Study of care to support the decision-making among hematological malignancies patients and their family during the incurable phase

支持血液恶性肿瘤患者及其家属在不可治愈阶段决策的护理研究

• 批准号: 23792581
• 负责人: SHIRAI YUKI
• 金额: $ 1.91万
• 依托单位: The University of Tokyo
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Young Scientists (B)
• 财政年份: 2011
• 资助国家: 日本
• 起止时间: 2011 至 2012
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-23792581/
• 关键词: がん; 看護学; 造血器悪性腫瘍; 意思決定; 緩和ケア; 多職種; 連携

The study aimed to assess the barriers to collaboration between hematologists and palliative care teams on care for hematological malignancies patients during incurable phase, and to clarify the required care on decision-making among hematological malignancies patients and their family during the incurable phase. A qualitative study was conducted using semi-structured interviews with hematologists, palliative care specialists, and nurses. Seven categories of barriers to collaboration were identified, including not feeling the need to refer, the difficulty of referral timing, lack of palliative care specialists' knowledge of hematological malignancies, the lack of communication, and others. On decision-making, the finding of this study suggests that a nurse can take a leading role in understanding patient and family feeling and desire, providing emotional support for patient and family, and providing information about care and patient circumstances for other medical staff.

该研究旨在评估血液科医生和姑息治疗团队在不治之症阶段的血液系统恶性肿瘤患者护理方面的合作障碍，并阐明血液系统恶性肿瘤患者及其家属在不治之症阶段的决策所需的护理。通过对血液学家、姑息治疗专家和护士进行半结构化访谈，进行了一项定性研究。确定了七类合作障碍，包括感觉不需要转诊、转诊时机困难、姑息治疗专家缺乏血液恶性肿瘤知识、缺乏沟通等。在决策方面，本研究的结果表明，护士可以在了解患者和家属的感受和愿望、为患者和家属提供情感支持以及为其他医务人员提供有关护理和患者情况的信息方面发挥主导作用。

项目成果

再発・治療抵抗性の白血病/悪性リンパ腫患者の支援における血液内科医と緩和ケアチームの連携の障害と解決策に関する質的研究

一项关于血液学家和姑息治疗团队在支持复发性和难治性白血病/恶性淋巴瘤患者方面合作的障碍和解决方案的定性研究。

• 发表时间: 2012
• 作者: 森川みはる;白井由紀;落合亮太;宮川清
• 通讯作者: 宮川清

再発・治療抵抗性の白血病/悪性リンパ腫患者の意思決定場面における医師が担う役割と看護師に期待する役割

医生在复发/难治性白血病/恶性淋巴瘤患者决策中的作用和护士的预期作用

• 发表时间: 2014
• 作者: 森川みはる;白井由紀
• 通讯作者: 白井由紀