Development of an Intervention for Long-Distance Caregivers

为远程护理人员制定干预措施

• 批准号: 10300258
• 负责人: Verena Cimarolli
• 金额: $ 14.1万
• 依托单位: LEADINGAGE, INC.
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-15 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10300258
• 关键词: Address; Adult; Advisory Committees; Alzheimer' s disease related dementia; Behavior Therapy; Behavioral Model; Caregiver Burden; Caregivers; Caring; Characteristics; Clinical Trials; Committee Members; Communities; Data Collection; Dementia; Development; Elderly; Emotional; Ensure; Ethnic group; Evaluation; Evidence based intervention; Family Caregiver; Feasibility Studies; Fostering; Foundations; Funding; Geography; Goals; Home; Home Care Agencies; Home Health Aides; Hour; Impaired cognition; Individual; Intervention; Intervention Studies; Knowledge; Manuals; Mental Health; Modeling; Modification; Outcome; Outcome Measure; Participant; Personal Satisfaction; Procedures; Process; Provider; Public Health; Randomized Controlled Trials; Research; Role; Sampling; Services; Stress; Stress and Coping; Tablets; Technology; Testing; Training; United States National Institutes of Health; base; care recipients; caregiver interventions; caregiving; caregiving research; design; efficacious intervention; efficacy testing; ethnic diversity; evidence base; experience; family caregiving; feasibility testing; improved; insight; intervention effect; knowledge base; new technology; patient home care; primary caregiver; psychosocial; racial and ethnic; racial diversity; recruit; remote delivery; response; social culture; socioeconomics; therapy design; therapy development; usability

Project Summary Prior caregiving research has mostly focused on geographically close caregivers of older adults with Alzheimer’s disease and related dementias (AD/ADRD), not considering the unique circumstances of long-distance caregivers (LDCs). However, from our previously funded R21 on long-distance caregiving (LDC; NIA; R21- AG050018) we know that a large proportion of LDCs helped care recipients (CRs) with significant cognitive impairment who were community-dwelling and that these LDCs experienced significant caregiver burden. Hence, there is a need to develop psycho-social interventions that can meet the specific needs of LDCs. This R21 application in response to PAR-19-071 seeks to draw on the knowledge gained in our previous R21 study to adapt an existing evidence-based caregiver intervention (Community REACH) to the needs and circumstances of LDCs and to test the feasibility of implementing such an adapted model in the field. Following the NIH Stage Model for Behavioral Intervention Development, the first objective of this application is to develop a novel technology-based, remotely delivered psychosocial intervention for LDCs of older adults with AD/ADRD living in the community, by adapting an existing intervention developed for proximate caregivers (Stage IA) based on findings from our previous NIA funded study on LDC (Stage 0). A second objective is to conduct feasibility testing of such an intervention in the field (Stage IB). Our long-term research goal is to implement a randomized controlled trial testing the potential of a technology-based, remotely delivered intervention for LDC of individuals with AD/ADRD living at home. The current application focuses on Stage I (behavioral intervention development and feasibility testing) and is the next step toward attainment of our long-term goal of testing the efficacy of such an intervention utilizing a randomized controlled trial (Stage II and III – efficacy testing). The development of the intervention through adaptation of Community REACH to the needs of LDCs will be achieved by creating an advisory committee of caregiving experts. Committee members will be asked to help integrate a set of specific findings from our Stage 0 study related to the challenges of LDC into the Community REACH intervention plan. The sample of LDCs (N=40) for the feasibility study will be drawn from family caregivers of community-dwelling older adults with AD/ADRD receiving non-medical home care via the access to home care agencies serving racially and ethnically diverse older adults with dementia. This will ensure that home care aides can support CRs in managing the technology (tablet) used to connect LDCs with CRs and aides as part of the intervention. We will identify LDCs living 2+ hours away who experience significant caregiver burden and invite them to participate in the intervention and feasibility study. The intervention will be delivered remotely by staff of the Family Caregiver Alliance (FCA). Project outcomes will advance the field by addressing a significant knowledge gap and providing a foundation for the design, implementation, and evaluation of LDC-specific psychosocial interventions that can have a long-term impact on the well-being of LDCs and the older adults for whom they care.

项目摘要 先前的护理研究主要集中在老年人的地理上关闭护理人员上 疾病和相关痴呆症（AD/ADRD），不考虑长途独特的情况 护理人员（LDCS）。但是，从我们先前资助的R21从长距离照顾（LDC; NIA; R21--） AG050018）我们知道，很大一部分的最不发达国家帮助护理人员（CRS）具有重要的认知能力 社区居住的障碍，这些最不发达国家经历了重大的照顾者负担。因此， 有必要开发可以满足自由顾问的特定需求的心理社会干预措施。这个R21 响应于第19段的应用程序的应用旨在利用我们以前的R21研究中获得的知识 将现有的基于证据的护理人员干预（社区覆盖范围）适应需求和情况 最不发达国家并测试在现场实施这种适应模型的可行性。遵循NIH舞台 行为干预开发的模型，该应用的第一个目标是开发一种新颖的 基于技术的，远程提供了广告/ADRD的老年人的最不发达国家的社会心理干预措施 通过调整为基于邻近护理人员（阶段IA）开发的现有干预措施，该社区基于 我们以前的NIA资助的关于最不发达国家的研究（第0阶段）的发现。第二个目标是进行可行性测试 在该领域的这种干预（IB阶段）。我们的长期研究目标是实施一个随机的 对照试验测试基于技术的，远程交付的人的干预措施的潜力 广告/阿德德住在家里。当前的申请重点是I期（行为干预开发） 和可行性测试），是实现我们长期测试效率的下一步 利用随机对照试验（II和III - III - 效率测试）的干预措施。发展 通过适应社区达到麻省有力需求的干预将通过创建一个 护理专家咨询委员会。委员会成员将被要求帮助整合一组特定的 从我们的第0阶段研究中的发现与最不发达国家对社区的挑战有关。 可行性研究的LDCS样本（n = 40）将从社区居民的家庭护理人员中获取 通过访问家庭护理机构，有广告/ADRD的老年人接受非医疗家庭护理 种族和种族潜水员老年人患有痴呆症。这将确保家庭护理助手可以支持CRS 在管理该技术（平板电脑）的过程中，作为干预措施的一部分，用于将利权与CRS和助手连接起来。我们 将确定住在2个小时以上的居住在2个小时以上的人，他们经历了重要的照顾者伯恩，并邀请他们参加 在干预和可行性研究中。干预措施将由家庭护理人员的工作人员进行远程交付 联盟（FCA）。项目成果将通过解决重大的知识差距并提供 是针对特异性心理社会心理干预措施的设计，实施和评估的基础 对自由行车和他们关心的老年人的福祉产生长期影响。