Recruitment and Assessment Core

招聘与考核核心

• 批准号: 10227715
• 负责人: Naomi Ornstein Davis
• 金额: $ 32.71万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-07 至 2022-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10227715
• 关键词: Achievement; Adaptive Behaviors; Address; Advertising; Advocacy; Attention deficit hyperactivity disorder; Behavioral; Blood; Brain; Child; Child Behavior Checklist; Clinical; Cognitive; Collaborations; Collection; Common Core; Communities; DNA; Data; Data Analyses; Detection; Development; Diagnostic; Early Diagnosis; Early treatment; Electronic Mail; Enrollment; Ensure; Environmental Exposure; Event; Family; Family history of; Future; Genomics; Goals; Infrastructure; Intervention; Interview; Maintenance; Measures; Medical; Monitor; National Institute of Mental Health; Newsletter; Newspapers; Pamphlets; Parents; Participant; Phenotype; Positioning Attribute; Procedures; Questionnaires; Radio; Recording of previous events; Reporting; Research; Research Activity; Research Personnel; Research Project Grants; Resources; Role; Sampling; Services; Standardization; Structure; Support Groups; Symptoms; System; Telephone; Test Result; Time; Treatment outcome; Update; Work; associated symptom; autism spectrum disorder; autistic children; child services; cohort; comorbidity; data management; early life exposure; experience; genetic analysis; interest; meetings; novel; outreach; participant retention; programs; recruit; relating to nervous system; repository; screening; social; tool; web portal

ABSTRACT – Recruitment and Assessment Core The overall goal of the Duke Autism Center of Excellence is to characterize how co-occurring symptoms of attention deficit hyperactivity disorder (ADHD) influence the early detection, clinical presentation, brain mechanisms, developmental trajectories, and treatment outcomes of young children with autism spectrum disorder (ASD). Across Projects 1, 2, and 3, investigators will evaluate young children with ASD alone, ASD with co-occurring ADHD, ADHD alone, and typically-developing children. The Recruitment and Assessment Core will provide centralized services in recruitment and assessment of participants across projects, thereby ensuring that the overall Center accomplishes its recruitment goals, obtains high quality participant data, and is positioned to achieve project-specific aims and conduct novel cross-project analyses. The Core has the following aims: (1) recruit, screen, and enroll participants for Duke ACE Center projects by collaborating closely with the Dissemination and Outreach Core and by engaging in a variety of recruitment strategies such as advertising, community event participation, and maintaining active relationships with local advocacy and support groups; (2) provide standardized, reliable assessment of participants by administering common core assessments, including ASD and ADHD diagnostic measures, and collecting other cognitive, behavioral, family and medical history, intervention history, and environmental exposure data to characterize all Center participants. By overseeing the fidelity and inter-rater reliability of centralized common measures, assessment quality will be increased; (3) implement strategies to maximize retention of participants by promoting a positive experience for participants and their families. Strategies will include maintaining regular contact with participants, providing diagnostic reports that summarize testing results, responding promptly to queries, and giving regular updates about Center research and activities. As part of its role in retaining participants, Core staff will collaborate with the Data Management and Analysis Core to help manage and implement the Cohort Management System developed for Project 1; and (4) track recruitment and retention and address barriers to successful recruitment and retention. Core staff will establish goals and milestones related to recruitment and retention that correspond to the needs of each project and provide weekly updates to the Administrative Core and Executive Committee regarding progress. Staff will monitor and proactively address barriers to meeting goals, thereby ensuring that all projects will be successful in achieving their research aims. By effectively completing these aims, the Recruitment and Assessment Core will reduce staff burden and use resources more effectively to ensure that the Duke ACE Center will meet its recruitment and retention goals, provide high quality, standardized phenotypic characterization of all participants, and facilitate novel cross-project analyses and discoveries that integrate common data on participants.

摘要 – 招聘和评估核心 杜克大学自闭症卓越中心的总体目标是描述自闭症患者同时出现的症状是如何发生的。 注意缺陷多动障碍（ADHD）影响早期发现、临床表现、大脑 自闭症谱系幼儿的机制、发展轨迹和治疗结果 在项目 1、2 和 3 中，研究人员将评估仅患有 ASD 的幼儿。 与同时发生的 ADHD、单独的 ADHD 以及典型发育的儿童。 Core将提供跨项目参与者招募和评估的集中服务，从而 确保整个中心完成其招募目标，获得高质量的参与者数据，并 旨在实现特定项目的目标并进行新颖的跨项目分析。 以下目标：(1) 通过密切合作，招募、筛选和注册杜克大学 ACE 中心项目的参与者 与传播和外展核心并通过参与各种招聘策略，例如 广告、社区活动参与以及与当地倡导者和组织保持积极的关系 支持小组；(2) 通过管理共同核心提供标准化、可靠的评估 评估，包括 ASD 和 ADHD 诊断措施，并收集其他认知、行为、家庭 以及病史、干预史和环境暴露数据来描述所有中心的特征 通过监督集中的共同措施、评估的保真度和评估者间的可靠性。 质量将得到提高；（3）实施策略以最大限度地保留积极的内容； 参与者及其家人的经验包括与他们保持定期联系。 参与者，提供总结测试结果的诊断报告，及时答复查询，以及 定期提供有关中心研究和活动的最新信息 作为其留住参与者的一部分，Core。 工作人员将与数据管理和分析核心合作，帮助管理和实施队列 为项目 1 开发的管理系统；(4) 跟踪招聘和保留并解决障碍 成功的招聘和保留核心员工将制定与招聘和保留相关的目标和里程碑。 保留对应于每个项目的需求并为管理核心提供每周更新 工作人员将监督并积极解决会议障碍。 目标，从而确保所有项目都能有效地成功实现其研究目标。 为了完成这些目标，招聘和评估核心将减轻员工负担并利用资源 更有效地确保杜克大学 ACE 中心实现其招募和保留目标，提供高 所有参与者的质量、标准化表型特征，并促进新颖的跨项目分析 以及整合常见数据的发现。