregiver; Family Study; Family dynamics; Family member; Health; Healthcare; Home; Home Care Services; Intervention; Interview; Job loss; Long-Term Care; Longitudinal Studies; Methods; Nursing Homes; Parents; Persons; Physical Function; Policies; Population; Population Group; Probability; Public Health; Resources; Risk; Role; Schools; Spouses; Structure; Surveys; Time; Variant; Virus; Vulnerable Populations; adverse outcome; care systems; caregiving; cognitive function; comorbidity; cost; dementia caregiving; experience; family influence; informal care; pandemic disease; public health intervention; social; socioeconomics

PROJECT SUMMARY/ABSTRACT Older adults with Alzheimer’s Disease and Related Dementias (ADRD) are especially vulnerable to the virus as many of them have comorbidities. Despite the need of frequent hands-on care due to their limitations in physical and cognitive functioning, home care services and institutional care services are limited and challenging during the pandemic. Family care support may mitigate the adverse effect of the pandemic on care utilization of persons with ADRD. However, there is substantial variation in family care availability across populations which may result in unequal consequences of COVID-19. Those with little family care availability (e.g., no spouse or no adult child nearby) are likely to be most vulnerable during the pandemic and may need to rely on institutional care despite the greater health risk. The pandemic has also profoundly impacted the social and economic circumstances of many families (e.g., job loss and home schooling) and consequently, on their care availability for older adults with ADRD. Despite an urgent public health need to address unmet care need for older adults, little is known about changes in family care availability and its influence on care use by persons with ADRD during the COVID-19 pandemic. To address this gap in evidence and hence inform interventions to minimize the adverse consequences of the pandemic on persons with ADRD and their families, the study has the following aims: First, the project will determine the extent to which family care availability (e.g., presence of healthy spouse, presence of adult children coresident or living nearby) moderates the influence of COVID-19 pandemic on care received by persons with ADRD. It will also assess differences in the impact of the pandemic on care utilization by persons with ADRD across demographic and socioeconomic groups. It will use nationally representative longitudinal studies to examine changes in care received by persons with ADRD over time -- including both the pre-pandemic and pandemic period. Newly added survey questions on COVID-19 to these studies will be also examined. Second, it will assess the extent to which COVID-19 pandemic affected family care availability for a person with ADRD and hence changed the care role of each family member and care allocations among family members. To understand family dynamics in caregiving while responding to various challenges during the pandemic, we will use a mixed-methods approach. The proposed aims are within the scope of the parent study (K01AG057820) since they assesse the implications of COVID-19 pandemic for family care availability and its consequences for older persons with ADRD and their family caregivers. Results from the study will inform public health interventions and policy to mitigate adverse consequences of the pandemic and identify vulnerable population groups among older persons with ADRD and their families. 1

项目概要/摘要 患有阿尔茨海默病和相关痴呆症 (ADRD) 的老年人特别容易感染该病毒，因为 尽管由于自身能力的局限性，他们中的许多人都患有合并症。 身体和认知功能、家庭护理服务和机构护理服务有限且 大流行期间的家庭护理支持可能会减轻大流行对护理的不利影响。 然而，不同地区家庭护理的可用性存在很大差异。 可能会导致 COVID-19 造成不平等后果的人群。 （例如，附近没有配偶或没有成年子女）在大流行期间可能是最脆弱的，可能需要 尽管健康风险更大，但仍依赖机构护理。大流行也对社会产生了深刻影响。 和许多家庭的经济状况（例如失业和在家上学），因此，他们的 患有 ADRD 的老年人的护理可用性。 尽管公共卫生迫切需要解决老年人未得到满足的护理需求，但人们对变化知之甚少 在 COVID-19 大流行期间，家庭护理的可用性及其对 ADRD 患者使用护理的影响。 为了解决这一证据差距，从而为干预措施提供信息，以最大限度地减少不良后果 针对 ADRD 患者及其家人的流行病，该研究的目的如下： 首先，该项目将确定家庭护理的可用性程度（例如，有健康的配偶、 成年子女（同住或住在附近）的存在减轻了 COVID-19 大流行对护理的影响 它还将评估大流行对护理利用的影响的差异。 它将使用具有全国代表性的 ADRD 患者。 纵向研究检查 ADRD 患者接受的护理随时间的变化——包括 这些研究还将新增有关 COVID-19 的调查问题。 检查了。 其次，它将评估 COVID-19 大流行对患有此病的人的家庭护理可用性的影响程度 ADRD 从而改变了每个家庭成员的照顾角色以及家庭成员之间的照顾分配。 了解家庭护理动态，同时应对疫情期间的各种挑战，我们将 使用混合方法。 拟议的目标属于母研究 (K01AG057820) 的范围，因为它们评估了影响 COVID-19 大流行对家庭护理可用性的影响及其对患有 ADRD 的老年人及其家人的影响 研究结果将为公共卫生干预措施和政策提供信息，以减轻不利影响。 大流行的后果，并确定患有 ADRD 的老年人中的弱势群体 他们的家人。 1