PA TH2Caregiving: Data-Driven Digital Engagement to Assess and Address the Needs of Family Caregivers

PA TH2Caregiving：数据驱动的数字参与，评估和满足家庭护理人员的需求

• 批准号: 10598028
• 负责人: Stephanie Ann Vaughn
• 金额: $ 27.45万
• 依托单位: PATH2CAREGIVING LLC
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-04-14 至 2025-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10598028
• 关键词: Address; Adverse effects; Aftercare; Algorithms; American; Android; Architecture; Area; Assessment tool; Caregivers; Caring; Catalogs; Centers for Disease Control and Prevention (U.S.); Communities; Computer software; Data; Development; Discharge Plannings; Ecosystem; Education; Electronic Health Record; Engineering; Environment; Family; Family Caregiver; Family member; Feedback; Focus Groups; Goals; Health; Home; Individual; Inpatients; Internet; Intervention; Interview; Laws; Link; Logic; Medicine; Mobile Health Application; Nurses; Outcome; Outcome Assessment; Patient Self-Report; Patients; Personal Satisfaction; Phase; Preparation; Process; Quality of life; Readiness; Recommendation; Rehabilitation therapy; Reproducibility; Resources; Risk; Risk Factors; Role; Screening Result; Screening procedure; Small Business Innovation Research Grant; Statutes and Laws; Surveys; Technology; Testing; Theoretical model; Time; Translating; United States National Academy of Sciences; acute care; biopsychosocial; care outcomes; care recipients; caregiver interventions; caregiver strain; caregiving; caregiving outcomes; clinical research site; design; digital; electronic health record system; evidence base; experience; feasibility testing; formative assessment; hospital care; improved; indexing; innovation; inpatient service; interoperability; mHealth; mobile application; patient home care; programs; retiree; skills; standard of care; therapy design; tool; usability; Address; Adverse effects; Aftercare; Algorithms; American; Android; Architecture; Area; Assessment tool; Caregivers; Caring; Catalogs; Centers for Disease Control and Prevention (U.S.); Communities; Computer software; Data; Development; Discharge Plannings; Ecosystem; Education; Electronic Health Record; Engineering; Environment; Family; Family Caregiver; Family member; Feedback; Focus Groups; Goals; Health; Home; Individual; Inpatients; Internet; Intervention; Interview; Laws; Link; Logic; Medicine; Mobile Health Application; Nurses; Outcome; Outcome Assessment; Patient Self-Report; Patients; Personal Satisfaction; Phase; Preparation; Process; Quality of life; Readiness; Recommendation; Rehabilitation therapy; Reproducibility; Resources; Risk; Risk Factors; Role; Screening Result; Screening procedure; Small Business Innovation Research Grant; Statutes and Laws; Surveys; Technology; Testing; Theoretical model; Time; Translating; United States National Academy of Sciences; acute care; biopsychosocial; care outcomes; care recipients; caregiver interventions; caregiver strain; caregiving; caregiving outcomes; clinical research site; design; digital; electronic health record system; evidence base; experience; feasibility testing; formative assessment; hospital care; improved; indexing; innovation; inpatient service; interoperability; mHealth; mobile application; patient home care; programs; retiree; skills; standard of care; therapy design; tool; usability

PROJECT SUMMARY/ABSTRACT Family caregivers are often required to provide post-discharge assistance to individuals with disabling conditions, resulting in strain and negative effects on the caregiver’s health and well-being. While assessing and addressing the needs of family caregivers has been identified as a priority area, there are no comprehensive programs designed to assess a family member’s readiness to provide post-discharge care and address unmet needs. PATH2Caregiving is a nurse-led comprehensive evidence-based transitional care program designed to bridge this gap by evaluating unmet caregiver needs and implementing interventions specifically tailored to address those needs. The program includes the Preparedness Assessment for the Transition Home (PATH)©, a validated, 25-item, self-report screening tool that assesses and prioritizes biopsychosocial and ecological risk factors for caregiving, and a corresponding Catalog of Caregiver Interventions© designed to minimize the adverse effects of caregiving post-discharge through education, skill building, support, and links to community resources. Implementing such a program may mitigate the adverse effects of caregiving by developing a personalized discharge and transition plan and optimized preparation for the transition home following discharge from an acute care hospital or inpatient rehabilitation facility (IRF). The goal of this Phase I SBIR project is to translate the PATH2Caregiving Program© into a usable, acceptable and accessible mHealth platform for iOS, Android, and web-browsers. The project will involve the development and testing of a mobile application (app) with minimal features (i.e., a minimum viable product [MVP]) focused on user experience (UX) and user interface (UI).The app will be tested with caregivers and clinicians of patients being discharged from an IRF. In this Phase I project we will address the following Specific Aims (SA): SA1: Identify design features for the UI and UX, operationalization survey and algorithms, and develop the necessary backend architecture for the PATH2Caregiving platform. It will involve developing the storyboards and further refinement based upon quantitative and qualitative feedback through end-user focus groups on usability. SA 2: Develop and computationally test the PATH2Caregiving software platform for accuracy, validity, and solution reproducibility. SA 3: Conduct usability and acceptability testing of the MVP with a small group of end users, including family caregivers and clinicians, to evaluate UX through quantitative surveys that include ratings of the features, format, graphics, and ease of use; and qualitative interviews to assess accessibility, usability, usefulness, and likeability of platform features. The successful development of the PATH2Caregiving MVP will be the basis for Phase II of the project that will involve feasibility testing in real-world environments with partnerships in clinical sites, further refinement of the platform as needed, and development of interoperability features for integration into EHR systems.

项目摘要/摘要 通常要求家庭护理人员向有残疾状况的个人提供分期助理援助， 导致对护理人员健康和福祉的压力和负面影响。在评估和解决 家庭护理人员的需求已被确定为优先领域，没有全面的计划 旨在评估家庭成员准备提供后收费护理并满足未满足的需求的准备。 Path2Caregiving是一项由护士领导的综合循证过渡护理计划，旨在桥接 通过评估未满足的护理人员的需求和实施专门针对解决的干预措施来解决这一差距 这些需求。该计划包括过渡家庭（路径）©的准备评估 经过验证的25项自我报告筛查工具，评估并优先考虑生物心理社会和生态风险 护理的因素，以及相应的护理人员干预目录©旨在最小化 通过教育，技能建设，支持和与社区的链接的护理后送礼后的不利影响 资源。实施这样的程序可能会通过开发一个 出院后的过渡房屋的个性化排放和过渡计划以及优化的过渡家准备 来自急诊医院或住院康复设施（IRF）。 I阶段I SBIR项目的目标是 将Path2Caregiving程序©转换为iOS的可用，可访问且可访问的MHealth平台， Android和Web浏览器。该项目将涉及移动应用程序（APP）的开发和测试 以最小的功能（即，最小可行的产品[MVP]）着重于用户体验（UX）和用户界面 （UI）。该应用程序将与从IRF出院的患者的护理人员和临床医生进行测试。在这个阶段 我项目我们将解决以下特定目标（SA）：SA1：确定UI和UX的设计功能， 操作调查和算法，并为 Path2Caregiving平台。它将涉及开发故事板和进一步的改进 通过最终用户焦点小组对可用性的定量和定性反馈。 SA 2：开发和 在计算上测试Path2Caregiving软件平台的准确性，有效性和解决方案可重复性。 SA 3：与一小部分最终用户（包括家庭）对MVP进行可用性和可接受性测试 护理人员和临床医生，通过定量调查评估UX，包括特征，格式的评级， 图形和易用性；以及定性访谈，以评估可访问性，可用性，实用性和可爱性 平台功能。 PATH2Caregiving MVP的成功开发将成为II期的基础 该项目将涉及在现实世界中具有合作伙伴关系的现实环境中的可行性测试，进一步 根据需要对平台的改进，并开发互操作性功能以集成到EHR 系统。